Discussions By Condition: I cannot get a diagnosis.

joint pain-no diagnosis

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • June 15, 2009
  • 00:47 AM

Up until last year I was in perfect health, training for a marathon, muscular, low body fat, and felt great and full of energy. I then sustained bad back injury, that took me 4 months to recover from and still bother me occasionally. In the midst of this I was given an oral steroid for the inflammation in my back and ended up in the hospital a few days later with Pericarditis. They ran several tests on me and the only cause they found was from Coxsackie virus, which I tested positive for. The Pericarditis cleared up, but a few days later I was racked with horrible joint pains all over my body. I had to take pain killers for months to deal with the pain because it was so bad and I missed 5 weeks of work. I had no swelling,no inflammation, and saw several specialists who tested me for all autoimmune, celiac disease, Lyme disease (the western blot) and a host of other tests, with nothing positive...I didn't even have any indication of inflammation...my sed rate ranged from 7 to 12 (completely normal),ANA and ENA/DNA was neg. RF test was neg. ccp and crp was neg. No indication of anything going on. It took about 4.5 months for the pain to die down, although my hands still ached occasionally and I was fine for 4 months, running, lifting, very active, felt pretty good. I then irritated my old back injury a few weeks ago and was still able to run on it up until about 1.5 wks ago when I started getting bad joint pains in my hands and feet again, and my heels hurt. After a 5 mile run a couple of weeks ago my whole body hurt and I have not run since. It is getting a little better now, but I still hurt. Went to the Rheumatologist and he is running tests, although he doesn't think anything will come up. He said he thinks I have Joint Hypermobility Syndrome since my joints are able to bend too far in the wrong direction and is sending my to PT for it. I don't buy it. I get my test results back next week, but he stated he didn't think there would be any positive results, since I have no signs of swelling, stiffness (I can actually bend my fingers back pretty far and bend my thumb to my wrist) or inflammation, just pain...any advice???? Need to think outside the box on this one I think?

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  • Try googling reactive arthritis. It is common in people who have had a virus of some sort. It usually disappears after 6 months, but it can turn chronic as well. Kiera
    Anonymous 42789 Replies Flag this Response
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