My problems began in the late '80's with general achiness in the Fall and Spring. In 1994 about 3 months after my son was born, I developed chronic diarrhea. I was told after the flex. sig. that "it's not diseased, but acts diseased." I was on Elavil (Amytriptyline) for about ll years, as it took that long to control the bowel spasms! In 2003 I developed severe leg spasms/cramping. This got better, but some numbness remained especially in the toe area, and was worse in cool, damp weather. I saw a neurologist, had many blood tests for thyroid, Bl2, folic acid deficiency, lupus, rheumatoid arthritis, lyme disease, fibromyalgia, etc. All were normal (and were repeated this year-still normal.) Also had an MRI of the brain and spine which also turned out OK. (Also repeated this year-still OK.) A test measuring muscle strength (is it an EEG?) was also OK. The neurologist was 'stumped.' He said he was sure that at first I had MS or ALS. He said maybe I have CP, and may have always had it mildly. (I'm 49!) He believes the diarrhea and neurological symptoms are related. Since 2003 I get very cold feet in the Winter, though the Dr. says my circulation is good. I also get numbness in the toes. (I live in MN) In Feb. of this year things got really bad. My legs got extremely spastic, feet got ice cold, horrible toe/feet/leg spasms, some weakness in the feet/legs and also a bit in my arms/hands, though not too noticeable. I was also very stiff and achy "all over". I've had a bit of numbness in my face and arm, but now that's gone. Still get numb especially in my right foot. After things got bad again, the horrible diarrhea came back, then shortly after, vaginal bleeding. The bleeding stopped (could it be age-related?) and going back on Elavil, the digestion is better. With warmer weather (tho it's only in the '40's here) my legs are somewhat better, though I haven't been 'out' except for a ride to the doctor. Worst of all are my feet-get extremely stiff, the more I walk. If I walk too much, they cramp. My toes have never been flexible, so they get 'touchy' too. I have a very high foot arch, and have specially-made orthotics.My doctor wants me to see a physical therapist. He said he could put me on Baclofen, but is concerned my muscles could get weaker, so I should ask the PT's opinion on this. I'd rather not be on any medication. Does anyone know what would help? The spasticity/cramping is the worst-very painful! I'm hoping to find a natural remedy for this--if there is one! Thanks for any suggestions, and God bless!Reply Follow This Thread Stop Following This Thread Flag this Discussion
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