Discussions By Condition: I cannot get a diagnosis.

Kristie Tunick needs your help!! Stiff persons syndrome

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: gr8tful
  • November 6, 2010
  • 09:35 PM

Kristie Tunick has been suffering from severe body paralysis and intense pain for the past 3 years. She is in need of resources and doctors to help diagnose her so she can get her life back.

Please see her story at

http://abcnews.go.com/2020/sickness-health-couple-sticks/story?id=8250804

http://www.casttv.com/ext/3jf6ntk

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4 Replies:

  • Kristie Tunick has been suffering from severe body paralysis and intense pain for the past 3 years. She is in need of resources and doctors to help diagnose her so she can get her life back. Please see her story at http://abcnews.go.com/2020/sickness-health-couple-sticks/story?id=8250804 http://www.casttv.com/ext/3jf6ntkIf it isn't stiff-man syndrome, the only other real possibility would be a Multiple Sclerosis without visible lesions, which makes up about 5 percent of cases of MS.Their isn't a whole lot of information on the actual article.Edit: I just watched this second link, the video. Are you kidding? Her mother has MS... why the ***l didn't anyone think of this?
    keanhe 86 Replies
    • November 7, 2010
    • 02:17 AM
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  • I don't know if she has Multiple Sclerosis.However, some people with Multiple Sclerosis have overcome their symptoms, and gone on to live normal lives. A simplistic theoretical explanation goes like this:People with Multiple Sclerosis have a food allergy to a fat-protein combination. Every time they eat foods containing this fat-protein combination they get an allergic reaction to it - the immune system destroys the fat-protein combination. Some people may know they food allergies. Others may not.When there is some weakness that allows the immune system to breach the blood - brain barrier, the immune system discovers the same fat-protein combination in the brain, and also destroys it.So the immune system not only destroys the myelin sheath, but also the nutrition the body would normally use to repair it. So the body is unable to repair it.People who have overcome the symptoms of Multiple Sclerosis, have:1. Avoided all animal fats. (Including milk)2. Avoided all foods to which they have allergies.This normally means avoiding all manufactured and processed foods, and eating only natural foods.3. Supplemented their diet with plant oils. These are chemically different, and don't cause an allergic reaction, but they provide the nutrition the body can use to repair itself.This requires a very strict diet.The condition of people with Multiple Sclerosis normally tends to deteriorate or improve very slowly.So this very strict diet needs to be followed all of their life. It may be quite a long time before seeing an improvement.The less severe the condition of the person when they begin this diet, the more likely they will have a full recovery. I know a person who was unable to walk at her worst, but had a full recovery.People in the very severe stages, may not have a full recovery.
    Anonymous 42789 Replies
    • November 7, 2010
    • 04:13 AM
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  • My mother (recently passed) had MS for many years, and stiffness was her most prominent symptom. She used baclofen for the stiffness. I would say that even if they do not find lesions, baclofen would be a good treatment to try. Also, back when she was diagnosed, they used a spinal tap to diagnose. Perhaps the "old fashioned" way could secure a diagnosis for her...
    Anonymous 42789 Replies
    • November 8, 2010
    • 02:03 AM
    • 0
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  • Thankyou for your responses. As it turns out, Kristie has not been truthful with her so-called 'illness'. This was a scam for her to get money from kind hearted people. I have never met Kristie and apologize for posting this... http://www.youtube.com/watch?v=XO7z1Xzrzho
    gr8tful 175 Replies
    • December 26, 2010
    • 09:45 AM
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