Discussions By Condition: I cannot get a diagnosis.

Its not all in my head!!??

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: schreolslsi
  • August 3, 2011
  • 08:49 PM

to begin, i have had fibromyalgia since i was 15 and asthma.
i have hot and cold flashes, particularly bad hot flashes, my shoulders, knees, joint in general move from where their supposed to be and my muslces do the same thing i ignored it for awhile thinking it was all in my head but since i had a miscarriage it got alot worse. recently i was making dinner and i was going to serve it onto plates and my writs just dropped and i wasnt able to move them at all i had no strength in them or to them. my body does this often, to more body parts than just my wrists, but more recently than ever before. i was in a car accident and had hit my head pretty hard now when i get hit in the head now i dont feel it also i will bend down to get something and my entire body will flush red and i wont be able to stand up i wont have the strength to those body parts, almost as though its partially paralyzed and i cant even get up using my cane. ive been getting very confused recetly and my motor skils are almost non existent almost although they have been depleting i can type well but i cannot converse or even speak properly sometimes my ligaments twist AND also my mind gets confused and thinks things should be twisted. my joints crack alot, i have a rash that comes and goes and im not sure what make it come and go the doctors dont know what it is, parts of my skull are begining to dip inward, my bones feel like they need to stretch all the time, i will get random excruciating pain in my body with no cause. when pressed, parts of my body will feel like the bone is poking out and i will get a pain all down my body. ie. thumb. i get constant pain in both sides of my jaw. my neck is so weak most of the time i cant hold it up. i need to know whats going on i know its not all in my head, because im having to use a walker. and im 21.:confused:

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  • WOW !There is a lot here and it may be a bit disjointed.If you do reply or ask questions, I will get back, but perhaps not quickly (I too have a few hassles :confused:).I quickly read you message and thought -It sounds as though you may be normally very active, so possibly you might have been ignoring signs/symptoms, so the body ups the symptoms untill you listen.Then when I read it properly, you said it yourself.There are many possibilities.There might be a spinal issue (discs out of place cause some hassles).The new symptoms resemble Chronic Fatigue Syndrome (CFS), so it could actually be an additioanl illness, but equally, the symptoms are also of FM (genrally).It is possible that ligaments may be coming loose and allowing joints to slightly dislocate (i.e. not sit in place). This causes both direct and indirect pain and also additional large amounts of chemicals are produced by your body which could be over / under stimulating different glands and also your FM.This condition may only be active for a short period in the day, or when there is some activation e.g. the first 20 seconds after you get up, specific food, stress or etc. but because the joints are not seated properly, the symptoms continue and possibly build up.Finger joints are easiest to identify, make the one hand loose and totally floppy (hard to do at the start), then with the other hand, pull the fingers one by one, the aim is to dislocate and relocate the finger joint from and then back into the socket, all in 1 action (normally knuckles are the one to move / click).It is hard to specify max pulling force, but consider 5kg / 11lb as max ! If you do have lose ligaments, then the joints will probably dislocate at as little as 1kg / 2lb. You will hear and feel the classic joint click.If the joints do not click at lower weights, then it does not sound like a loose ligament problem.Genrally speaking, regular clicking of joints is not recommened unless to aleviate joint pain (i.e. to return the joint to a proper operation position).You may be one of the many people who naturally have flexable ligaments (magicians and circus performers use these attributes), but with ???? your ligaments are more flexable than they would normally be, thus the problems.I am thinking better safer than sorry, minature blood clots can give a variety of symptoms (e.g. the mental symptoms).BUT equally (and more likely), the chemical imbalance as in CFS, Adrenal Fatigue (AF) anmd more ! can do all the symptoms.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The following is just to get you thinking, because you know your body, your symptoms, your normallity, etc.Thus "quick similar symptoms to" and then your comment follows. CFS & spinal - bend down to get something and my entire body will flush red CFS & blood clots (BC) - been getting very confused recetly CFS & BC & spinal - my motor skils are almost non existent almost although they have been depleting i can type well but i cannot converse or even speak properlymany possibliltities, probably not major, but you have 2 hands, but only 1 brain, so keep a close watch on these sypmtoms - i was in a car accident and had hit my head pretty hard now when i get hit in the head now i dont feel it sounds like wrong chemical balance - sometimes my ligaments twist AND also my mind gets confused and thinks things should be twistedprobably loose ligaments, but also artheritus etc. - my joints crack alotmany possibilities - a rash that comes and goes and im not sure what make it come and gono idea - my skull are begining to dip inwardif you mean "I need to stretch regulary", my thoughts are "joint issues" - my bones feel like they need to stretch all the time ... CFS & FM & spinal - random excruciating pain in my body with no cause. when pressed, parts of my body will feel like the bone is poking out and i will get possibly spinal - i get constant pain in both sides of my jaw. my neck is so weak most of the time i cant hold it up~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Remedies for spinal issues -Good posture during the day.When going round a corner in a vehicle, "tummy in", most people incorrectly push the tummy muscles out to brace themselves.When getting up in the morning "tummy muslces in".The tummy muscles support the lower spine and abdominal area, also there is a higher tendancy to put weight on around the stomache and "abs" area as the muscles become looser.Max 1 pillow. Adjust pillow height regularly (for true comfort - listen to your body), even possibly 2 or 3 times in the same night !When you lay down, wait ? seconds and you will feel your body relax, at this point keep your shoulders still and use your legs, feet and hips to to stretch your spine, possibly by up to 2 inches and possibly again a few minutes later.Consider no pillow and just a rolled up towl under your neck and also possibly a folded towl or thin cushion under you bottom/lower back (listen to the body - it will tell you if it is right, also, you might need to move it as the body re-aligns itself during the night).Consider SMALL amounts of Pillaties or Yoga to "condition" / tone your body.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~Have a read at www.drlam.com about Adrenal Fatigue, I am not suggesting this is you illness, but if you follow the guide lines and understand roughly what is going on, it may help you address "chemical imbalances".~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~YOU DO "need to know whats going on" ! Best of wishes to youTerry
    Anonymous 42789 Replies Flag this Response
  • I found your post interesting thou as other poster said its a bit disjointed, a couple of things thou stood out to me. Firstly I'd like to tell you that Fibromyalgia is a very closely related condition, sister condition to CFS (chronic fatigue syndrome). A quarter of those who have Fibromyalgia go on to develop CFS. Thou you dont seem to have CFS currently as you didnt mention enough symptoms (unless you have more you just didnt mention) some of your symptoms appear that you may be heading towards the CFS direction eg "neck is so weak I have trouble holding it up" (weakness of that degree isnt uncommon with CFS)...and from your post you appear to also have some other things which are often coexisting conditions with CFS. my shoulders, knees, joint in general move from where their supposed to be and my muslces do the same thing i ignored it for awhile thinking it was all in my head sometimes my ligaments twist my joints crack alot Ehlers-Danlos is a coexisting condition with CFS. The above things sound like Ehler's Danlos. http://en.wikipedia.org/wiki/Ehlers%E2%80%93Danlos_syndrome (chronic fatigue may be a symptom of EDS too) i get constant pain in both sides of my jaw The jaw pain could be due to the fibromyalgia but another condition which can coexist with CFS is temporomandibular joint disorder (TMJ disorder) http://www.medicinenet.com/temporomandibular_joint__disorder/article.htm CFS can cause things too like rashes. I suggest to check out http://wwcoco.com/cfids/bernesx.html (as i said, i dont think you currently have enough symptoms to say you do have CFS but I do suggest you to research a little as your condition does seen to be possibly heading that way and seems to be somewhere currently between FM and CFS).
    taniaaust1 2267 Replies Flag this Response
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