Discussions By Condition: I cannot get a diagnosis.

Legg Cathe Perthes

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: jcb815
  • December 7, 2008
  • 04:34 AM

I'll start off with the history and then get into the current problems and worries I'm having so please just bare with me.

Story:
I'm currently a 17 year old in my senior year of high school. When I was 4 years old I was diagnosed with Legg Cathe Perthes. I kept complaining about a pain in my knee. Everytime we went to see a doctor they said it was growing pains. When they did x-rays, it was of my knee. The pain continued to the point that I couldn't sleep. I just stayed up and cried because it hurt so bad. Finally one doctor did x-rays of my whole leg and found the very degenerated ball in my left hip. My parents had the option between surgery or having a removable cast for a very very long time. They picked the surgery. All I know about the surgery is that there was 2 months traction before the surgery. Then for the surgery they cut my femur and bent it and used 3 large screws to hold it in place. I woke up in a body cast which I had to wear for about 3 months I believe. Then when I was 6 years old (2 years after first surgery), I had another surgery to take out the screws.

After all the recovery, everything went back to normal, other than the fact that I cannot sit indian style. It's impossible for my left hip to move that way.

I grew up as a normal kid after the surgery and recovery but every once in a while my left hip would start to "act up." I never thought anything of it until now.

Now:
Well now, at 17 years old, my hip has started to bother me a bit more than usual. It hurts occasionally. It's always felt weaker than the other one but I figured that it's just like a broken bone and people say that once you break a bone it always hurts occasionally. I can't stand for excessive amounts of time. Every so often (about every 6 months or so) it will give out on me for some reason and I'll fall but I recover immediately after. My doctor says that I will have to have hip replacement eventually (One of my worst nightmares). Some doctors say that it could be in my late 20's or sooner and some say it could be when I'm in my 50's. I feel like it won't be so long though and it's starting to make me worry.

My Question:
Is there anything I can do to help the bone in my hip?
Any medication or a workout or anything?


I just want to know how to get rid of the pain and make it so that I will NOT need a hip replacemein nt my 20's or 30's or even 40's!
I know that it's something that I will have to go through eventually but I also know that there are many ways to help keep it healthy now and not let it get worst, I just don't know them.

Also, I don't want to take meds that are painkillers that just numb the pain. I'm looking for a fix.

Thanks for your time!

Reply Flag this Discussion

5 Replies:

  • Are you taking ant NSAIDS for pain relief?There are both otc ones and prescription ones.
    richard wayne2b 1232 Replies
    • December 30, 2008
    • 03:28 PM
    • 0
    Flag this Response
  • Uhm. I take no meds at all right now. The pain is on and off. Some days it hurts. Some days it doesn't hurt....
    jcb815 1 Replies
    • December 31, 2008
    • 08:29 AM
    • 0
    Flag this Response
  • Why don't you take ibuprofen 800mg three times daily to see what happens.That's the maximum dosage you should take.Don't take it if you've had an ulcer or other gastrointestinal blreeding or if you've got kidney disease.
    richard wayne2b 1232 Replies
    • December 31, 2008
    • 01:21 PM
    • 0
    Flag this Response
  • I'm afraid that there is no ''fix.''You can start a PT program and start swimming.Sometimes they can make a custom orthosis for you.I'm really sorry that you had Legg_Calve-Perthes Disease.
    richard wayne2b 1232 Replies
    • December 31, 2008
    • 01:37 PM
    • 0
    Flag this Response
  • I'll start off with the history and then get into the current problems and worries I'm having so please just bare with me. Story:I'm currently a 17 year old in my senior year of high school. When I was 4 years old I was diagnosed with Legg Cathe Perthes. I kept complaining about a pain in my knee. Everytime we went to see a doctor they said it was growing pains. When they did x-rays, it was of my knee. The pain continued to the point that I couldn't sleep. I just stayed up and cried because it hurt so bad. Finally one doctor did x-rays of my whole leg and found the very degenerated ball in my left hip. My parents had the option between surgery or having a removable cast for a very very long time. They picked the surgery. All I know about the surgery is that there was 2 months traction before the surgery. Then for the surgery they cut my femur and bent it and used 3 large screws to hold it in place. I woke up in a body cast which I had to wear for about 3 months I believe. Then when I was 6 years old (2 years after first surgery), I had another surgery to take out the screws. After all the recovery, everything went back to normal, other than the fact that I cannot sit indian style. It's impossible for my left hip to move that way. I grew up as a normal kid after the surgery and recovery but every once in a while my left hip would start to "act up." I never thought anything of it until now. Now:Well now, at 17 years old, my hip has started to bother me a bit more than usual. It hurts occasionally. It's always felt weaker than the other one but I figured that it's just like a broken bone and people say that once you break a bone it always hurts occasionally. I can't stand for excessive amounts of time. Every so often (about every 6 months or so) it will give out on me for some reason and I'll fall but I recover immediately after. My doctor says that I will have to have hip replacement eventually (One of my worst nightmares). Some doctors say that it could be in my late 20's or sooner and some say it could be when I'm in my 50's. I feel like it won't be so long though and it's starting to make me worry. My Question:Is there anything I can do to help the bone in my hip? Any medication or a workout or anything? I just want to know how to get rid of the pain and make it so that I will NOT need a hip replacemein nt my 20's or 30's or even 40's!I know that it's something that I will have to go through eventually but I also know that there are many ways to help keep it healthy now and not let it get worst, I just don't know them. Also, I don't want to take meds that are painkillers that just numb the pain. I'm looking for a fix. Thanks for your time!I have had Perthes Disease since I was 6. I have been put in a full foot to hip cast with the bar seperating the two casts. After That I was in crutches to get used to being out of the cast. and after that I had to wear a brace to increase my stability and ability to stay in motion. When I went back to Scottish Right. I was told a series of excercises to help open up the hip joint and relieve pain. One is the butterfly excercise. Sit down. Put the bottom of your shoes together and push down on your knee caps to the point where there is strain and hold it for 30 seconds. Do not over do it though. Another one is the kick excercise. Just put one hand on the wall and reach as far back as you can with your leg and kick forward and do that 20 times. If pain persists Than talk to your doctor about physical therapy to strengthen up the hip joint.
    Anonymous 42789 Replies
    • January 20, 2009
    • 05:50 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.