Discussions By Condition: I cannot get a diagnosis.

Joint pains

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Barney17
  • September 20, 2009
  • 08:19 PM

My child has been having continuous joint pains in all the major joints for about 10 years. Initially the doctors thought it was growing pain because only the knees were affected. Now the pain has spread to all her major joints. She losing the use of her hands because she finds it difficult to write in school. We have done every kind of blood tests, X-rays, MRI, food allergy test and everything has come negative. The pain gets worse during her period and during the cold months especially in the mornings. There are times when she cannot use her hands or legs. She sometimes just falls down when the joints give way. She has been given naprosen to help relief the pain but it does very little for her. To make matters worse now she is experiencing some anxiety (I am getting her counseling for this). Lyme and lupus have been ruled out (she did not do the BLOT test) only the Elisa. Initially the doctors thought it was arthritis but that too is now ruled out. She is my only child and it pains my heart to see her losing her mobility day by day. Any help that I can get will be greatly appreciated.

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4 Replies:

  • Unfortunately, Lyme cannot be ruled out by a negative Lyme test - all of Lymenet will tell you this. She could have Lyme, even though her blood test showed negative. Here is Lymenet... Lymenet:http://flash.lymenet.org/ubb/ultimatebb.php
    kermworm 81 Replies
    • September 21, 2009
    • 05:35 PM
    • 0
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  • I found this page maybe something on here would help b/c it has a few things other than the more obvious ones you mentioned. Goodluck I really hope you figure this one out, I don't like that children suffer so.http://www.chiroweb.com/mpacms/dc/article.php?id=38256
    kesaiserris 35 Replies
    • September 21, 2009
    • 06:33 PM
    • 0
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  • have you considered fibromyalgia? it can cause severe joint pain as you mentioned, also i have heard it is made worse by the cold. if you google it, many excellent sites appear it is worth looking into and easy to test for. good luck to your daughter and you as well!
    Anonymous 42789 Replies
    • September 22, 2009
    • 04:08 AM
    • 0
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  • My child has been having continuous joint pains in all the major joints for about 10 years. Initially the doctors thought it was growing pain because only the knees were affected. Now the pain has spread to all her major joints. She losing the use of her hands because she finds it difficult to write in school. We have done every kind of blood tests, X-rays, MRI, food allergy test and everything has come negative. The pain gets worse during her period and during the cold months especially in the mornings. There are times when she cannot use her hands or legs. She sometimes just falls down when the joints give way. She has been given naprosen to help relief the pain but it does very little for her. To make matters worse now she is experiencing some anxiety (I am getting her counseling for this). Lyme and lupus have been ruled out (she did not do the BLOT test) only the Elisa. Initially the doctors thought it was arthritis but that too is now ruled out. She is my only child and it pains my heart to see her losing her mobility day by day. Any help that I can get will be greatly appreciated.has she been tested for Still's disease?
    Marriah1020 2 Replies
    • October 30, 2009
    • 02:05 AM
    • 0
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