Discussions By Condition: I cannot get a diagnosis.

Itching heels, legs, arms, waist.

Posted In: I cannot get a diagnosis. 23 Replies
  • Posted By: Crashoran
  • January 17, 2009
  • 10:44 PM

First let me start off by saying I am so glad this website and forum exists. I want to find out what is wrong with me.

This has been happening ever since I moved from Lubbock, Texas to Cedar Park, Texas - about 380 miles difference. I have been dealing with it for over a year and a half.

I am taking this very seriously.

My symptoms:

My legs are extremely itchy only at nighttime when I go to sleep. I have found that heat or hot water makes the itching very intense. The underside of my arms from the elbow to the upper armpit area have tiny little bumps which itch also. Several dozen on each arm. I also get these mosquito like bumps that randomly appear on my forearms. My palms and fingers get raised bumps that appear transparent and have a clear fluid inside. The fluid is released when scratched too much. I get bumps that feel like mosquito bites around my waist.

And most importantly - MY FEET AND ANKLES. FOR THE LOVE OF GOD if there is anyone out there who is experiencing the same thing please help me. The backsides of my ankles begin to itch at night, and then after the scratching begins these white bumps appear in hives and itch like there is no tomorrow. Here is what the back of my ankles look like when itching:

Right heel:
http://img.photobucket.com/albums/v40/Crashoran/photo-1.jpg

http://img.photobucket.com/albums/v40/Crashoran/photo3.jpg

Left heel:
http://img.photobucket.com/albums/v40/Crashoran/photo2.jpg

These bumps also appear in small numbers around the top and sides of the foot. The itching spreads up my legs and also my knees are a very intense spot of itching. I scratch and lose hours of sleep. Last night I didn't fall asleep until 7A.M. this morning.

I assume these raised white bumps are all over my legs, but it is hard to tell due to being a pretty hairy person all over. I can feel some.

Docs do not know what this is and have only suggested hydrocortizone cream. This is unrealistic. I cannot afford to buy so much of this cream to cover my entire feet, legs, knees, arms, and waist every night. I have tried it in the most intense spots and it helps some but not to the fullest extent.

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23 Replies:

  • bump for some hope :(
    Crashoran 3 Replies
    • January 20, 2009
    • 08:13 AM
    • 0
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  • Have you tried antihistamines? Looks like a good old fashioned case of hives to me. Or it could be scabies due to the watery like blisters.Good LuckPamela
    pamelasmc 82 Replies
    • January 20, 2009
    • 03:04 PM
    • 0
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  • i'm dealing with the same thing. not so much on my ankles, more so on my legs, hands and torso...:( it is a nightmare!!!
    Anonymous 42789 Replies
    • February 22, 2009
    • 11:35 PM
    • 0
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  • I can't take this very much anymore...it drives me insane :(
    Crashoran 3 Replies Flag this Response
  • this looks like it could be flea bites, as you said this only started when you moved, something like cat fleas will live in carpets, floorboards, skirtings & furniture, if it was this treating yourself alone would not be enough, you would also have to treat all surfaces, also bedding & clothing. Maybe you have never had cats there but previous occupiers may have. You can buy lotions for yourself & it would be best to call pest control to find out best way of killing anything off that may be in areas that you can not reach.......talk to them anyway they will be able to advise you. Oooooh & this can happen to anyone, so don't worry about it you could well have inherited this problem, of-course it may not be this but worth a try. Best wishes.......:)
    Tootsie 628 Replies Flag this Response
  • Is the rash symmetrical?(Does one side of your body look like the other?)Your heels certainly do.If so,it's almost surely a skin allergy-to food or something else in your environment.Do you take any meds?That's a common cause of skin allergies.Do you have a history of asthma or hayfever?
    richard wayne2b 1232 Replies Flag this Response
  • me and my mate are really itchy too. we've had it for 4 weeks. all the symptoms are the same. we've been told by the doctor it isn't scabies and we took a course of allergy tablets and it didn't help. we are really confused as why we both have it and wonder if it is contagious xall this scratching is making me itch.
    Anonymous 42789 Replies Flag this Response
  • Could be a circulation-related issue. My mom had the same thing. Acupuncture sorted it out for her.
    NeverGiveUpBoy 26 Replies Flag this Response
  • I'm not sure if you've already tried or this has been mentioned... Have you had allergy testing done? Have you ever kept a food diary to see if anything triggers it off ? They look so very very painful and I hope you can figure out what's causing them Sammyhttp://www.undiagnosedillness.org
    Anonymous 42789 Replies Flag this Response
  • I've been dealing with this for the past month now. I feel like I WILL GO INSANE!!I went to a general practitioner and made the mistake of telling her I was HIV positive. I don't know how she became a doctor, because she was really quite stupid. But she couldn't let go of the idea that this was somehow linked to HIV, "because she knows people with HIV sometimes have rashes." Umm, yeah, if they're on their deathbed or something with thrush. But this doesn't happen anymore due to the advent of advanced therapies and medications. So, she referred me to my HIV doc.HIV doc said what I had was dry, itchy skin, with dermatographia. Dermatographia is a condition in which lightly scratching your skin causes raised, red lines where you've scratched. Duh. Moving on to HIV, and end of discussion with HIV doc about itchy skin.I tried tons of lotions, thinking this was dry itchy skin. Asking myself, WHY the ***l is this not working?!? There's no flakiness... it's not any drier it ever has been. why the f is it so freaking ITCHY?!!I thought I was allergic to something, until I scrolled all the variables like wheat gluten in my mind and realized my diet hasn't changed in 4 years. I learned that the epidermis requires a slightly acidic PH and thought my alkalized water might be at fault, so I switched to non-alkalized, double-filtered water with no results. I do everything that's prescribed for dry skin, feels fine for an hour or two... and then it starts again.Tonight, the effing itching woke me up in the middle of the night so bad that I had to apply the stupid sarna lotion the first doctor gave me. Wait for half an hour for the burning/cold sensation of the menthol/camphor to subside, go to sleep. Wake up a few hours later in a fit of itching that's even more intense. So, I go to my laptop and ramp up my google searches for the symptoms, of which there are not many. I have no rashes, and any red bumps appear because I've been scratching so furiously. The only indications are:- bumps/blisters on my hands, fingers, and in the webbing between my fingers- a weird, raised line on one of my fingers- intense itching that started on hands, went up arms, hit the groin/thigh area, knees joint, ankles, and now stomach and chest. I'm not imagining this sh*t; it's spreading!And the only thing I could find that conformed to all of these symptoms is scabies. And there're over the counter remedies for this, but apparently the bugs are likely to be resistant to most of them.I bought tea tree oil this morning because the itching just WOULDN'T STOP, and I'd read that it has like 10 simultaneous benefits -- anti-itch, inhibits the pain receptors, anti-microbial, anti-fungus, anti-bacterial, and is being used to treat and cure Australian aboriginals whose population is chronically infested with scabies. So I tried it, and it's almost like alcohol; it absorbs almost immediately into the skin... and then.. silence. The itching stopped. My skin felt better almost immediately. And I've been applying it to other areas. The itching has pretty much stopped and I put it on over 12 hours ago. I'm going to keep using it and hope that it cures this horrible problem.The bottle I bought at CVS for .5 oz cost $7 - way too muchThe bottle I bought at Target later on for 2 oz cost $8 - not good, not great.I just bought a 32 oz jug of it on ebay for $45 after shipping, which is a significant savings over all the others and should last me forever, since tea tree oil is like a skin care panacea.But if this doesn't cure it after a week, I'm going to the derm doc and having him prescribe the oral meds they use on animals.
    NirvanicSunshine 4 Replies Flag this Response
  • I've been having very very similar symptoms. My spots are usually on my feet and hands, but I have had them pretty much everywhere at this point except from the stomach and genitals. I have been seeing a doctor about all of this as well. I have no history of allergies, but when given Zyrtec and Zantac to treat the rash, I had hooooorrrible reactions to both. I then got hives all over my body of a different sort, which is strange considering I have had both of these medications previously. My white blood cell count is high as well as my bilirubin, so I'm having to undergo more testing because it could be something like leukemia or some sort of cancer. Plus, I am getting these hives daily, and have just randomly grown allergic to allergy meds. Your picture is the only picture I found on the web after 10+ hours of searching now that resembles mine. I'm supposed to find out more about my test results tomorrow, but have already tested high on WBC and bilirubin on two tests now, and the third is the confirmatory one. Have you been to a doctor at all for any of this? How long has it been going on? Mine has been persisting for 3 months or so. The hives last for a few hours then disappear, which is also stumping the doctors. Plus, I get the hives multiple times a day. It's not something I'm eating nor is it something I have come into contact with. I was also treated with anti-viral medications just in case, but the rash continues. It has now, after 3 months, spread to my face and chest as of today. I'm getting so tired of this! I just signed up for this board when I saw your post, so I'm not really sure how to upload. Hopefully the following links will generate pictures or at least be able to get clicked to show you. http://img117.imageshack.us/gal.php?g=38749894213401821610.jpg http://yfrog.com/3938749894213401821610jx
    ade0028 1 Replies Flag this Response
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  • If you have blisters forming on the top of your hands around your fingers and in the webbing, intense itching that gets worse and wakes you up in the early morning hours, have red dots in areas of itching, and no lotions or creams seem to help, and it only spreads (albeit slowly), and/or have raised lines on your skin, you probably have scabies.The itching is caused by an allergic reaction to eggs being laid in the skin, not the action of the mites.I cured mine by bathing in about an ounce of tree tea oil (to kill mites and stop itching), and a couple ounces of almond oil (to heal the damaged skin and keep it moisturized) everyday for about 7-10 days. Then I washed piece of cloth that had come in contact with my body, and bathed again to make sure.It's been about a week since I've taken the last bath and I don't seem to have any problems.
    NirvanicSunshine 4 Replies Flag this Response
  • I have exactly the same thing but only on one heel! It is exetremly uncomtable and very itchy !
    Anonymous 42789 Replies Flag this Response
  • I think i am experiencing the same thing!though my problem began once i got a tattoo on my foot..the docts thing that it is an allergy to the ink that was used... but i don't think so...have u tried using benadryl cream for the itching? i helps me a little.. i also have them all over the place.. manly on my elbows and lower legs but they pop up everywhere. what i found that helps is (i know it sounds crazy) but when the itching is really intense ii take rubbing alcohol (70%) and i put some on. it really does stop the itching (beware that if u scratching it will burn). also i found that it gets really itchy where my cloths rub my body (knees, elbows, belly). Therefore i have to wait for an allergy test to determine if i may b allergic to a type of clothing material, also u might want to demand a patch test to see if its a contact dermatitis...Good luck!
    Anonymous 42789 Replies
    • October 21, 2009
    • 10:05 PM
    • 0
    Flag this Response
  • First let me start off by saying I am so glad this website and forum exists. I want to find out what is wrong with me.This has been happening ever since I moved from Lubbock, Texas to Cedar Park, Texas - about 380 miles difference. I have been dealing with it for over a year and a half.I am taking this very seriously.My symptoms:My legs are extremely itchy only at nighttime when I go to sleep. I have found that heat or hot water makes the itching very intense. The underside of my arms from the elbow to the upper armpit area have tiny little bumps which itch also. Several dozen on each arm. I also get these mosquito like bumps that randomly appear on my forearms. My palms and fingers get raised bumps that appear transparent and have a clear fluid inside. The fluid is released when scratched too much. I get bumps that feel like mosquito bites around my waist. And most importantly - MY FEET AND ANKLES. FOR THE LOVE OF GOD if there is anyone out there who is experiencing the same thing please help me. The backsides of my ankles begin to itch at night, and then after the scratching begins these white bumps appear in hives and itch like there is no tomorrow. Here is what the back of my ankles look like when itching:Right heel:http://img.photobucket.com/albums/v40/Crashoran/photo-1.jpghttp://img.photobucket.com/albums/v40/Crashoran/photo3.jpgLeft heel:http://img.photobucket.com/albums/v40/Crashoran/photo2.jpgThese bumps also appear in small numbers around the top and sides of the foot. The itching spreads up my legs and also my knees are a very intense spot of itching. I scratch and lose hours of sleep. Last night I didn't fall asleep until 7A.M. this morning.I assume these raised white bumps are all over my legs, but it is hard to tell due to being a pretty hairy person all over. I can feel some.Docs do not know what this is and have only suggested hydrocortizone cream. This is unrealistic. I cannot afford to buy so much of this cream to cover my entire feet, legs, knees, arms, and waist every night. I have tried it in the most intense spots and it helps some but not to the fullest extent.Hi, I live in the Uk and get these well used to any how, I was diagnosed as having Symatisation, basically although I do not feel stressed I am and my body makes symptoms i am completely unable to control these include exactly the same rashes that you have, i get them every where including my palms if i do not take my medication. Over here it is called amitryptilene and is also used to control migranes and stress. Hope this helpsLeanne
    Anonymous 42789 Replies
    • November 8, 2009
    • 06:24 PM
    • 0
    Flag this Response
  • wow, so i have been looking for such a long time to find out something about this. all of your symptoms are exactly what i have. see the thing is back in march we were living with this guy that said he had scabies, so when this all started i went to the dr. to see if i had scabies as well. that was a big no. so my question is what the heck are these annoying itchy blister type things? right now they have decided to itch mainly on my stomach. i found that they are "heat activated" if i get hot from walking or if i sit crossed legged, then where i had skin on skin contact i would get these crazy itchy bumps. also i found that they transparent blisters like the creases of your body. such as elbows heels fingers and such. the only thing that i have done to relieve some of the feeling when it starts up is to rip of the head of each bump, it might hurt for a sec, but then the itching stops, i thing that clear fluid in there is the main cause for all the itching, because if you just sit and scratch you are spreading that clear fluid right? idk, i just wish someone knew what the heck these were, i have been dealing with them for far to long now.
    Anonymous 42789 Replies
    • October 10, 2010
    • 07:19 PM
    • 0
    Flag this Response
  • I get that too but just on my heels and front like the picture you have i dont have it in the summer cuz i dont wear socks.. i mostly wear flip flops but once i start using shoes and sock i get itchy my socks are low cut ones to so im not sure if im allergic to socks or shoes... maybe your allergic to detergent or dryer sheets cuz you say you have in by your armpit idk maybe even cotton
    Anonymous 42789 Replies
    • October 19, 2010
    • 10:51 PM
    • 0
    Flag this Response
  • I get this too!Recently when I had one of these spells I got itching or burning in my skin during and after urinating.I just found out that I have a stone stuck in my ureter because of hematuria.I don,t know yet if my skin symptoms are related or not to my urinary condition but hopefully getting the stone removed will end my skin problems.It is ironic that I actually have more suffering every time I get a nick in my skin then I have from this stone.:cool:
    bigboy 64 Replies
    • October 21, 2010
    • 01:47 AM
    • 0
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  • you must consult ayurvedic doctor.the best i know is dr sumita prajapati who also has clinics in usa.her contact details are at her website www.aayushanti.com
    Anonymous 42789 Replies
    • October 21, 2010
    • 00:05 PM
    • 0
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  • I have the same. Mine is also a long story. Also heat activated. Bumps itch behind legs. Raised with fluid. Started in my crotch. Then behind my knees. Then to my arm pits.
    I mixed my own permethrin witotion. The next day bumps all over sides of my stomach. I had one dr. Say I did have scabies. Another said no. Once I did it the itching slowed and stopped spreading. I think it is a new mite. It all started with several bites in 9 places that itched like mad. Oat meal really helps.
    Anonymous 1 Replies Flag this Response
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