Discussions By Condition: I cannot get a diagnosis.

Kidney stone passed, urethra pain persists

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: Anonymous
  • December 14, 2006
  • 08:49 PM

I passed a 5mm stone on August 31. The lab said it was made of protein and didn't know what would cause that. I have tested repeatedly for infections (none present) had an IVP, xrays, 24 hour urine collection and a cystoscopy and they can't find any more stones or anything out of the ordinary. I see little specks (like grains of sand) in my urine regularly and periodically have blood in my urine for a couple days at a time. I still have flank/abdominal pain and urethra pain (it feels like there are shards of glass stuck in there) and haven't found a cause or a cure.
Any advice would be appreciated! I am frustrated at being in pain all the time and am tired of it interfering with my life. Thank you in advance for your help!

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19 Replies:

  • Just wanted to check in and see if anyone had any input on the situation above. Thanks! :)
    Anonymous 42789 Replies
    • January 24, 2007
    • 09:28 PM
    • 0
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  • hii find lef.org a really good place to search for health issues. here's the kidney protocol.http://www.lef.org/protocols/prtcl-065.shtmlgood luck!
    Anonymous 42789 Replies
    • January 25, 2007
    • 07:53 PM
    • 0
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  • Hi, wouldn't like to say I am a professional kidney stone expert, BUT I have passed 9 in the last 8 years. I do have kidney disease also. First of all, stones do feel like ******g glass to put it lightly lol. Have you seen a urologist? Sorry I ahve an emergency here at home will write again soon
    miserableMOE 52 Replies
    • January 25, 2007
    • 08:18 PM
    • 0
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  • ok sorry, where was I at, Have you seen a urologist or nephrologist? How old are you and male or female? Any family history of stones/ kidney disease? The pain you feel is real. I know that sounds weird but there are Dr's out there that will not believe you. I DO> I am 34 and have had kidney disease my whole life. Many many infections, blood in urine, stones, and kidney failure. Do you actually see the blood? Answer some of my ?'s and then I will check in and let you know what else I can come up sith for you. take care and hang in there
    miserableMOE 52 Replies
    • January 25, 2007
    • 08:47 PM
    • 0
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  • Hello, as a fellow kidney stone passer (lost count after 200) I have passed many stones over from age 21 (first one on my 21st birthday) to age 32. I might have passed one since but not for sure. Yes I can tell you that with many of my stones sometimes I didnt have pain until after I passed them. I think this has to do with how sharp they are. I was a lab technician before I was a nurse and I used to look at my urine under the microscope quite often. I had calcium oxalate stones and let me tell you, they had some pretty sharp points on them . Seems like I had flank, ureter and urethra pain all the time in those days. I finally quit getting IVPs and x-rays done because half the time they would show up anyway and then I would pass them. My advice is to keep an eye on your temp, and watch for cloudy urine, to make sure your not getting an infection, and maybe take Motrin or Tylenol unless you have a reason you cant and hopefully that feeling will go away soon. Good luck
    fluffyv 38 Replies
    • February 19, 2007
    • 03:05 AM
    • 0
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  • I also pass stones and have gone through so much because of them. I have passed hundreds. I pass them on a regular basis. they form so fast that i don't even have but a month or two break from stones after any stone removal procedure ive had. So i had to put my 2 cents in if it can help you in any way. Did you know that there are kidney stones that possibly wont be detected by xray/ctscan/mri/ivp etc. I have passed stones in the past that my urologist was unable to see on any visual test result. The first time he even had the nerve to suggest i was imagining the pain or that i was going through early menopause. A week later i took him that imaginary pain! He has never doubted me since. He did tell me that it is possible to not detect all stones because of their density, size, location etc. if youre seeing sandy particles it could very well be more stone. They can break apart on their way out and end up being passed that easily. Unfortunately still painful and cause for concern. I recently had a 2nd opinion on my stone issues and i was happy that i did because that urologist brought a fresh perspective and different options that the original uro didnt even mention. So far i have been pain/blockage free for 2 months! Longer than my original urologist ever relieved my issues for. Not that i think he is a bad doctor i just think that some offices offer different options that may work better in a particular situation. good luck. I hope your pain is resolved soon.
    Anonymous 42789 Replies Flag this Response
  • Just want to add and cant stress enough, DRINK, DRINK, DRINK. Keep those kidneys flushed.
    Anonymous 42789 Replies Flag this Response
  • I passed a 5mm stone on August 31. The lab said it was made of protein and didn't know what would cause that. I have tested repeatedly for infections (none present) had an IVP, xrays, 24 hour urine collection and a cystoscopy and they can't find any more stones or anything out of the ordinary. I see little specks (like grains of sand) in my urine regularly and periodically have blood in my urine for a couple days at a time. I still have flank/abdominal pain and urethra pain (it feels like there are shards of glass stuck in there) and haven't found a cause or a cure.Any advice would be appreciated! I am frustrated at being in pain all the time and am tired of it interfering with my life. Thank you in advance for your help!Hi, I passed a kidney stone in January after 6 months of pain, and mis diagnosis !!!! It was 7mm made of calcium, and like yourself i have had all the test and they have come back neg!! Also I have these little specks in my urine , but im not sure what they are, does anybody out there know?I have another 7mm stone in my other kidney , which they are leaving !!!!!Im a 36 yr old female, and dont know any one else that has had kidney stone.
    Anonymous 42789 Replies Flag this Response
  • Just want to add and cant stress enough, DRINK, DRINK, DRINK. Keep those kidneys flushed.Please precise your thougths !When you suffer from kidney stones in the ureter it is not a good thing to eat a lot when you fell that your urine flow is blocked because it will increase the pain and irritation.Of course drinking water is a good advice but if you feel that your kidney stone is in the ureter and block the urine flow do not drink any more or you will provoke irritations and pains !As a kidney stones warrior the best advices i can give you is to avoid a too rich diet (avoid alt, sugar, dairy products...)Also if your stone is too large don't dream it will not pass if you don't treat it ! So you must do something either by following a natural cure to dissolve the stones or by consulting a specialist for a lithotrity.keep the faith
    Anonymous 42789 Replies Flag this Response
  • Go to an organic store and pick up a herb in capsule form called Chanca Piedra. (aka stone breaker) I have been taking it for 2 weeks to break up a 1 cm gallstone. My pain has gone from extreme to very slight gallbladder pain, so I know it is working. I'll be on Chanca Piedra for the next two weeks for my gallstone, however, I had continuous flank pain which was very uncomfortable. Yesterday after a long day of walking and standing, I got home and passed several, what I believe to be, stones or bits of stone. My back pain is gone. If you are prone to stones, gallstone or kidney, this herb is a life saver. It works by breaking up the stones, making passing of stones painless. It is renowned worldwide, has no side effects at all and works within days. Apparently it dissolves 98% of kidney stones. Many people take 1 a day, after passing stones, just for maintenance. Give it a try. If your doctor has you taking all sorts of meds for your kidney stones, talk to him about giving Chanca Piedra a try, you’ve got nothing to lose except those stones. Pardon the pun.
    Anonymous 42789 Replies
    • September 13, 2008
    • 02:58 PM
    • 0
    Flag this Response
  • You might try switching vitamins. I'm not sure how they produce the calcium in Centrum but once I switched, my kidney stones and the like were gone. That was 15 years ago.
    Anonymous 42789 Replies
    • September 18, 2008
    • 06:20 PM
    • 0
    Flag this Response
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  • I've been trying to find answers to the same question you have. The only thing I found similar was, that there may be scar tissue or ahdesions in the ureter or kidney as a result of the kidney stone. This scar tissue may be causing discomfort.
    Anonymous 42789 Replies Flag this Response
  • I have had kidney stones since I was 19 (too many to count). I have another one right now and am trying to pass it. I have been drinking lots of water and hoping that everytime I go to the bathroom I will pass it - no luck yet. I am normally on Urocit for my kidney stones, but I was pregnant a year ago and I couldn't be on it and I haven't had any until now so I am not back on it yet. I will be making an appointment after I pass this one to be put back on Urocit. I have also found that a hot bath helps with the pain, and try to hold your unrine so you have all that pressure to hopefully get it out. Good Luck everyone.
    Anonymous 42789 Replies
    • September 28, 2010
    • 03:46 PM
    • 0
    Flag this Response
  • I suffered from urethra pain for years. Through trial and error, I just realized my pain was caused from sugars and desserts. I have had a kidney stone in the past as well, not sure if they are related or not. Once I realized my pain was caused from sugar, I was tested for diabetes and kidney function, both came back fine. I have been off sugar, chocolate, and high fructose corn syrup for 2 months now with no symptoms! Natural fruit sugars and honey seem to be fine for me. My symptoms would start about 45 minutes after eating desserts and would last up to 3 hours. The pain felt like an irritation at best to excruciating pain at its worst. I feel much better and have lost weight.
    Anonymous 42789 Replies
    • October 4, 2010
    • 05:41 AM
    • 0
    Flag this Response
  • Try over the counter bladder infection pills AZO for the Urethra discomfort. I have had a Kidney stone or two and it seems to relieve the after pain nicely.
    Anonymous 42789 Replies
    • November 18, 2010
    • 02:10 AM
    • 0
    Flag this Response
  • I also pass stones and have gone through so much because of them. I have passed hundreds. I pass them on a regular basis. they form so fast that i don't even have but a month or two break from stones after any stone removal procedure ive had. So i had to put my 2 cents in if it can help you in any way. Did you know that there are kidney stones that possibly wont be detected by xray/ctscan/mri/ivp etc. I have passed stones in the past that my urologist was unable to see on any visual test result. The first time he even had the nerve to suggest i was imagining the pain or that i was going through early menopause. A week later i took him that imaginary pain! He has never doubted me since. He did tell me that it is possible to not detect all stones because of their density, size, location etc. if youre seeing sandy particles it could very well be more stone. They can break apart on their way out and end up being passed that easily. Unfortunately still painful and cause for concern. I recently had a 2nd opinion on my stone issues and i was happy that i did because that urologist brought a fresh perspective and different options that the original uro didnt even mention. So far i have been pain/blockage free for 2 months! Longer than my original urologist ever relieved my issues for. Not that i think he is a bad doctor i just think that some offices offer different options that may work better in a particular situation. good luck. I hope your pain is resolved soon.I feel so blessed to have found this site... I thought I had it bad... I have had over 40 stones. The first one was removed via open kidney surgery (the scar going from belly button to back bone), of course this was over 30 years ago before lipotripsy. I have had numerous lipotripsies and baskets over the years. I just passed a 5 mm yesterday, the last stone was in Feburary which was blown up, that one was 7.4 mm. I am a woman, 65. There is no history of kidneystones in my family, however, my daughter had one a couple years ago. I went to a Nephrologist this past March and was diagnosed with stage 2 Kidney disease. So my stones are getting bigger faster and it is scary. I would appreciate any advise and encouragement from any of you... Happygma
    happygma 3 Replies
    • November 29, 2010
    • 02:47 PM
    • 0
    Flag this Response
  • I passed a 5mm stone on August 31. The lab said it was made of protein and didn't know what would cause that. I have tested repeatedly for infections (none present) had an IVP, xrays, 24 hour urine collection and a cystoscopy and they can't find any more stones or anything out of the ordinary. I see little specks (like grains of sand) in my urine regularly and periodically have blood in my urine for a couple days at a time. I still have flank/abdominal pain and urethra pain (it feels like there are shards of glass stuck in there) and haven't found a cause or a cure.Any advice would be appreciated! I am frustrated at being in pain all the time and am tired of it interfering with my life. Thank you in advance for your help!I am having the same problem. I am sure I passed the stone which was found two months ago. A few days ago the pain when I pee came back. It feels like glass and I still hurt after I go to the bathroom. Today nothing is helping and i'm about to try the ER again. My pain is also affected my life and disrupted my family life. Husband is getting aggravated with it all. This is my first time with a kidney stone. Enough is enough.
    Anonymous 42789 Replies Flag this Response
  • As I posted previously, I have had over 40 kidneystones in my life. Last year I was introducted to a Nephrologist who is a kidney specialist. He did every blood test out there and several 24 hr urine catches. He put me on potassium/citrate and a light diaretic. But, I have passed a 5mm stone in February and several small ones since. In November they "blew up" a 7mm stone. So, the saga continues. All that has helped is when I feel the stone I begin taking Flomax (I keep it on hand, Dr. prescribed) , that relaxes the urethia and helps me pass the stone quicker and with less pain. I have tried every diet, lost weight, and tried everything else. They just keep coming, faster than ever. I wish there were some magic pill or method, but all I can say is drink at least 2 litters of water a day and learn to live with it. My heart goes out to all of you... you are not alone. I have noticed people on here that have passed 100's of them. Thank you for your continued imput. Maybe one day they can come up with a REAL answer. Love to all
    happygma 3 Replies Flag this Response
  • Hi, I passed a kidney stone in January after 6 months of pain, and mis diagnosis !!!! It was 7mm made of calcium, and like yourself i have had all the test and they have come back neg!! Also I have these little specks in my urine , but im not sure what they are, does anybody out there know? I have another 7mm stone in my other kidney , which they are leaving !!!!! Im a 36 yr old female, and dont know any one else that has had kidney stone. I am a 66 yr old female, I have had over 40 kidneystones, the first one at 30, they did major surgery (cutting me frim belly button to backbone), opened up kidney and removed the stone that was obstructing output. since then I have had well over 40 stones, as I have gotten older, they are increasing. I have passed 4 since January. Over the years I have had them blsasted, basketed and passed them. I have been seeing a Nephrologist and a Urologist and done everything they have suggested. Taking Potassim/choride and a water pill. They are forming in less than a month to the over 5mm. I just passed a 5.5mm stone Wednesday, the night before I was go into surgery to have it basketed out. But, they did a ultra sound and there are stones in both kidneys, one is over 6mm. I have flank pain still and I am getting very discouraged. I wouldn't leave the stone in there... it can damage your kidney. I have stage 3 kidney disease due to the stones causing havoc in my kidneys. If anyone has any ideas... I am game. Thank you...
    happygma 3 Replies Flag this Response
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