Discussions By Condition: I cannot get a diagnosis.

Joint crepitus, joint stiffness, and all around problems

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Jackyj
  • March 2, 2011
  • 02:24 AM

Hey, i dont usually end up on forums and places like this, but i am lost and have absolutely no where else to turn, so im hopping someone here is going through the same problems or can guide me in the Right Direction.

My Problem is a long read, but please read through it. I am not sure if all of this is connected but i thought id share it all

A few years ago i noticed my Knees started to Crack alot. If i had put weight on one leg, then started to move or change direction, id hear a loud pop. No pain, just the sound. Then, slowly after, when weight training, i would have issues doing Squats. So i stopped doing those. Then i had trouble with some other leg exercises, and stopped those aswell. I saw a Dr, had some X rays and an MRI on my right knee and nothing showed up. He told me nothing was wrong and to keep working out

So a year or so passes and now the Popping and cracking of the knee has Spread to the Ankels and the Wrists. No Pain, just the sound of grinding and cracking. Again saw a Dr, and again, came back with the same response of nothing being wrong.

Another year passes by and Now am at a Crossroad. Every joint in my body is now experiencing these symptoms. For Example

I shrug my shoulders i hear 4-5 pops and a Grating sound

I move my arms in a circular motion and all i hear is bone on bone grinding and an occasional loud pop.

My Hips now pop out of place during certain movements

I cant roll my ankles in a circle without them popping or grinding

Every time i move my neck, i hear the same popping and grinding sound and sometimes this hurts

My fingers now pop and crack all the time, i never used to be able to do this

I move my back and i hear 4-5 loud pops

When i cough i feel things pop out of place, but cannot locate or decipher where it is coming from

Then most recently, my groin started having these problems aswell. IF i squeeze my knees together i hear and feel a loud pop from within my groin. I didn't even know their were joints there? Not only a pop, but a Grinding sometimes aswell.

Now, all of these joints are Stiff in the morning, I have trouble getting out of bed i have to force my self to get up. It used to go away after a few hours but now its a full day, 24 hour stiffness. I probably crack my joints 300-400 times per day, not all on purpose just through daily motions.

I used to be active. i was 220 pounds, dropped down to 165 and was very active in sports and running and weight training.

I went from running 5k a day, to no longer being able to run more then a K without extreme discomfort.

My hips now have this burning feeling, as well as with the other joints in my body

Ive been tested for Everything, Lupus, lyme, RA, EVERYTHING comes back negative, i am perfectly healthy according to everyone. seen 2 rheumatologist,( who sent me for an MRI and a BONE SCAN) 2 Family Drs, and a chiro. and no one knows whats going on

The Rheumy Said nothing was wrong and told me to stop coming back.

So now here i am, 22 years old supposed to be in the prime of my life and im dealing with this problem no one even understands of acknowledges. I cant get it off my mind and its effecting me going to school and moving on with my career. I just lost a great girl because of the problems i am dealing with, and my confidence with finding another one is completely shot, which is messed up because ive never, ever prior to this had any problem with women or confidence. I try and weight train because i dont want to get out of shape, but i just cant do what i used to. and cardio and sports are basically out of the question. as well as work is becoming more and more difficult by the day.

WHAT DO I DO? all the research i have looked at points to arthritis or fibro, but i have no inflammation and Joint cracking and grinding isint a symptom of Fibromyalgia

Aright well i am kind of rambling on now, i guess what im here for is some type of direction, maybe even a small ray of hope that i will be able to live a normal life, and not slowing wearing away to nothing. Does anyone else have these symptoms? What did you do to get help? where did you go?

Please, someone steer me in the right direction

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9 Replies:

  • Did they check for ankylosing spondylitis ?
    Anonymous 42789 Replies Flag this Response
  • Hey, i dont usually end up on forums and places like this, but i am lost and have absolutely no where else to turn, so im hopping someone here is going through the same problems or can guide me in the Right Direction.My Problem is a long read, but please read through it. I am not sure if all of this is connected but i thought id share it allA few years ago i noticed my Knees started to Crack alot. If i had put weight on one leg, then started to move or change direction, id hear a loud pop. No pain, just the sound. Then, slowly after, when weight training, i would have issues doing Squats. So i stopped doing those. Then i had trouble with some other leg exercises, and stopped those aswell. I saw a Dr, had some X rays and an MRI on my right knee and nothing showed up. He told me nothing was wrong and to keep working outSo a year or so passes and now the Popping and cracking of the knee has Spread to the Ankels and the Wrists. No Pain, just the sound of grinding and cracking. Again saw a Dr, and again, came back with the same response of nothing being wrong.Another year passes by and Now am at a Crossroad. Every joint in my body is now experiencing these symptoms. For ExampleI shrug my shoulders i hear 4-5 pops and a Grating soundI move my arms in a circular motion and all i hear is bone on bone grinding and an occasional loud pop.My Hips now pop out of place during certain movementsI cant roll my ankles in a circle without them popping or grindingEvery time i move my neck, i hear the same popping and grinding sound and sometimes this hurtsMy fingers now pop and crack all the time, i never used to be able to do thisI move my back and i hear 4-5 loud popsWhen i cough i feel things pop out of place, but cannot locate or decipher where it is coming fromThen most recently, my groin started having these problems aswell. IF i squeeze my knees together i hear and feel a loud pop from within my groin. I didn't even know their were joints there? Not only a pop, but a Grinding sometimes aswell. Now, all of these joints are Stiff in the morning, I have trouble getting out of bed i have to force my self to get up. It used to go away after a few hours but now its a full day, 24 hour stiffness. I probably crack my joints 300-400 times per day, not all on purpose just through daily motions. I used to be active. i was 220 pounds, dropped down to 165 and was very active in sports and running and weight training.I went from running 5k a day, to no longer being able to run more then a K without extreme discomfort. My hips now have this burning feeling, as well as with the other joints in my bodyIve been tested for Everything, Lupus, lyme, RA, EVERYTHING comes back negative, i am perfectly healthy according to everyone. seen 2 rheumatologist,( who sent me for an MRI and a BONE SCAN) 2 Family Drs, and a chiro. and no one knows whats going onThe Rheumy Said nothing was wrong and told me to stop coming back.So now here i am, 22 years old supposed to be in the prime of my life and im dealing with this problem no one even understands of acknowledges. I cant get it off my mind and its effecting me going to school and moving on with my career. I just lost a great girl because of the problems i am dealing with, and my confidence with finding another one is completely shot, which is messed up because ive never, ever prior to this had any problem with women or confidence. I try and weight train because i dont want to get out of shape, but i just cant do what i used to. and cardio and sports are basically out of the question. as well as work is becoming more and more difficult by the day.WHAT DO I DO? all the research i have looked at points to arthritis or fibro, but i have no inflammation and Joint cracking and grinding isint a symptom of Fibromyalgia Aright well i am kind of rambling on now, i guess what im here for is some type of direction, maybe even a small ray of hope that i will be able to live a normal life, and not slowing wearing away to nothing. Does anyone else have these symptoms? What did you do to get help? where did you go?Please, someone steer me in the right directionI have fibro. The joint issue isn't a part of fibro. Usually fibro causes you to become less flexible, not more. I wonder if you have something wrong with your tendons or your ligaments, since they are what creates the stability in your body. If they have become "hyperflexive", then that would lead to the joints popping. Also, the more that you pop them, the looser that area gets. Is there pain when you pop the joint? If so, then you have a problem, and need to find a different rhumy, because that one isn't worth his salt. Try to get to a mayo clinic or to the NIH center closest too you for research.
    jackrorabbit 113 Replies Flag this Response
  • Hi I have had an almost identical history as you over the last couple of years. I am 33yo though, but i also exercise regularly. I have been to the GP once and had basic bloods inc RA which were -ve.I am now with a new gp (moved house) and went as the crepitus spread to new joints (ankles and neck) and they have sent me for more routine bloods and a different one called anti ccp.Any way let me know how you get onDan
    danmoot 1 Replies Flag this Response
  • I have just tentatively been diagnosed with Chronic Fatigue Syndrome (which is closely linked to Fibromyalgia in terms of common symptoms). And I'm searching here because my joints have been cracking to crazy levels for the last while, very consistently, and it seems to be getting progressively worse. I wonder if there could be a connection.
    Anonymous 42789 Replies Flag this Response
  • I have just tentatively been diagnosed with Chronic Fatigue Syndrome (which is closely linked to Fibromyalgia in terms of common symptoms). And I'm searching here because my joints have been cracking to crazy levels for the last while, very consistently, and it seems to be getting progressively worse. I wonder if there could be a connection. No i dont think so as I havent heard others with CFS/ME talking about that and have always hung out in the ME/CFS forums due to having it myself. I did have a shoulder which was grating but its one I dislocated when young and was told I had a shallow shoulder joint.. it now thou dont grate no more. I also had a jaw which made clicking popping noise but that isnt doing it no more either (it did that before I got CFS/ME).
    taniaaust1 2267 Replies Flag this Response
  • Hey, i dont usually end up on forums and places like this, but i am lost and have absolutely no where else to turn, so im hopping someone here is going through the same problems or can guide me in the Right Direction.My Problem is a long read, but please read through it. I am not sure if all of this is connected but i thought id share it allA few years ago i noticed my Knees started to Crack alot. If i had put weight on one leg, then started to move or change direction, id hear a loud pop. No pain, just the sound. Then, slowly after, when weight training, i would have issues doing Squats. So i stopped doing those. Then i had trouble with some other leg exercises, and stopped those aswell. I saw a Dr, had some X rays and an MRI on my right knee and nothing showed up. He told me nothing was wrong and to keep working outSo a year or so passes and now the Popping and cracking of the knee has Spread to the Ankels and the Wrists. No Pain, just the sound of grinding and cracking. Again saw a Dr, and again, came back with the same response of nothing being wrong.Another year passes by and Now am at a Crossroad. Every joint in my body is now experiencing these symptoms. For ExampleI shrug my shoulders i hear 4-5 pops and a Grating soundI move my arms in a circular motion and all i hear is bone on bone grinding and an occasional loud pop.My Hips now pop out of place during certain movementsI cant roll my ankles in a circle without them popping or grindingEvery time i move my neck, i hear the same popping and grinding sound and sometimes this hurtsMy fingers now pop and crack all the time, i never used to be able to do thisI move my back and i hear 4-5 loud popsWhen i cough i feel things pop out of place, but cannot locate or decipher where it is coming fromThen most recently, my groin started having these problems aswell. IF i squeeze my knees together i hear and feel a loud pop from within my groin. I didn't even know their were joints there? Not only a pop, but a Grinding sometimes aswell. Now, all of these joints are Stiff in the morning, I have trouble getting out of bed i have to force my self to get up. It used to go away after a few hours but now its a full day, 24 hour stiffness. I probably crack my joints 300-400 times per day, not all on purpose just through daily motions. I used to be active. i was 220 pounds, dropped down to 165 and was very active in sports and running and weight training.I went from running 5k a day, to no longer being able to run more then a K without extreme discomfort. My hips now have this burning feeling, as well as with the other joints in my bodyIve been tested for Everything, Lupus, lyme, RA, EVERYTHING comes back negative, i am perfectly healthy according to everyone. seen 2 rheumatologist,( who sent me for an MRI and a BONE SCAN) 2 Family Drs, and a chiro. and no one knows whats going onThe Rheumy Said nothing was wrong and told me to stop coming back.So now here i am, 22 years old supposed to be in the prime of my life and im dealing with this problem no one even understands of acknowledges. I cant get it off my mind and its effecting me going to school and moving on with my career. I just lost a great girl because of the problems i am dealing with, and my confidence with finding another one is completely shot, which is messed up because ive never, ever prior to this had any problem with women or confidence. I try and weight train because i dont want to get out of shape, but i just cant do what i used to. and cardio and sports are basically out of the question. as well as work is becoming more and more difficult by the day.WHAT DO I DO? all the research i have looked at points to arthritis or fibro, but i have no inflammation and Joint cracking and grinding isint a symptom of Fibromyalgia Aright well i am kind of rambling on now, i guess what im here for is some type of direction, maybe even a small ray of hope that i will be able to live a normal life, and not slowing wearing away to nothing. Does anyone else have these symptoms? What did you do to get help? where did you go?Please, someone steer me in the right directionThis is the first time that I have replied to a post but when I read it, it described what I have been dealing with over the last 4/5 months that I couldn't help myself.I am going through the diagnosis stage for fibro and have done some research on it. If you go to the following fibromyalgia site www.fibromyalgia-symptoms.org/fibromyalgia_mysofacial.html and read through it you will see the following regarding myofascial pain syndrome:"Myofascial pain can also produce a variety of other symptoms, many of which may appear unrelated. These include:•numbness in the extremities•popping or clicking of the joints•limited movement of joints, particularly the jaw•muscle weakness (manifested in dropping things)•migraine or headache•disturbed sleep•balance problems•tinnitus and ear pain•double vision or blurred vision•problems with memory•unexplained nausea, dizziness, and sweatingApparently a lot of people with fibromyalgia have myofascial pain syndrome, which can include "popping or clicking of the joints". The following is a fibromyalgia support discussion on mdjunction which shows that other people with fibro do have the cracking in the joints http://www.mdjunction.com/forums/fibromyalgia-discussions/general-support/20627-popcorn-joints-anyone. I also know 2 people personally with fibro and both have the cracking in the joints, one controls her fibro with proper diet and exercise and the other uses a natural supplement for the joint cracking (glocusamine sulphate). I'm not a doctor but you may want to talk to yours about Myofascial Pain Syndrome if you think it sounds like what you have and whether or not you should take a glocusamine supplement (I believe there are different kinds).Hope this helps and good luck!Stacey
    Anonymous 42789 Replies Flag this Response
  • Are you still having these issues and have you found the cause?
    Silver_gti 1 Replies
    • October 17, 2014
    • 07:17 AM
    • 0
    Flag this Response
  • Do you eat too much bread or wheat products? The only thing I can suggest is try to quit wheat or anything that has gluten and stay away from GMOs. Take a good B12 methyl supplementation and also take a good Glucosamine supplement and eat at least 1 pound of dark leafy green vegetables raw every day (kale, mustard green, arugula, watercress and broccoli leaves are the best) and I guarantee you will give your joints what they need. This is nothing but a food problem!
    Anonymous 1 Replies
    • October 30, 2015
    • 04:18 PM
    • 0
    Flag this Response
  • I am 43 year male. My knee started making cracking sound about 3-4 months ago without any pain. I ignored initially, now it spreads to wrist, neck, elbow, and shoulder joints. Some pain is started inside of knee. I am seeing my family doctor in few days. I will keep posted with my case updates.
    Anonymous 1 Replies
    • September 13, 2016
    • 06:21 PM
    • 0
    Flag this Response
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