Discussions By Condition: I cannot get a diagnosis.

It keeps getting stranger. Please help if you can.

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: lizzi9983
  • February 22, 2008
  • 11:35 AM

Okay, I know I post quite a bit but you guys help me and for that thank you.
I did go back and got a MRI of my brain.

The results are Single Vague nonspecific area of hyperintesity puncatate sized in the posterior right partial lobe is noted. Demyelination is considered unlikely.This finding may be seen in patients with migraines symptoms and vasculitis is a consideration. Microangiopathic infract is also considered less probable.

I do have allergies, not very much it doesn't even bother me that much. I took an allergy test and it was all 1 out 4. I also have migraines, but they really are not that server. They respond to migraine medicine.

I had a MRI in Feb.2007 and nothing showed up now I just had one again in Feb.2008. They found clonus in November of 2007.

I have issues with my thyroid, have a contesnt sinus infection, stabbing heart pain, constently throwing up at least 3 times a week, pain in my joints, and what feels like arthritis in my wrists and ankles. My left eye has pain behind it. My left side is alot worse. My left overy is so bad that I fold over when I try to bend. I contstly have a headache.I think it is just a sinus headache but still. I have cold feet always, but it is not blue.Plus, i turn colors. I turn red in heat and is yellowish skin. But my liver is good. Plus, I shake and sizure sometimes.

i don't what that means. I have been tested from arthrits, to kowski's diease,lupus,diabetes all is negative.I have had my glucose tested and is fine, my hebogalbin is fine.

What seems to help is asrpin and red wine. I drink it and I get feeling in my feet and wrist. My pain seems to lessen a little bit, I would say about 45% better. Much better than any other medicine.

If you have any idea what is going on, please tell me. Thank you. Liz
Vitimin B is fine, Salt is fine,

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  • What seems to help is asrpin and red wine. I drink it and I get feeling in my feet and wrist. My pain seems to lessen a little bit, I would say about 45% better. Much better than any other medicine. If you have any idea what is going on, please tell me. Thank you. LizVitimin B is fine, Salt is fine, "grapes are great Anticoagulant. Chemicals in grapes can help thin the blood, somewhat the way aspirin does, preventing clots that provoke heart attacks and strokes. Recent research by John Folts at the University of Wisconsin-Madison Medical School suggests that drinking two 6-ounce glasses of red wine can reduce blood platelet stickiness, and thus the tendency to form hazardous clots, by 40 percent within 45 minutes. Grape juice also works, he says, but it takes three times as much purple grape juice for that same benefit. " It's interesting that both the things which help you.. asprin and grapes.. both thin the blood. I suggest you have a SPECT scan.. to see the blood flow in your head (MRI doesnt do that). If brain isnt getting a good blood flow due to whatever cause.. one would expect headaches, shaking, seizures.. and possibly other symptoms depending on what part of brain flow is affected in. Also maybe ask doctor for thrombosis evaluation test or other relevant testing. I have MTHFR polymorphism.. which affects blood flow. This wasnt picked up on the regular tests till i found out about it via thrombosis evaluation test (my previous a bit off blood tests.. dimissed my blood clotting a bit quicker than normal due to them putting it down to lab error). You could have what is sometimes called "sticky" blood. (there's a special name for this kind of blood issues..but i cant think of it right now). ................... addition.. maybe low blood flow would cause punctuate lesions? (it was lesions you were talking about before? im not a medical person so trying to make sense of the medical words you used) I just thought of one of the words i was trying to think of before. hypercoagulability.. make sure your doctor tests you for that. I suggest to tell him the wine and asprin seems to help and bring to his attention if he dont know, that wine is an anti-coagulant.
    taniaaust1 2267 Replies
    • February 22, 2008
    • 00:57 PM
    • 0
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  • What are the problems with your thyroid?I had a hard to diagnose neurological illness and was worked up for MS multiple times. They also found the small round spots on my MRI consistent with migraines/vasculitis...As it turns out, after 8 years undiagnosed, my 8th neurologist diagnosed me with a rare complication of autoimmune thyroiditis called Hashimoto's Encephalopthy. It is found by testing thyroid antibodies- hormones can be completely normal!While I had a lot of thyroid symptoms over the years, my hormone levels were always normal and my doctors reassured me my gland was healthy. After my diagnosis of HE, however, they did an ultrasound and my thyroid was full of tiny nodules from the autoimmune destruction. I was floored!Do you have autoimmune thyroiditis? Either Graves or Hashimoto's? You can get HE with either, and it is independent of hormone levels. Somehow the antibodies are related to brain inflammation that resembles a vasculitis. Many patients have subtle abnormalities on MRI.HE, also known as SREAT (steroid responsive encephalopathy associated with autoimmune thyroiditis) is very treatable with steroids.HE can produce a lot of different symptoms, and every patient is different. I had migraines, fatigue, and balance problems primarily (plus a lot of other symptoms).I think your migraines, seizures and clonus could be from HE if you have autoimmune thyroiditis... The yellow skin, cold extremities, sinus congestion, and vomiting could all by from hypothyroidism.I'm not sure if this will help or if this applies to you, but if you have autoimmune thyroiditis (positive thyroperoxidase or thyroglobulin antibodies), you may want to be evaluated for HE. Not too many doctors and neurologists know about it yet (my 8th neurologist was a movement disorder specialist), so beware!Best Wishes.
    Anonymous 42789 Replies
    • February 22, 2008
    • 10:25 PM
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  • Grapes ain't always great... for some folks certain grapes can trigger prophyria attacks. Also grapes can have sulfites in them (same goes for wine) ... which can also trigger allergic reactions for some folks. Sulphites can also trigger porphyria attacks by themselves.:eek: But at least grapes don't trigger LYME DISEASE! Note to BLAZE.:rolleyes: "grapes are great Anticoagulant. Chemicals in grapes can help thin the blood, somewhat the way aspirin does, preventing clots that provoke heart attacks and strokes.
    TaylorDeelwithit 382 Replies
    • February 22, 2008
    • 11:00 PM
    • 0
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  • Even organic wine can have sulphites. You need to read the fine print. One label, "Well Red" at Trader Joes is inexpensive, without sulphites.
    Monsterlove 2921 Replies
    • February 23, 2008
    • 02:54 AM
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