Discussions By Condition: I cannot get a diagnosis.

It Is All In My Head - Except the Answer.

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: AliciaLea
  • April 18, 2007
  • 07:39 PM

I've been to so many doctors, I don't know which way to turn. I'm hoping someone has an idea since all of the conventional methods have failed to pan out so far.

=I have headaches every day.
=I have 3-5 Migraines per month.
=I have muscle spasm pain in my neck and shoulders.
=My ears ring and sometimes the left side has pressure.
=I have insomnia -difficult to get to sleep, then wake up several times
=I'm always tired and it is difficult to wake up in the morning
=Sometimes I get light headed with no reasonable explanation.
=Last night I woke up in pain after nearly biting the tip of my tongue off - it was bleeding and today it hurts. This has happened twice so far.

>>The neurologist says, headaches happen and so do migraines - and that we may never have a complete answer.
>>The ENT says I have symptoms of TMJ, but tinnitus happens and there may never be an answer.
>>Dentist says I do not grind my teeth, that if I have TMJ it may be due to clenching, not grinding
>>Blood tests are all clean.
>>I'm seeing the OBGYN Friday to have my hormones checked?
Their current answer: Stress.

I'm not a hypochondriac and I think I take fairly good care of myself. I eat well, I exercise regularly, and I'm not over weight. I don't miss my vitamins, I drink plenty of water, I'm not on any crazy diets, and I don't drink heavily or do drugs.

I don't know what's going on, but if anyone has any ideas or suggestions, I would appreciate your input.

Thank you very much.

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8 Replies:

  • Did you have a CT of the brain yet? Sounds a bit like you might have some kind of tumor or early signs of a neuroligical problem.
    Anonymous 42789 Replies Flag this Response
  • It is possible that you might have a neck problem. This can cause difficulty in sleeping (and a lack of sleep could be the cause of a lot of your problems), as well as some of your other symptoms. A diagnosis of stress is a waste of time (and borders on pseudomedicine) unless there is an obvious reasons why you should be excessively stressed. And you would know about that. You say you drink plenty of water, but what does that mean?
    Anonymous 42789 Replies Flag this Response
  • Thanks for the response, I appreciate it. I drink plenty of water means that the dizziness and fatigue is not due to dehydration. The tongue biting thing has me a little worried because I don't understand why my tongue would be sticking out enough to bite so far back and how - in my sleep - I'm biting down hard enough to cut into it. As far as the stress is concerned, I think I manage it quite well. I am a busy litigation paralegal, I have two kids, and I go to school at night - but I eat regularly, take my vitamins, and I go to the gym in the morning. I know it sounds busy, but I do what I can to keep myself healthy and the exercise actually gives me a good hour to relax my mind. That's why I doubt the stress issue.-Alicia
    AliciaLea 4 Replies Flag this Response
  • The reason that I asked about the water was that it is possible to drink too much of it. This can deplete your sodium levels and lead to all sorts of effects. Whatever else, it sounds like you are not sleeping properly. Some people go through phases of this for some unknown reason. Some people are just like that all of the time. It is more than likely that your tongue was hanging to one side rather than sticking out and biting it might just have been a symptom of your restlessness. If you are exercising, you need to take care that this might not be exacerbating any potential neck problem. Finally, there is no doubt that stress can cause illness. Unfortunately, too many doctors use it as a cop out to cover for the fact that they haven't got a proper diagnosis.
    Anonymous 42789 Replies Flag this Response
  • Thanks, I think the stress theory is a bit of a cop-out, too. I don't think I'm drinking too much water, but I think I'll take your advice and drink gatorade after my workouts - when I'm most thirsty. I'm working on the sleep issue and hoping I'll get lucky, the neuro is deciding whether I would benefit more from an anti-depressant or some kind of mild seizure medication to treat the migraines -I've never heard of that, but then I'm not a doctor either :o) I wish I could say my tongue was to the side like that - then I wouldn't be so worried that I might bite the tip off one day. I woke up with my front teeth clamped down on the front part of my tongue. For some reason (maybe I just wasn't thinking), I didn't open my mouth and pulled my tongue back from between my teeth which made it worse - I've got a nasty blister at the tip. Thank you for taking your time to respond to my rantings. I really hate complaining - but I also really hate not having an answer. I'll ask the neuro what she thinks about my neck having something to do with it. -Alicia.
    AliciaLea 4 Replies Flag this Response
  • Alicia, there are lots of uses of antidepressants and they are supposed to have some use in treating migraines and certain types of headache. Tricyclics are supposed to be good for helping with sleep also, although I think there is some doubt over the quality of the sleep that they promote. SSRIs can actually cause insomnia and might make your situation even worse. Some anticonvulsants are accepted as treatments for migraine while others are being 'tried out' still. I think the success rate is something like 50 %. If you follow the above route, you shouldn't be frightened to give up if there are significant side effects.
    Anonymous 42789 Replies Flag this Response
  • Honey, go to www.ahummingbirdsguide.com see how many other sx you have...all the ones you listed are there...good luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • thanks mommy cat. I went to the site and read about ME!. It's like they followed me around and recorded my life. It's incredible. Now if I can just remember the name long enough to see my doctor! I'd write a note to myself buy I'd just forget that as well. grrrrrr. this may not be the answer for me but hey, it's something to look at.
    greyladymae 5 Replies Flag this Response
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