Discussions By Condition: I cannot get a diagnosis.

Just let me die

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • September 6, 2008
  • 11:29 AM

I am so sick of going to the doctors and searching the internet to find out what is wrong with me that I just wish I would die so that this would be all over. I have been diagnosed with gastroparesis and aclashia after being told that I was a hypochondriac for quite some time. The doctors don't think that they can fix it because fixing the achlasia will make the gastroparesis worse and whatever the ***l a severe congenetial gastro dysmotility disorder is worse. I feel like I have had to move heaven and earth to get the doctors to find this much and now they can't even fix it. I have gotten no where and I know that there is more to this because I have skin blisters that I get randomly that are negative for bacteria and are not an std. One of my eyelids closes on occasion, my fingers and toes are numb, my neck has been in severe pain for years and I was told that it doesn't turn completely to the left. Sometimes I almost drown when a little of my vomit gets into my lungs do anything for me unless I find time between work, school and homework to show up at thier office and hassle them. Frankly, life sucks knowing that I am just going to continue downhill. I am sick of this. I swear once a doctor doesn't know what to do they ignore me because they are afraid of looking dumb. I just don't want to keep wasting away. Where is docor death? Is he still in jail? This sucks, if I am going to die anyways and it is obvious to me I eventually will. Why do I have to suffer up until the last breath? I don't have any dependants, I should just be able to go.

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5 Replies:

  • This web site is a great place for people who's doctors don't believe them, because were here to help each other find answers. Could you list the tests that you've had done on the blisters?
    qwertyuiop123 453 Replies
    • September 8, 2008
    • 11:19 PM
    • 0
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  • I don't personally have any medical answers for you, but I just wanted to say, my heart goes out to you. I know what chronic pain is like, but with yours being so widespread, it must be very hard. Please keep strong.
    firefly646 8 Replies
    • September 9, 2008
    • 01:13 AM
    • 0
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  • Possibly celiac diease: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1263 Replies
    • September 9, 2008
    • 04:26 PM
    • 0
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  • I have hyper aged skin and stretch marks from sitting. I probably have some form of Elher's danlos or Marfan's that only affects the skin and tanned a lot when I was young and you should never tan if you have a connective tissue disorder. I know how you are feeling. I want to be running around having fun not laying down to avoid my skin from ripping. Since your two conditions are linked (peristalsis), you might be able to track down a gene. You never know how fast gene therapy could advance. That's how I deal with my condition. Find a gene, find a cure.
    niceguy 22 Replies
    • September 9, 2008
    • 09:53 PM
    • 0
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  • if I am going to die anyways and it is obvious to me I eventually will. Why do I have to suffer up until the last breath? I don't have any dependants, I should just be able to go. sorry.. im wondering why you are saying you are going to die? Are you progressively loosing weight due to not being able to swallow? those blisters do sound strange.. i hope you find an answer.
    taniaaust1 2267 Replies
    • September 10, 2008
    • 10:39 AM
    • 0
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