Discussions By Condition: I cannot get a diagnosis.

It has been 8 years and nothing..

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • October 27, 2008
  • 04:06 AM

I am 25; I have been dealing with an annoying and recently painful eye movement condition. It is only when I look up; my left eye stays straight and my right goes up. I can strain my left eye to "pop" up but as of 2 or 3 months ago it has become very painful. Double vision is also a problem as well. Physicians that I have spoken to have ruled out a "lazy eye" because it started when I was about 17. It has become increasingly worse through the years. If it was just the eye movement issue I would not be as concerned however I also live with 24/7 vertigo, zap like sensations in my head (I have never been on any neurological or psychological medication), severe joint pain, muscle weakness, and sciatica. I once was an athlete but cannot exercise any longer because of the amount of pain I am in. My joints will be stiff in the morning but as the day progresses I get weaker and I am unable to move. My ANA levels came out negative; my acetylcholine test came out negative for Myasthenia Gravis. My blood work was normal with the exception of high white count (which is not uncommon). I had an MRI and some benign growths were found as well as some scaring but my neurologist would not test for anything else. The pain and the muscle weakness esp in my eye has become worse everyday and every doctor thinks I am faking. Someone please help, I work two jobs, getting my masters but I am afraid that one day I won't be able to get out of bed anymore

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  • There is something called adult onset strabismus (lazy eye) so your doctor was just plain wrong. What worries me is your joint pain combined with your eye problem. I think you need to see a good rheumatologist or an immunologist. A couple of things to ask about: lupusgranulomatous diseasegrave's disease These are all autoimmune conditions. Some can be caused by celiac disease: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/ Try here: http://www.wrongdiagnosis.com/symptoms/diplopia/causes.htm There are also infections that can cause these symptoms, like brucellosis.
    aquila 1263 Replies
    • November 4, 2008
    • 09:03 PM
    • 0
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