Discussions By Condition: I cannot get a diagnosis.

joint aches and fatigue....Please Help! : (

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: nursingstudent
  • September 19, 2007
  • 04:15 AM

For about 3 years now I seem to get sick very often. It started my jr year of high school when I got Mono. This lasted for about a month and I missed alot of school. Ever since then I have get sick very easily and often suffer from joint pain in my knees, ankles, and feet and also have headaches. My PCP tested me for many things since it was interfering with life alot however, all the tests came back negative. He tested my liver enzymes, thyroid, ANA, tested me for lyme and also rheumatoid arthritis. I will be ok for a couple of months and then I'll get sick for about a month with severe fatigue, joint pain, achey throat (may be due to allergies) aching jaw, and malaise. Recently I went to an ENT and he diagnosed me with chronic sinusitis and multiple polyps in my sinuses. My sinuses were a mess! I got surgery a month ago and figured that was the reason I was getting sick so often and all my problems would be solved. I am still having very achey joints especially at night or when I am resting it is so uncomfortable and painful that sometimes i cant get to sleep or it awakens me from my sleep. One time I awakened in the night with a strange burning/tingling in my right hand and about a week ago I woke up and my whole right leg was numb from my hip to my toes. I dont know if these occurences were just coincidences or what. I am in nursing school now and dont have time to be sick!!!! I feel awful and stupid because I am constantly tired and at such a young age (19) I feel like I shouldn't be having these problems. In October I am going to see an Allergist and have shots and also a Rhuematologist. I hope I find out why all of this is happening. :(




I also have an itchy skin rash on my legs and chest with discoloration, the Dr. gave me lotion so hopefully it clears up.

Any suggestions?? Please help!

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9 Replies:

  • I haven't much advice but plenty of sympathy for what you're going through. I am dealing with a very similar situation. I had mono when I was 15 (twice that year actually) and haven't been healthy since. I get frequent colds and flus, and these can have me in bed for a week because I get so exhausted, and they seem to hit me much harder than everyone else. It's been 10 years now and I'm only starting to feel healthier. After having Mono I had to homeschool myself through the rest of high school, and tried to go to college but couldn't make it work, so have ended up taking college courses at home as well. I can definitely relate to how much it can impact your life! Most doctors seem to think that mono hasn't long lasting effects but for me it has. I also get leg pains. Usually one or the other, and rarely both legs are affected at the same time and then I can barely walk. I don't know what that is. I've talked to several doctors about it and can't get any answer from them. My immune system is still low and I must be careful about my health at all times. I also ended up with psoriasis (which is atypical because it is an itchy rash, not a patch as is more common, that covers 80% of my body if not controlled and it took a dermatologist to sort that one out for me since my usual dr couldn't figure out what it was) from the mono, and the psoriasis has negatively affected my already arthritis-prone joints. I've also run the gamut of medical tests so can understand your frustrations with that as well.Hopefully you find some answers soon. Good luck!
    charcoalangel 1 Replies
    • September 19, 2007
    • 09:37 PM
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  • You are having symptoms of chronic fatigue syndrome and fibromyalgia. The allergist and rheumatologist are not really going to be able to help you. Do yourself a favor...find NAET or Bioset therapyIt will resolve your symptoms. I know, I had all of them.7 treatments later...about 2 and 1/2 months...I am going back to work after over a year!! NAET/Bioset is a way of relieving allergies...which most of your symptoms are from. Even the joint pain and fatigue... best wishes, mommy cat
    mommy cat 1654 Replies
    • September 19, 2007
    • 10:41 PM
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  • Thank you so much for responding to me. It is extremely frustrating to have all these symptoms and be in the prime of my life! I was also thinking CFS however I know most doctors are not familiar with this and it is hard to get a diagnosis. I will look into Bioset therapy.
    Anonymous 42789 Replies
    • September 20, 2007
    • 00:02 AM
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  • Charcoalangel I hope you find relief and a Dr. who understands. Best wishes!and thanks for responding
    Anonymous 42789 Replies
    • September 20, 2007
    • 00:04 AM
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  • Dear nursingstudent...I have been a nurse for 15 years. A "diagnosis" written on a sheet of paper=uselessmeds doc will give you to "mask" symptoms=pricey and uselesspsychology referal you will recieve=insultingBioset therapy=PRICELESS!! Let me know where you live, I'll help you look for someone in your area. consider NAET and Bioset. You don't need both...just one that's close to you... www.naet.com www.bioset.net please read the testimonials page..I've already written mine!! Best wishes...mommy cat
    mommy cat 1654 Replies
    • September 20, 2007
    • 10:27 PM
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  • vasculitis
    Anonymous 42789 Replies
    • October 14, 2007
    • 10:12 AM
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  • Momcat;You can't say that you know that most of this persons symptoms are from allergies.You haven't seen this person in real life and such a quick assumption could get a sick person into a worse situation if they just assume it is just allergies and get Bioset and the other thing you believe cures just about anything.Yes, I am sure your over touted- imo - alternative therapies (NAET and BIOSET) worked for you for a little over 2 months... but the real test will be how long your alternative treatments continue to work for you. In such a short period of time and few treatments; you could be experiencing a placebo effect. Time will tell if your cure has really cured you or not; but until then your zeal and enthusiastic campaign to sell these two treatments to so many people without your really knowing what is wrong with them could possibly lead someone to delaying getting a dr to check something out (because you can't see them or know them truly form one post). But you Momcat should be careful about recommending them to somebody who may well be having pains that haven't been fully diagnosed yet; possibly delaying a diagnosis for which a treatment could be needed.I think it is unwise to diagnose somebodys symptoms as allergy related when you have not seen the patient in person. If you have been a nurse for 15 years you should now that it is never wise to diagnose a persons health problems that you have never met over the net. When you say "NAET/Bioset is a way of relieving allergies...which most of your symptoms are from. Even the joint pain and fatigue..." you have diagnosed that person. And you could so easily be so dead wrong.If you truly care about people as a nurse (you said you were a nurse for 15 yrs on another post in this thread) ; you need to be more careful about diagnosing peoples conditions on the web and recommending some alternative treatment you have found helpful for such a short period of time. I don't know any highly qualified professional nurse who would say they knew exactly what was causing somebody they met on an internet message board symptoms and to avoid drs and get some alternative treatment instead. Just because you were a nurse for 15 yrs (or so you say you were a nurse) does not make you qualified to tell someone what is causing their symptoms and to avoid going to the drs. Can you live with yourself if that person has some auto immune disorder or cancer; and delays getting a real diagnosis earlier? You are having symptoms of chronic fatigue syndrome and fibromyalgia. The allergist and rheumatologist are not really going to be able to help you. Do yourself a favor...find NAET or Bioset therapyIt will resolve your symptoms. I know, I had all of them.7 treatments later...about 2 and 1/2 months...I am going back to work after over a year!! NAET/Bioset is a way of relieving allergies...which most of your symptoms are from. Even the joint pain and fatigue... best wishes, mommy cat
    Anonymous 42789 Replies
    • October 15, 2007
    • 02:25 AM
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  • http://www.wrongdiagnosis.com/diagnosis/self.htmThis article and the related ones on this page discuss the dangers of diagnosing health problems on the net. Both of you should probably read it.JMOIts a great article that is on this website. I recommend it highly to anybody with health problems who is on the internet searching for advice from others they do not really know. *You never really know anybody you meet on the net, they may say they are a nurse or dr for a long time but that means nothing as they could still have problems, not telling the whole story or be lying altogether. For the nursing student; that article will be especially helpful to read because you need to know about the issues re internet use by patients. Take care; I hope you get well and get the help you do need. The sed rate is high so you do need to get diagnosed.You are having symptoms of chronic fatigue syndrome and fibromyalgia. The allergist and rheumatologist are not really going to be able to help you. Do yourself a favor...find NAET or Bioset therapyIt will resolve your symptoms. I know, I had all of them.7 treatments later...about 2 and 1/2 months...I am going back to work after over a year!! NAET/Bioset is a way of relieving allergies...which most of your symptoms are from. Even the joint pain and fatigue... best wishes, mommy cat
    Anonymous 42789 Replies
    • October 15, 2007
    • 02:51 AM
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  • Has anyone looked to see if you are HLA-B27 positive?
    aquila 1263 Replies
    • October 15, 2007
    • 06:33 PM
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