Discussions By Condition: I cannot get a diagnosis.

Joint pain, rash, reoccuring fever, fatigue, headaches (long post)

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: Preschoolmom
  • January 8, 2009
  • 06:20 AM

First, I am a 30 yr old female, my height is 5’3”, I weigh 126 lbs, and I am a fairly active person. I don’t run marathons; however, I am a pre-school teacher for eleven 3-4 yr olds. Under normal circumstances I am usually jumping around the room while singing songs, playing duck-duck goose, and we even do 15 minutes of daily stretches and breathing. I am also the single mom of a two yr old, so I do plenty of chasing around the house as well. I am not on any medications and I rarely take any over the counter medication. I have eaten healthier in the last year or so than I have ever before in my life.
I woke up from a brief nap on Dec 25th and my right wrist hurt as though it could have been out of place. Within an hour my left ankle was hurting as well. A few hours later both my ankles, both wrists, and my right shoulder were hurting. The next day I woke up with only minor pain in my right shoulder, both ankles, right wrist, and both elbows. As the day went on the pain level increased and by that evening I could barely hold my purse. By the 27th, the pain had moved into my knees as well, but my right shoulder felt fine. The pain seems to move from joint to joint, it does not feel like a sore muscle, and there is no apparent swelling. It almost feels as though the joint has been over-extended. If I lay still and all my joints are well supported the pain goes away; however, even standing and my arm dangling from my shoulder causes pain. I have tried taking 800 milligrams of ibuprofen and it does not seem to affect the level of pain at all, which I find unusual.
I went to my regular doctor on the 29th and upon exam; he noticed a very fine rash on my back, stomach, and thighs. This rash looks like light red blotches and has a feel like fine sandpaper. This rash was not something that I had noticed in the days before, and did not seem to itch. The nurse stated that I did not have a fever, and the doctor ordered quite a few blood tests. He also went ahead and prescribed me “Indomethacin”. I took the Indomethacin that evening at my parents while having dinner, and fell asleep on their couch within 45 minutes. My mom tried to wake me up a couple of times, but she said I was just “too out of it”. I woke up the next morning, and my pain was gone. However, I could not continue to take this medicine because I cannot be “knocked out” when caring for a 2 yr old. I called the doctor the next day and he told me to try 400 milligrams of naproxen until my lab results came back.
The naproxen did not seem to help either as the pain in my knees came back later that night. I could not fully extend my knees and had to walk like an 80 yr old who normally uses a wheelchair. On the 31st I woke up and my knees were slightly sore along with one of my ankles, but the pain was gone by that afternoon. However, it was replaced by a headache and shooting pains in my head. I took my temperature and noticed that I had a low grade fever 99.9F. My joints were still somewhat stiff, but not unusable.
On the 1st, my joints were still slightly stiff, but my shin bones ached, and I'm now feeling tired, weak, and rundown. I took my temperature that morning and it was normal; however, by that evening the shooting pains in my head had returned along with my low grade fever. I have had a headache with fever before, but this does not feel the same. These symptoms continued until about the 3rd when I also started feeling some muscle stiffness mostly in my shoulder blades and lower neck region along with a feeling of heaviness and chest pressure. The low grade fever seems to come and go and is usually accompanied by strong sharp pains in my head.
On the 5th my doctor finally got my test results back he had ran the following labs: CBC, CMP, SED rate, Lyme titer, RA, TSH, uric acid(DH). He said that everything looked quite normal that the only concern was that my iron and HDL (good cholesterol) were very slightly under what they should be. Since my rash is still present, along with the low grade fever, and my various other symptoms he is referring me to a Rheumatologist. He also prescribed generic “Mobic”. The mobic seemed to help, but the rash spread to my arms overnight and I am not sure if this is a side effect of the drug. I looked up mobic on the internet and noticed that its less serious side effects are what I currently have as symptoms. So if I keep taking it how do I to know if I am getting better or just having side effects??? So for now I have stopped taking it, and hope to see the rheumatologist soon.
Upon thinking back, some other things that I have noticed recently about a month ago I began having dandruff which I have never had before. The past few showers I have lost enough hair to stop the shower from draining correctly. It is not noticeable to me when looking in the mirror, and I do not know if it is related.
It’s now the 8th, and the 14th day of this stuff. I need my life back, and my daughter needs her mom back to normal! If you have any suggestions or ideas I would appreciate them.

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18 Replies:

  • post back if you go and see the rhemy doc and he's at a loss too or you develop more symptoms... im currently thinking that you may find he's going to be at a loss too. it kind of sounds virally. (or i've heard of lyme people getting similar weird pains)
    taniaaust1 2267 Replies
    • January 9, 2009
    • 01:54 PM
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  • It not bacterial (Lyme etc.), or a virus, ask them to look for celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm The other possibilities in a young person are called spondylarthropathies. You can read more here: http://my.clevelandclinic.org/disorders/spondyloarthropathy/rheumatology_overview.aspx
    aquila 1263 Replies
    • January 9, 2009
    • 05:21 PM
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  • preschoolmom,I am new here but I had to post in response to you. Have any of the children at your school had symptoms of mild cold/flu followed by a rash? When my nightmare started, my daughter was in daycare and I think it was fifth disease that presented like this. Did you ever have any strange stomach issues? We dealt with a few different viruses that were diagnosed only after the main symptoms and contagious period were gone and the rash appeared. One of the older teachers said she was sure she had contracted one of the viruses the kids had (which was said adults don't get) and her symptoms were very similar to yours. She quit working there after 9+ years. She was very concerned about me and my symptoms which were similar but .....I had joint pain which moved also. I remember my wrists hurting and like a more topical pain such as bruising.I had rushed my daughter around this time to the doctor with an undiagnosed rash which two doctors looked at and made us come through a back door as she was coverred with it. It only lasted 24 hours and then lightened and went away. She also got the 'slapped cheek' rash from another virus which I think was the fifths disease. My blood work came back fine also.Hopefully for you, it will go away and not be reoccurring. I don't know if any of the above will help but I thought it may be worth mentioning.
    stillhere 14 Replies
    • January 9, 2009
    • 07:25 PM
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  • I have recently had a couple of dizzy spells and the dizziness isn’t occurring when Im moving around. Once I was just standing and talking to a friend and the other I was sitting and teaching. Yesterday morning on my way to work I felt some pain in the left side of my chest. I pulled off the road and the pain subsided after about a minute or so. I decided then to go ahead and drive to the doctor rather than to work. The doctor was not in yet, but the nurse took my blood pressure and it was 102/60. She said that she would notify the doctor when he arrived. The doctor called me shortly after I got to work and told me that he was still in the process of getting me an appointment with a rheumatologist (as there is only 3 within a 100 miles of me); however, he would do everything possible to get in touch with one on Monday and get me an appointment scheduled as soon as possible. He said that if over the weekend my dizzy spells got any worse or more frequent or if I had chest pains again to immediately go to the ER. I am beginning to not like my doctor as much as before. I have gotten some great recommendations for a general doctor at another hospital; however, he is about an hour away.Also, I do not know if this is a related symptom, but I have been having some heart burn. I do not normally have heart burn and the last time I remember having it I was pregnant (nearly 3 yrs ago). The heart burn has been present even when I haven’t eaten anything that would normally give me heart burn (like salad with ranch dressing).Today (01/10/09) and yesterday my I have felt about the same (usually my symptoms have differed from day to day). My fatigue has lifted some, but my knees are still stiff and somewhat painful, my shins still ache (almost like growing pains or slight shin splits), and my feet still hurt. My foot pain is mostly stiffness, my heels are slightly painful, and my arches are sore. I have been on my feet very little lately mostly because of the pain. Even at my job they have taken several measures to try and keep me in a sitting position while teaching. The pain also doesn’t seem to be any better even after sleeping through the night. The rash and low grade fever that I had has appeared to have gone away as of yesterday, and has not returned todayI followed the spondyloarthropathy link and did notice the symptoms of Reactive Arthritis and it mentions heel pain, so I may see about getting the genetic test it mentioned. As for the Celiac disease I haven’t had any real gastrointestinal or digestive issues (other than the recent heart burn).As for fifths disease, I haven’t had the red cheeks at all, and none of the children at school have had any of the symptoms. My supervisor is familiar with 5ths disease, so I asked her about it and she said that she doesn’t believe this is what Ive got. However, she mentioned she was concerned about rheumatic fever, because a month or so ago everyone seemed to get strep throat except for me. She said she was now concerned that maybe I got it and just didn’t have the symptoms of strep which if untreated can lead to rheumatic fever.Upon going over my test results which I will post below, I noticed that I am only 0.01 below testing positive for Lyme disease. So this is still a definite concern for me. I truly appreciate you all taking the time to respond to my post, and I will continue to keep you updated.TEST RESULTS -(I highlighted in blue the items that were barely in the normal range, and highlighted in red the items that are abnormal)Total Cholesterol 111mg/dL –Normal goal of less than 200Triglycerides 120 mg/dL –Normal goal of less than 150HDL 28 mg/dL –Normal goal of 55 or higherVLDL 24 mg/dL –Normal 0-40LDL 59 mg/dL –Normal is less than 100Glucose (Glu) 90 mg/dL –Normal 65 to 99Sodium (Na) 136 mmol/L Normal 136 to 148 Blood Urea Nitrogen (BUN) 12 mg/dL –Normal 5 to 26Creatinine (Creat) 0.69 mg/dL –Normal 0.57 to 1.0BUN/Creatinine Ratio 17 –Normal 10.01 to 20.99Potassium (K) 3.7 mmol/L –Normal 3.5 to 5.5Phosphate (PO4) 2.8 mg/dL –Normal 2.5 to 4.5Chloride (CI) 100 mmol/L –Normal 96 to 109Calcium (CA) 8.9 mg/dL –Normal 8.5 to 10.6Total Protein 6.3 g/dL –Normal 6.0 to 8.5Albumin 3.8 g/dL –Normal 3.5 to 5.5Globulin 2.5 g/dL –Normal 1.5 to 4.5Albumin/Globulin Ratio 1.5 –Normal is 1.11-2.5Alk Phos 71 IU/L –Normal 25 to 150LDH 199 IU/L –Normal 100 to 250AST (SGOT) 14 IU/L –Normal 0 to 40ALT (SGPT) 19 IU/L –Normal 0 to 40GGT 13 IU/L –Normal 0 to 66TBILI 0.2 mg/dL –Normal 0 to 0.5Glom Filt Rate (eGFR) 59.01 mL/min –Normal 59 to 129Lyme Disease (IgG/IgM Ab) 0.9 index –Normal 0 to 0.9Lyme Disease (Ab Quant IgM) 0.9 Index –Normal 0 to 0.9Thyroid Stimulating Hormone (TSH) 1.7 uIU/mL –Normal 0.35 to 5.5White Blood Cells (WBC) 8.8 X 10-3/uL -Normal 4.0 and 10.5Red Blood Cells (RBC) 4.23 x 10-6/ul –Normal 3.8 to 5.1Hemoglobin (HGB) 13.6 g/dL –Normal 11.5 to 15.0Hematocrit (HCT) 39.8 % -Normal 34 to 44Mean Corpuscular Volume (MCV) 94 fl –Normal 80 to 100Mean Corpuscular Hemoglobin (MCH) 32.3 pg –Normal 27 to 34Mean Corpuscular Hemoglobin Concentration (MCHC) 34.3 g/dL –Normal 30 to 36Red Blood Cell Distribution (RDW) 12.8% -Normal 11.7 to 15.01Platelets (PLT) 279 X 10-3/uL –Normal 140 to 415Neutrophils 78 % -Normal 40 to 74.01Lymphs 15 % -Normal 14 to 46.01Monocytes 5 % -Normal 4 to 13.01Eosinophils (Eos) 2 % -Normal 0 to 7.01Basophils (Basos) 0 % -Normal 0 to 3.01Uric Acid Level 3.9 ug/dL –Normal 2.4 to 8.2Rheumatoid Arthritis 6.9 IU/ml –Normal 0 to 14Sedimentation Rate (ESR or “sed rate”) 4 mm/hr –Normal 0 to 21 GENERAL MEDICAL INFOBlood Pressure01/09/09 – 102/6001/06/09 -128/8212/29/08 -102/5908/26/08 -116/7405/12/08 -116/75Body Mass Index (BMI)12/29/08 -23.108/26/08 -21.105/12/08 -19.5Weight12/29/08 -126 lbs08/26/08 -119 lbs05/12/08 -110 lbsI believe that my weight gain is most likely contributed to the fact that I have had much less stress in my life, since I am the type to unconsiously not eat when under stress.
    Preschoolmom 12 Replies
    • January 11, 2009
    • 00:15 AM
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  • Reading over your post, another illness to look into might be dermatomyositis or some other form of myositis (see http://www.myositis.org/template/page.cfm?id=183 for info about DM). Myositis, especially DM, can result in rashes, joint pain, weakness, tiredness, random fevers, and dizziness, to name a few.Looking over your test results quickly (I may have missed it), I didn't see a CK test (also known as a CPK test), which may give some answers (info on that at http://www.myositis.org/template/page.cfm?id=9).DM and other forms of myositis are rare, so it's not usually the first thing doctors think of. The ones who usually diagnose and treat myositis are the specialists you're already trying to see, rheumatologists, because myositis falls under the RA family of illnesses.Good luck.
    pseudo2 1 Replies
    • January 11, 2009
    • 03:09 AM
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  • Well,I see that a sed rate was not done,which is very important in someone with joint pain.There are many causes of polyarthritis,but in a young female I'd like to see an autoimmune cause ruled out first.They should have done an ANA.
    richard wayne2b 1232 Replies
    • January 11, 2009
    • 03:03 PM
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  • Your heartburn could be from the various NSAIDS you've been taking.Do antacids help?As far as the dandruff is concerned,it could be from a dry environment,such as being indoors during cold weather,or do you have seborrheic dermatitis(oily,inflamed skin usually between the eyebrows and on the mid-face that is commonly associated with dandruff)?Oh,are you having any reflux symptoms with the heartburn?
    richard wayne2b 1232 Replies
    • January 11, 2009
    • 03:19 PM
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  • They also should have done an RA latex test.
    richard wayne2b 1232 Replies
    • January 11, 2009
    • 03:21 PM
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  • LUPUS!Do the Antinuclear Antibodies
    Anonymous 42789 Replies
    • January 12, 2009
    • 07:25 PM
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  • Sunday (the 10th) was the first day I woke up with out pain. I had some pain in my feet and knees throughout the day, but it did not last very long. The rash has not returned and neither has the fever. Today (the 11th) I have had very little pain, but some fatigue. On Saturday evening (the 9th) I did eat a huge plate of fresh salmon since my doc said my good cholesterol was low. I do not know if this is what has eased my symptoms or not, but today I have started fish oil pills. I finally have an appointment with a rheumatologist (funny I finally got it today)! However, it isnt until Febuary 2nd. I thought about not going only because my symptoms have seemed to go away, but I am too fearful they may return! The nurse at the rheumatologists office said that my first visit would just be me going over my symptoms and then they would send me to a lab so that they can run many many tests. The rheumatologist that I am being referred to is known for figuring out "exotic" ailments even when it is not rheumatoid arthritis. I plan to take some notes with me to the doctor to discuss several things that have been mentioned to me here on the forum. I will continue to keep you all posted, and again thank you for taking the time to give your advice and voice your concerns.
    Preschoolmom 12 Replies
    • January 13, 2009
    • 05:52 AM
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  • Its back! Urrrg, so I guess the problem wasnt the lack of good cholesterol. I am still planning to take the fish oil pills though. So I am glad that I went ahead and made the appointment with the rheumatologist, and now I really wish I could get in before Febuary 2nd. So, today the pain began in my right knee and now both my knees and both ankles are hurting again. I am still able to walk, but it is with discomfort. The rash appears to be back but very very mild. My knees and ankles seem to grind a little when I move them, and this is not something that happened before my initial symptoms. Also, I have noticed that I have 4 small areas on my lower legs where I have broken blood vessels and I do not recall having these before the inital symptoms either. I do not know if it is related, but it is a concern. I also find it odd that the symptoms seemed to go away and now they are back.
    Preschoolmom 12 Replies
    • January 14, 2009
    • 11:00 PM
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  • Complications of Crohn’s Disease

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  • Well, Im still in pain. Its not really moving around my joints anymore though. Since my last post, my pain has remained in both my knees and both ankles. Both my shin bones have been a little achey and I have been having a lot of pain in my feet. The pain in my feet is mostly around my heels (the sides closest to my arches), and also around the bone on the bottom outside of my foot (opposite my arches). I have also been experiancing some burning pain along with the stabbing, aching, and stiffness. The broken blood vessels have gotten worse, they are mostly on the sides and back of my legs just under my knees, but now there are about 8 or 9 instead of 4. Ive noticed that the vains in my legs are becoming more prominant with the severity of pain. Ive tried taking pictures both when they are easily seen and when they are not, but they are not easily seen in the pictures. My ankle has a quarter size brownish bruise on it, it is not painful, and I have no idea how I got it. I figure I would have noticed injuring it, since my ankles already hurt quite a bit. My fever has not returned. However, my rash is still slightly here on my belly and doesnt seem to be going away. Ive had a couple of sudden headaches with stabbing pains, but they seem to go away in 15-20 minutes. I have also noticed that my pain level decreases the next day when I eat salmon (which is full of omega 3), but not effected much by the fish oil pills. Im going to look into an all salmon diet and see if it would be a good or bad idea, because it sure seems to be the only thing helping the pain. Also, I realized that heat lessens the pain a little, but it is hard to have at work. So, I have started wrapping my legs in plastic wrap when they get nearly unbareable. The children in my class think its funny, but the plastic wrap holds the body heat in like a little heat wrap. I am desperately trying to get into the rheumatologist as soon as possible, and I am currently hoping for a cancelation so that I dont have to wait until Febuary 2nd.
    Preschoolmom 12 Replies
    • January 21, 2009
    • 05:45 AM
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  • Well, Im still in pain. Its not really moving around my joints anymore though. Since my last post, my pain has remained in both my knees and both ankles. Both my shin bones have been a little achey and I have been having a lot of pain in my feet. The pain in my feet is mostly around my heels (the sides closest to my arches), and also around the bone on the bottom outside of my foot (opposite my arches). I have also been experiancing some burning pain along with the stabbing, aching, and stiffness. The broken blood vessels have gotten worse, they are mostly on the sides and back of my legs just under my knees, but now there are about 8 or 9 instead of 4. Ive noticed that the vains in my legs are becoming more prominant with the severity of pain. Ive tried taking pictures both when they are easily seen and when they are not, but they are not easily seen in the pictures. My ankle has a quarter size brownish bruise on it, it is not painful, and I have no idea how I got it. I figure I would have noticed injuring it, since my ankles already hurt quite a bit. My fever has not returned. However, my rash is still slightly here on my belly and doesnt seem to be going away. Ive had a couple of sudden headaches with stabbing pains, but they seem to go away in 15-20 minutes. I have also noticed that my pain level decreases the next day when I eat salmon (which is full of omega 3), but not effected much by the fish oil pills. Im going to look into an all salmon diet and see if it would be a good or bad idea, because it sure seems to be the only thing helping the pain. Also, I realized that heat lessens the pain a little, but it is hard to have at work. So, I have started wrapping my legs in plastic wrap when they get nearly unbareable. The children in my class think its funny, but the plastic wrap holds the body heat in like a little heat wrap. I am desperately trying to get into the rheumatologist before febuary 2nd, and I am hoping someone will cancel so that I am able to be seen sooner. This pain is hard to handle day in and day out, and my daughter doesnt understand what has happened to her favorite playmate.
    Preschoolmom 12 Replies
    • January 21, 2009
    • 05:49 AM
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  • So, two children in my class were diagnosed with Fifths disease today! Since I can not get into the rheumatologist until Feb 2nd, I am going to my regular doctor on Monday and requesting the blood test! Even if the test turns out to be positive I will still see the rheumatologist, because after much internet reasearch ive noticed for others is the only type of doctor that can truely offer any help or relief.
    Preschoolmom 12 Replies
    • January 24, 2009
    • 03:08 AM
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  • I would look into Rheumatoid arthritis. This joint pain is more severe in the mornings and tends to ease up once you start moving around. Also, this would explain the fatigue as it is a common symptom for RA. There isn't one single test that they do for diagnosing RA. The rhuematologist will be the specialist you need for this one!Since rhuematoid arthritis is more common in women in their 20s-30s I would pursue this. Since RA is a direct result of your immune system reversing itself basicaly, the other symptoms(fever,rash etc) would be explained as well.The earlier you catch this disease the better your outcome on maintaining the RA and the slower the progression of the disease should be. Good luck to you and I hope you feel better soon!
    Anonymous 42789 Replies
    • January 24, 2009
    • 03:35 AM
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  • For preschoolmom,I am also a 30 yo woman, and I have almost everything that you have. I've contacted this week 8 different doctors to get diagnosed, but it looks I have to wait one more week for the blood results. I all started last weekend (January 17). I had sudden severe joint pain in the knees and hand fingers. The pain was not symmetric, it was one joint at a time and moved from one to another. The next day I had pain in the hips and right shoulder, then moved to the left shoulder. The pain was strong, it was like I had a knife in the joints. Ibuprofen didn't help. On Monday I visited a famous orthopedist (I was lucky to have the appointment made 2 months earlier. I have a lower back pain, probably from the previous lumbago. I don't know how is in the US, but here in Germany one may wait 2-3 months to get an appointment to a good specialist. In case of emergency, one can also go to doctor without an appointment). I forgot about the back problem and told him now about the joint pain I had. He sent me immediately to a Rheumatolog and there my blood was collected. She said I may have some kind of arthritis but I have to wait for the blood test results which takes 2 weeks. I went home and tried to rest. I could not because of the pain so next day I visited another Rheumatologist and asked for quicker blood tests. He said that these special tests are not done in our city and not every day. So I would need to wait between 1-2 weeks. He gave me stronger pain killers Thramadol, but because of the side effects I didn't take. Searching on Internet I found the so called Reactive Arthritis (you also red about this) cased by bacterial infection. I immediately recalled the symptoms of gastrointestinal infection that I had on 1st of January (2-3 weeks earlier). I was sick for 3 days, I had nausea, diarrhea, vomiting and a general weakness. It may be that I got infected by Salmonella or Shigella. I then went to several internist doctors and try to convinced them to have me checked for such kind of infection They could not believe that Salmonella infection can lead to such bone disorder. Finally, one doctor checked on Internet what I said and sent me to labor for blood and stool examination. Monday I will have the results. yesterday (23 January) the joint pain almost went away (although sometimes it reappears) but I got a strange headache with shooting pain all over the head, also close to my eyes. I feel weak, dizzy even if I lie on the bed. I think my symptoms are pretty much the same as yours, with few exceptions: I don't have any rush and the pain in my ankles is very low. Instead, the right shoulder bothers me. I am wondering now what's next. I will come back with a post after I get the blood results. I hope I can get a copy so I can paste it here the same way you did. I was very disappointed by some doctors who didn't take me in serious. I was even at the hospital for emergency, but it looks that as long as I can walk I am not a case for emergency. Well, I should have been there a day earlier when I could not walk due to my hips and knees pain. I just need a right diagnostic.
    Anonymous 42789 Replies
    • January 24, 2009
    • 09:58 AM
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  • For preschoolmom, I am also a 30 yo woman, and I have almost everything that you had in the beginning. I've contacted this week 8 different doctors to get diagnosed, but it looks I have to wait one more week for the blood results. I all started last weekend (January 17). I had sudden severe joint pain in the knees and hand fingers. The pain was not symmetric, it was one joint at a time and moved from one to another. The next day I had pain in the hips and right shoulder, then moved to the left shoulder. The pain was strong, it was like I had a knife in the joints. Ibuprofen and Voltaren didn't help. On Monday I visited a famous orthopedist (I was lucky to have the appointment made 2 months earlier. I have a lower back pain, probably from the previous lumbago. I don't know how is in the US, but here in Germany one may wait 2-3 months to get an appointment to a good specialist. In case of emergency, one can also go to doctor without an appointment). I forgot about the back problem and told him now about the joint pain I had. He sent me immediately to a Rheumatologist and there my blood was collected. She said I may have some kind of arthritis but I have to wait for the blood test results which take 2 weeks. I went home and tried to rest. I could not because of the pain so next day I visited another Rheumatologist and asked for quicker blood tests. He said that these special tests are not done in our city and not every day. So I would need to wait between 1-2 weeks. He gave me stronger pain killers Thramadol, but because of the side effects I didn't take. Searching on Internet I found the so called Reactive Arthritis (you also red about this) cased by bacterial infection. I immediately recalled the symptoms of gastrointestinal infection that I had on 1st of January. I was sick for 3 days, I had nausea, diarrhea, vomiting and a general weakness. It may be that I got infected by Salmonella or Shigella. I then went to several internist doctors and try to convinced them to have me checked for such kind of infection They could not believe that Salmonella infection can lead to such bone disorder. Finally, one doctor checked on Internet what I said and sent me to labor for blood and stool examination. Monday I will have the results. Yesterday (23 January) the joint pain almost went away (although sometimes it reappears) but I got a strange headache with shooting pain all over the head, also close to my eyes. I feel weak, dizzy even if I lie on the bed. My head is a bit burning but I don't have a thermometer to check if I have fever. I think my symptoms are pretty much the same as yours, with few exceptions: I don't have any rush and the pain in my ankles is very low. Instead, the right shoulder bothers me. I am wondering now what's next. I will come back with a post after I get the blood results. I hope I can get a copy so I can paste it here the same way you did. I was very disappointed by some doctors who didn't take me in serious. I was even at the hospital for emergency, but it looks that as long as I can walk I am not a case for emergency. Well, I should have been there a day earlier when I could not walk due to my hips and knees pain. I just need a right diagnostic.
    Anonymous 42789 Replies
    • January 24, 2009
    • 11:15 AM
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  • I saw the rheumatologist on the 2nd, and while he could not diagnose me until my blood tests came back. He did go ahead and prescribe me a low dose of Prednisone, which is a steroid. This has helped so much, and I feel like it has given me my life back. I had tried some other medicine for the pain, but it either was not affective or it would just knock me out. With the prednisone I have not had any noticable side effects, but the pain has dissapeared. I finally got my blood test results back today! The doctor had tested me for everything immaginable and even stuff unimaginable (from HIV to Hepatitis to anemia even). The only positive or abnormal result was for the Human Parvo virus (fifths disease)! I had two different doctors and the school nurse tell me that I could even get fifths disease because I was an adult and that if by a long shot I did get it then it would only last 3 to 7 days. One of these doctors even told me that there was no test for it, and the others didnt know! (BTW: I had the rheumatologist fax my results to them.) Its amazing to me after watching several of the children at work who have had this and how little it seems to affect them. We have had 5-6 children to have it. They all got a rash (I only had a very slight rash), some children were worse than others, but rarely did the rash even itch. All of their cheeks had become very red at some point with it (mine never did), there was only a very low grade fever before the rash, but their seemed to be no other real symptomsin the children. Yet, my symptoms were nearly dabilitating!The rheumatologist told me that this virus reacts very differently in adults, and like adult chickenpocks is so much worse. Unlike chickenpocks it is not potentially fatal and does not cause any long term damages to the body. In adults the joint pain can last up to a year, and seems to be worse for people who suffer from even mild anemia. I am going back to the rheumatologist in a couple weeks. He wants to check on my joint pain, and discuss the possible duration of this virus along with treatment. Thank you to all of you who have taken the time to reply and give advise! I hope that this insain journey of mine may help someone else to have a speedier recovery! (or at least know that there is a test for it!)
    Preschoolmom 12 Replies
    • February 11, 2009
    • 05:39 AM
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