Discussions By Condition: I cannot get a diagnosis.

Kept awake by painful inflammation in joints and painful coldness in extremities

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: AndrewCottrell
  • October 2, 2009
  • 00:45 AM

Male, 33. Kept awake by painful inflammation in joints and by coldness, painfully cold in extremities. Inflammation worst in head and right big toe.

I grew up without much access to medical care. This condition set in gradually over the course of the last more-than-20 years. Diagnosis is overdue.

The earliest symptoms I can recall were low body temperature, nonspecific pain, tinnitus. These were present at least as early as 7 years old.

Nearly-ideal diet greatly alleviates symptoms. Sunlight also helps despite evident photophobia.

I've gained reliable benefit so far from Teitelbaum's CFS protocol, from oriental-type diet targetted on "kidney yang", from light but long excercise, from stress reduction of course, and also from encounters with nettles and beestings. (The spot where a hornet stung me a decade ago is still unaffected by the symptoms I'm describing. Tangent, but entertaining.)

Resembles CFS/ME, Rheumatoid Arthritis with no visible deformity (but no assessment of bone loss has ever been done with my x-rays), or Ankylosing Spondylitis (with no ankylosis). Way beyond material for simplistic self-diagnosis, but no way to pay my primary care physician or earn any significant wage so here ya all have another entertaining symptomatology :D

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