Discussions By Condition: I cannot get a diagnosis.

left side pain-shoulder-arm weak,heavy-tremor-hip pain-toes spasms -all left side-

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • December 10, 2006
  • 10:02 AM

A year ago, my sister started having pain in her left shoulder-then a tremor began in left hand-then arm became heavy(now can't put make-up on or iron or even cut cucumber)- then 2 toes are cramping and raised at the knuckle like hammer toe-face is now drawing and speech seems to be slurred at times. Several MRIs are negative-Doctors seem to dismiss her when nothing shows up on tests. All symptoms are on the left side.

Reply Flag this Discussion

2 Replies:

  • I had the same bag of problems and was wrongly diagnosed with early onset Parkinson's. Luckily I declined to start on any meds, knowing I would have many years of them ahead. After several years, I was in need of constant help at home and had to quit my job. I finally went to USC biokinetics department for tests. They concluded no Parkinson's, but some king of nerve damage and distress. The educated guess was spinal disease. I was blown away. My regular physician began at the begining, with a back xray. She and other doctors in office did not understand what they were seeing. An Mri ruled out the nastys like tumors or cancer, but revealed some disc desease, but not to explain symptoms.Diagnosis came after 2 more years of me insisting someone figure it out.I have Spinal Bifida Occulta. 6% of population have a spinal deformity and do not ever know it unless symptoms appear. After so many years of body compensating for poorly aligned spine and deseased discs, things begin to fall apart, stop working and hurt.I hope your sister finds her cause and gets better.
    Anonymous 42789 Replies
    • January 14, 2007
    • 04:36 AM
    • 0
    Flag this Response
  • Thank you for the useful informations, my husband has a similar situation.I had the same bag of problems and was wrongly diagnosed with early onset Parkinson's. Luckily I declined to start on any meds, knowing I would have many years of them ahead. After several years, I was in need of constant help at home and had to quit my job. I finally went to USC biokinetics department for tests. They concluded no Parkinson's, but some king of nerve damage and distress. The educated guess was spinal disease. I was blown away. My regular physician began at the begining, with a back xray. She and other doctors in office did not understand what they were seeing. An Mri ruled out the nastys like tumors or cancer, but revealed some disc desease, but not to explain symptoms.Diagnosis came after 2 more years of me insisting someone figure it out.I have Spinal Bifida Occulta. 6% of population have a spinal deformity and do not ever know it unless symptoms appear. After so many years of body compensating for poorly aligned spine and deseased discs, things begin to fall apart, stop working and hurt.I hope your sister finds her cause and gets better.
    Anonymous 42789 Replies
    • January 21, 2007
    • 02:41 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.