Discussions By Condition: I cannot get a diagnosis.

Itching all over - what can this be???

Posted In: I cannot get a diagnosis. 32 Replies
  • Posted By: Anonymous
  • November 29, 2006
  • 05:02 AM

I have been severely itching all over for almost 2 months now - the doc first thought it was scabies (eewww) and treated me for it with a medrol pack and the itching returned after the medrol pack was done - now he suspects something else. Today I got bloodwork - what diseases can cause itching all over - I also have a Dermatologist appt on Thurs. No apparent rash - no environmental changes just horribly itchy!!!! Anyone ever have this ??

Reply Flag this Discussion

32 Replies:

  • H8PFjrI've had this for almost 5 years now along with severe flushing. I was diagnosed by two doctors with carcinoid cancer and by 3 doctors with mastocytosis. I don't know which one I have or if I have either. No one seems to be able to diagnose me. I can certainly sympathize with you. Thusfar, I have no definite answers.
    Anonymous 42789 Replies
    • November 29, 2006
    • 04:57 PM
    • 0
    Flag this Response
  • How is your digestion? Do you have any lung issues, like asthma or allergies? Does your skin bleed when you scratch? Any skin eruptions? Check for Candida...this can cause skin eruptions and severe itching. Also parasites, which often go hand in hand with candida fungal overload. Do this test: first thing in am spit into a glass of water. If you see ropey strings coming down, or sandy sediment at bottom of glass, you may have candida overload. Candida is normally found in the gut, but with antibiotic or birth control use it can grow abnormally and cause all kinds of problems. Check out www.candidafree.net. An oatmeal bath can be very soothing to the skin.Hope this helps.
    acuann 3080 Replies
    • November 29, 2006
    • 06:05 PM
    • 0
    Flag this Response
  • thanks so much for your responses
    Anonymous 42789 Replies
    • November 29, 2006
    • 08:42 PM
    • 0
    Flag this Response
  • HI Unregistered~Have you gotten an answer to your itching?I had severe itching for 6 months...2 different dermatologists with 2 different diagnoses (Atopic Dermatitis vs Eczema).Nothing they gave worked.Finally went to my GP due to some soreness in my neck (this was 6 months after itching started and no help from Dermatolotist).He sent me immediately for a CT SCan and I was diagnosed the next morning with Hodgkin's Lymphoma. Up to 40% of Hodgkin's patients will have the itch preceding diagnosis.I hope you're okay.
    Hopingforamiracle 1 Replies Flag this Response
  • I'm also suffereing from pruritus, but the general description is vague and could be many things, hence I'm still waiting for something to work or...worst case a HL or NHL diagnosis. (Some things I have read say only HL causes itching)I was wondering if you, as one who experienced it firsthand if you could describe it in your case. There are so few details describing it on a per person basis: was it in your lower legs, arms, torso, your chin and head only? Was it localized near what ended up being an infected node, or was it throughout the body. Was it preceded by any arm or joint or muscle pain? If you scraped the the skin did it remedy that location, or did it keep coming back anyway?Was it a deep itch or persistent surface tickle/itch?You might notice I have some experience describing these things...but haven't mentioned which details I have or do not have.:)Thanx a bunch.
    glennb 2 Replies Flag this Response
  • 37 MaleI'm also suffereing from pruritus, but the general description is vague and could be many things, hence I'm still waiting for something to work or...a good diagnosis or ...worst case a HL or NHL diagnosis. (Some things I have read say only HL causes itching)I was wondering if anyone diagnosed who experienced it firsthand if you could describe it in your case. There are so few details describing it on a per person basis: was it in your lower legs, arms, torso, your chin and head only? Was it localized near what ended up being an infected node, or was it throughout the body. Was it preceded by any arm or joint or muscle pain? If you scraped the the skin did it remedy that location, or did it keep coming back anyway?Was it a deep itch or persistent surface tickle/itch?I can tell you this, it all started with mild right shoulder pain, has been going on for almost three months. The shoulder itched and I would scratch my skin badly. Now under my chin, right side atop my head, right shoulder which hurts a, just below the knee, just above waist in back.The itching in a splot stops only after I lose my temper and deep scratch, drawing some blood. Then, no more itching but a red X to mark the splots.Blood tests all negative except for minor inflamation enzmyes. (No kidding) Been putting body creams all over myself.No fever so far, thank goodness. I've about had it, so if I persist enough they might do an MRI of my arm.:)Thanx a bunch.
    glennb 2 Replies Flag this Response
  • Hi Glennb~My itching began initially on my hip- and then spread within a couple of weeks and it was on my legs. Within almost 2 months, it was almost all over my body- except for my face. Certainly, the worst areas were: my arms, back, lower legs, chest, buttocks, and the lower area of my scalp. I've read on my Hodgkin's eMail list that others have had itching around where the effected nodes are, but mostly it can be anywhere.The itch was a persistent deep itch. Accompanied with little bumps. It was like having numerous mosquito bites. People would tell me not to scratch it, but I couldnt' help it- it was sooo intense! Before I knew the cause, I tried all the creams they gave and prescription antihistamines. Nothing worked but Prednisone, which they'd only keep me on a short amount of time. Even if I were to scratch it, it didn't resolve the itch, but the itching also came in waves- where all of a sudden I'd have an itching frenzy! During the course of a day, though, there's only me a total combined time of maybe 2 hours TOTAL that I wouldn't be itching. When I was in a frenzy (few times a day) I couldn't focus on anything but the itch- I remember needing to end my reading sessions with son and once needing to leave a wonderful restaurant because I couldn't just "NOT ITCH". The iching gets worse for most when you have alcohol. There was a moment or two (before diagnosis) when I felt some chest discomfort after drinking just 1-2 drinks. The discomfort wasn't so great and I just minimized it, thinking I was just going out of my mind- since that's how it felt when dealing with the itch with no treatments working.Hodgkin's Disease cannot be diagnosed with a blood test. They saw mine on the CT Scan. I've never had an MRI- and I haven't heard of any other person being diagnosed with HD/HL using an MRI. Not sure why- I'm not familiar with all of the radiation techniques (MRI vs CT). If you're concerned that it MAY be HD, I'd certainly recommend a CT Scan just to rule it out. I wish I had mine sooner (but no one recommended it) and it wouldn't have become so large as it had. They'd see HD/HL on a CT Scan and it just takes a few minutes. After they saw it on the CT, I needed to have a biopsy the next morning to confirm the diagnosis and get more specific infor re: the mass.I had a very large mass (10.4cm x 7.5cm x 13.5cm) and I never had any other symptoms but the itching for 6 months- until just a couple of weeks before diagnosis. Two weeks before diagnosis had some soreness in my back that I attributed to picking up my two children. It spread to my neck with some swelling just two days before diagnosis. Went to my GP to ask for pain meds (I thought I had a pulled muscle and it hurt so bad on my neck!) and he then sent me immediately for the CT.Best of luck- and keep us updated!Danielle, 37Nodular Sclerosis HD Stage II Diagnosed 07/07/06Began ABVD Chemo: 07/15/06Completed ABVD (#12/12): 12/20/06Clean PET Scan: 1/31/07Completed Radiation: 3/22/07
    Anonymous 42789 Replies Flag this Response
  • Sorry...wanted to add one more thing:When the itching began they first treated it with some meds, thinking it was Scabies, but after 10 days their testing came up negative for Scabies.Also underwent a significant Patch Test with the dermatologist to test for any allergies. Not allergic to anything.Used creams, lotions and antihistamines- and even UV light therapy to treat the itch that the dermatologists said was due to "eczema" or "atopic dermatitis" (even though I had no history whatsoever of skin disorders. Oh well....
    Anonymous 42789 Replies Flag this Response
  • Hi Glennb~My itching began initially on my hip- and then spread within a couple of weeks and it was on my legs. Within almost 2 months, it was almost all over my body- except for my face. Certainly, the worst areas were: my arms, back, lower legs, chest, buttocks, and the lower area of my scalp. I've read on my Hodgkin's eMail list that others have had itching around where the effected nodes are, but mostly it can be anywhere.The itch was a persistent deep itch. Accompanied with little bumps. It was like having numerous mosquito bites. People would tell me not to scratch it, but I couldnt' help it- it was sooo intense! Before I knew the cause, I tried all the creams they gave and prescription antihistamines. Nothing worked but Prednisone, which they'd only keep me on a short amount of time. Even if I were to scratch it, it didn't resolve the itch, but the itching also came in waves- where all of a sudden I'd have an itching frenzy! During the course of a day, though, there's only me a total combined time of maybe 2 hours TOTAL that I wouldn't be itching. When I was in a frenzy (few times a day) I couldn't focus on anything but the itch- I remember needing to end my reading sessions with son and once needing to leave a wonderful restaurant because I couldn't just "NOT ITCH". The iching gets worse for most when you have alcohol. There was a moment or two (before diagnosis) when I felt some chest discomfort after drinking just 1-2 drinks. The discomfort wasn't so great and I just minimized it, thinking I was just going out of my mind- since that's how it felt when dealing with the itch with no treatments working.Hodgkin's Disease cannot be diagnosed with a blood test. They saw mine on the CT Scan. I've never had an MRI- and I haven't heard of any other person being diagnosed with HD/HL using an MRI. Not sure why- I'm not familiar with all of the radiation techniques (MRI vs CT). If you're concerned that it MAY be HD, I'd certainly recommend a CT Scan just to rule it out. I wish I had mine sooner (but no one recommended it) and it wouldn't have become so large as it had. They'd see HD/HL on a CT Scan and it just takes a few minutes. After they saw it on the CT, I needed to have a biopsy the next morning to confirm the diagnosis and get more specific infor re: the mass.I had a very large mass (10.4cm x 7.5cm x 13.5cm) and I never had any other symptoms but the itching for 6 months- until just a couple of weeks before diagnosis. Two weeks before diagnosis had some soreness in my back that I attributed to picking up my two children. It spread to my neck with some swelling just two days before diagnosis. Went to my GP to ask for pain meds (I thought I had a pulled muscle and it hurt so bad on my neck!) and he then sent me immediately for the CT.Best of luck- and keep us updated!Danielle, 37Nodular Sclerosis HD Stage II Diagnosed 07/07/06Began ABVD Chemo: 07/15/06Completed ABVD (#12/12): 12/20/06Clean PET Scan: 1/31/07Completed Radiation: 3/22/07? I am curious as to why you say " Hodgkin's Disease cannot be diagnosed with a blood test." When THAT is exactly how it is diagnosed. The Dr needs to do a complete CPC and look for Reed-Sternberg cells....
    Anonymous 42789 Replies Flag this Response
  • One of the things that is often overlooked in regards to severe itching (especially in women) is hormone imbalance, specifically low progesterone. If you have had any type of surgery on your "female bits" you are really at a much higher risk of severe reactions from a change in hormone levels. It used to be that women would be given estrogen supplements, but over the last 30 years more and more doctors are recognizing that it's the progesterone that is lacking in women due to all the xeno-estrogens that we are exposed to environmentally. Even if you haven't had a hysterectomy or other related surgery, you still may benefit from natural progesterone replacement. Our progesterone levels tend to drop as we age, and all manor of symptoms result. Be careful that if you DO decide to supplement, that you get a good quality NATURAL progesterone, not a prescription "progestin" as that is another creature entirely and has harmful side effects (but of course makes money for the pharmaceutical companies). ;)I've used natural progesterone for several years with great benefit. I'm currently using a brand called Renewed Balance that I purchased through www.allaboutparasites.com/renewed-balance.html and have found it to be the best so far. Anyway, if you think hormones may have anything to do with your itching based on your age or situation (female problems), it's certainly worth trying it. Natural progesterone doesn't seem to have any negative side effects that I've been able to uncover, and it has a lot of benefits besides the usual help with PMS or Menopausal symptoms. My mom's been using it for years to help improve her bone density. Hope this helps someone! :)
    Anonymous 42789 Replies
    • February 28, 2009
    • 05:07 AM
    • 0
    Flag this Response
  • Scabies is not treated with a Medrol dosepack.In fact,it can make it worse!Is that all he gave you?
    richard wayne2b 1232 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Also,the doctor should have told you to wash all linens and bedclothes in hot water.
    richard wayne2b 1232 Replies Flag this Response
  • hi guys, Any help/suggestions would be most appreciated...diagnosed with POST-Scabies2 years ago i had scabies 100%.. following the regular head lice/scabies body lotion treatment (i forget which brand) I’ve never seen any visual signs of scabies. After the treatment for around 4 weeks i was still inching but this died down HOWEVER i never really stopped itching completely so i re-treated my whole body 2-3 months later. Still 18mths on I’ve put up with mild/irregular itching episodes on the basis our bodies peel/flake/shred skin and most likely this is causing the on-going itch.. Last week i broke out with a rash in my genital area and although that’s not itchy at all the rest of my body especially face, nose, scalp, arms and legs are very itchy but no visual bumps, humps, dots nor anything. Upon visiting the doctor 2 nights ago he seems to think its a fungal infection and the still visible rash was checked by him and confirmed not scabies or STD related. He has given me:*Unitrac 100mg (14 100mg Itraconazole capsuals - 2 per morning)*Aerius (Desloratidine) 5mg tablets - 1 every morning (An ANTI-HISTAMINE DRUG)*Gentrisone 10GM Tube of cream to apply twice a day to the rashThe doctor tells me he is treating several patients for POST-Scabies. He seems to think although scabies is treatable, on-going itchiness can last forever as a fungi but is possibly treatable with Histamine up to 5 years after the initial breakout of scabies.Personally I’m a little concerned I’m going to throw good money after bad before we get to the real reason HENCE any help would be gratefully appreciated at this time.Kind regards k
    Anonymous 42789 Replies Flag this Response
  • I have the same problem and my doctor said " it was winter weather and it was a common complaint and this year was pretty bad and that his wife had the same problem."Absolutely unacceptable answer!!!! That was two years ago .I did research tons finally I came across earthclinic.com to find immediate relief I began using advanced therapy dry skin treatment I bought it at Walgren's also sold under other names Aquaphor or Eucerin. Anyhow I put the cream all over my body after a shower in the morning and after my shower at night But of course that does not address the cause . So I realize doctors are so busy and really don't have time so I started to look for the cause and I found out that there was a strong possibility it was nanoinsect that has to magnified 400x to see it . They are called demodex mites. I got my microscope out, some sildes and identified it and treated myself I went through the regime noted on the site and it worked! However I'm not saying that this is your issue and it appears that there are so many possibities and sometimes the western model has answers and sometimes they don't. You have to sometimes look at alternative methods
    Anonymous 42789 Replies
    • November 25, 2009
    • 04:04 AM
    • 0
    Flag this Response
  • so how did you all get rid off the iching?? i'm iching so much i sometimes make myself bleed. the doc thought it was scubies*, but it wasn't. just want to stop iching, driving me crazy. thank you
    Anonymous 42789 Replies
    • December 14, 2009
    • 09:22 PM
    • 0
    Flag this Response
  • Im 23 year old female and about two weeks ago I have started itching badly. It suddenly happened one night when I was in bed and the back of my head started itching, then my arms, back - everywhere. Now everyday I am itching. I'm scratching my legs untill they bleed and my back is so itchy I have to go at it with a hairbrush. Even as I am writing this my hip is itchy. It's driving me mad. Ive not changed the washing powder or using new toiletries. Eveything is the same apart from the fact that my husband and I are trying for a baby, but I dont see how that can be a factor. My face, neck and "downthere" dont itch, just my body. I've not been to doctors yet. Does anyone have any ideas? Thankyou
    Anonymous 42789 Replies
    • January 2, 2010
    • 11:50 PM
    • 0
    Flag this Response
  • I have been severely itching all over for almost 2 months now - the doc first thought it was scabies (eewww) and treated me for it with a medrol pack and the itching returned after the medrol pack was done - now he suspects something else. Today I got bloodwork - what diseases can cause itching all over - I also have a Dermatologist appt on Thurs. No apparent rash - no environmental changes just horribly itchy!!!! Anyone ever have this ??I had this too, my skin was horribly itchy all over and I'd get horrible welts and it seriously looked like I had ringworm sometimes, I went to see a doctor five times and it took the last go to diagnose that I was allergic to dogs.I don't even have to touch one and I get the horrible itch and rash (I don't always get the rash, but sometimes I do).Have you been tested for any allergies?
    Anonymous 42789 Replies
    • January 11, 2010
    • 04:17 AM
    • 0
    Flag this Response
  • I'm 14 this year. I'm facing the same problem. My leg itch everyday and i tend to scratch them and they leave scabs on my leg. Now my leg is full of scabs..(only the ankle part). Everyday my leg will itch (different place)..its like after 4 hours...they'll be itchy (mainly on the scabs or maybe above it). I've been facing this problem since last 2 weeks...i applied the cream that the doctor gave and nothing happen at all...i finished using the cream and bought another...but its useless...Anyone got any idea why is it happening?
    Anonymous 42789 Replies Flag this Response
  • HI TAKE A LOOK AT ALL THE LINCHEN DISEASES ---I HAVE PASTED THE PAGERS TO MAKE IT EASYER FOR YOU TO READ http://www.dermnet.com/ http://www.dermnet.com/Lichen-Planus-Drughttp://www.aad.org/public/publications/pamphlets/common_lichen.html 1--IT CAN BE FROM --MEDACATION --LINCHEN PLANUS2--- STRESS---- lichen simplex chronicus---- :p A ITCH THAT WILL NOT GO AWAY. ---AND SO THE LIST GOES ON BEST YOU READ AND SEE IF ANY MATCH YOUR PROBLEM
    charmaine petzer 176 Replies Flag this Response
  • ive been itching all day i took a shower and it stopped for a while then it cxame back its so annoying i put lotion on and benadryl spray to stop the itching but still doesnt work help it itches
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.