Discussions By Condition: I cannot get a diagnosis.

It's like ***l on earth

Posted In: I cannot get a diagnosis. 48 Replies
  • Posted By: Ron51ca
  • April 3, 2007
  • 00:56 AM

I'm a 25 year old male:

I have been running around literally "like a chicken with it's head cut off" trying to find out what is wrong with me. I have no medical insurance which makes the situation even worse. I have been to the ER like 10+ times to no avail. I've been going to a clinic to see if they can run any more tests. All the doctors I've seen think I'm crazy because the tests are coming back as "unremarkable" The ER docs refered me to Mental Health Services, claiming it to be depression. And to top it off my own family jokes about it and makes fun of me about it. They think I'm a lazy ****r looking for attention. The truth is, I know it's not depression. Depression does not create such physical symptoms:

-Dizziness
-nasea
-muscle spasms/ twitches
-extreme fatigue, body aches
-popping and cracking pain in the back and neck
-weakness in extremities
-weight loss
-weak urine stream
-muscle atrophy (loss or wasteing)
-hair loss and thinning
-hair changing color,especially facial hair(from dark brown to orangish-red)
-trembling hands, cold hands
-cognitive problems (memory)
-spots in vision field and other visual problems
-heart palpatations

I have had all the (15) blood tests done from the hospital, including Thyroid to PSA. I've had a CT scan and MRI of the head and a CT scan of the abdomen and pelvic region. A testicular ultrasound for testicular pain which found epididymitis. I also had a swab testing for STD's. I kept finding blood on my stool so a colonoscopy was done only to discover that hemoroids was the culprit. Chest and abdomen x-rays were also done. After all these tests, the findings were epididymitis (an infection of the epididymis) and a sedimental blood test showed that my CO2 was slighty elevated. I don't have the energy to work, I'm so weak. I have completely changed my diet, I no longer eat out at restaurants. The doctor I I am seeing at the clinic doesn't want to do any more tests, he told me to seek a second opinion if I'd like. Boy I wish the roles were reversed, I can't stand this doctor looking at me like I'm crazy anymore. This is definitely the most difficult thing I have ever endured. I feel so hopeless, my own family won't take me seriously. The thought of just throwing in the towel on life has entered my mind. If anyone has any advice I'd be happy to hear it.

- Thank You and God Bless

Reply Flag this Discussion

48 Replies:

  • Hi Ron.First off, if you have no health insurance, going to the ER is a huge mistake unless it's an absolute emergency- they charge a FORTUNE. You need to be more agressive with your doctors (and your family) so they take you seriously. Your symptoms actually sound a bit like another user on this site; can't remember their name but the post is called "Unexplained Wasting Syndrome". It should be on the first few pages of this board. Unfortunately that topic didn't have an answer last I checked...you could talk to them however.In general, depression does not cause many of the symptoms you listed. Stress can, however. Stress can cause weight loss, loss of apetite, muscle twitching, etc. You mentioned a head CT - did you also try for an MRI? It can show things that CT can not. If you really wanted to make sure there wasn't a tumor or something causing this, you could ask for a PET scan, but they cost a fortune. Consider a neurologist who might be able to look into your vision/muscle related problems better. Also, consider an eye specialist. If you've only seen one doctor about all of this, that's the mistake. You need to go to specialists and, if they don't work, find new ones. Too many doctors are narrowminded and so if your symptoms don't fit inside their box, they think it's not a real problem.
    Anonymous 42789 Replies Flag this Response
  • your story sounds a bit like mine...I posted just before you under FM, 25, dizziness etc. how long has yours been going on? did you read mine?
    Anonymous 42789 Replies Flag this Response
  • Please check out this Link, there may be some help here for you. lymenet.org
    Anonymous 42789 Replies Flag this Response
  • you have ME sx as well as countless people on this site. go to www.ahummingbirdsguide.com go to symptoms page. write down the ones you have, print article and take it to Dr
    mommy cat 1654 Replies Flag this Response
  • Please.....what State do you live in?
    Anonymous 42789 Replies Flag this Response
  • Ron, I live in NY but I don't think that matters...there are people on this site from all over the WORLD having these symptoms...go to my thread Mommy cat 3-26-07 "It's a mystery until we solve it" there is info to help...read the ME site...print article and take to DR...e-mail me at bentnoseblues@netscape.net if you would like to respond in private vs. publicly in this forum...I'm a nurse, I've been sick a long time...I just found this info myself...Best to you Ron...mommy cat
    mommy cat 1654 Replies Flag this Response
  • P.S. Ron, you are not crazy and neither am I. For that matter, neither are the hundreds of people on this site with these symptoms.
    mommy cat 1654 Replies Flag this Response
  • Please.....what State do you live in?I live in California
    Ron51ca 28 Replies Flag this Response
  • Please read -http://forums.wrongdiagnosis.com/showthread.php?t=12933andhttp://forums.wrongdiagnosis.com/showthread.php?t=9052 Long threads - not exactly your case, but the answers are sooo relevant.
    Curly Stooge 319 Replies Flag this Response
  • Ron, please know that so far I have heard from Maryland, Pennsylvania and New York. Do you think you might have ME? my e-mail address is bentnoteblues@netscape.net if you would like to mail me privately instead of in this public forum...Look around this site, Ron...you are not alone there are hundreds of people on this site with ME sx ...curly here just gave you 2 links...the first one has more sx closer to yours...check it out and let me know I only know all of this because I've been sick for years...I've only started researching on my own realizing that the doctors have their wallets at heart and not my best interests...I googled some of my symptoms on symptom checkers...I added diarrhea, flushing, nightmares and nightsweats...it took me to ME...Good luck honey and mail me if you want...mommy cat
    mommy cat 1654 Replies Flag this Response
  • My doctor is still glued on the fact that he thinks all these issues are caused by depression. I've been put on Zoloft for that reason. I just started taking it, haven't seen a change yet. I know it takes up to 6 months to work. I just had a complete fecal occult test done today. I see my gastro next week. I'm going to mention Celiac disease to him. It seems my facial hair may be turning orangish-red due to malabsorbtion. My facial hair has slowly changed to this color over the coarse of 4-5 years. The reason I think Celiac may be present is because I am 1/2 Italian and I've researched that this disease is common in this race. Many of the symptoms I am having match this as well. I've changed my diet completely. I have introduced organic/raw fruits, vegetables, and nuts to my diet. I use to eat out nearly every single meal. I actually feel alot better. I think this is partially due to the fact I try and keep my mind off this illness as much as I can. The more I think about it, the more it upsets me.
    Ron51ca 28 Replies Flag this Response
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  • I'm a 25 year old male: I have been running around literally "like a chicken with it's head cut off" trying to find out what is wrong with me. I have no medical insurance which makes the situation even worse. I have been to the ER like 10+ times to no avail. I've been going to a clinic to see if they can run any more tests. All the doctors I've seen think I'm crazy because the tests are coming back as "unremarkable" The ER docs refered me to Mental Health Services, claiming it to be depression. And to top it off my own family jokes about it and makes fun of me about it. They think I'm a lazy ****r looking for attention. The truth is, I know it's not depression. Depression does not create such physical symptoms: -Dizziness-nasea-muscle spasms/ twitches-extreme fatigue, body aches-popping and cracking pain in the back and neck-weakness in extremities-weight loss -weak urine stream-muscle atrophy (loss or wasteing)-hair loss and thinning-hair changing color,especially facial hair(from dark brown to orangish-red)-trembling hands, cold hands-cognitive problems (memory)-spots in vision field and other visual problems-heart palpatations I have had all the (15) blood tests done from the hospital, including Thyroid to PSA. I've had a CT scan and MRI of the head and a CT scan of the abdomen and pelvic region. A testicular ultrasound for testicular pain which found epididymitis. I also had a swab testing for STD's. I kept finding blood on my stool so a colonoscopy was done only to discover that hemoroids was the culprit. Chest and abdomen x-rays were also done. After all these tests, the findings were epididymitis (an infection of the epididymis) and a sedimental blood test showed that my CO2 was slighty elevated. I don't have the energy to work, I'm so weak. I have completely changed my diet, I no longer eat out at restaurants. The doctor I I am seeing at the clinic doesn't want to do any more tests, he told me to seek a second opinion if I'd like. Boy I wish the roles were reversed, I can't stand this doctor looking at me like I'm crazy anymore. This is definitely the most difficult thing I have ever endured. I feel so hopeless, my own family won't take me seriously. The thought of just throwing in the towel on life has entered my mind. If anyone has any advice I'd be happy to hear it. - Thank You and God Bless I also have a facial rash, most like psoriasis.(white and flakey) if I remove the white flakes I have a stinging, itchy red rash underneath. This rash is located on my nose(both lower sides),inmy moustache area, and sometimes on my chin. (Possibility of Lupus has popped into my mind)
    Ron51ca 28 Replies Flag this Response
  • No no no, refuse that Zoloft, it's very bad for you! Please see what I wrote to another (possible) Italian here:http://forums.wrongdiagnosis.com/showpost.php?p=42115&postcount=4 And more importantly, you need to read these posts -http://forums.wrongdiagnosis.com/showpost.php?p=42284&postcount=10http://forums.wrongdiagnosis.com/showpost.php?p=42295&postcount=20http://forums.wrongdiagnosis.com/showpost.php?p=42182&postcount=18 Remember to read these external pages (in full please): www.drcarley.com and http://members.aol.com/doctorrmosk/articles/hidden.htm - thank you.
    Curly Stooge 319 Replies Flag this Response
  • Dear Ron...my original doctor was headed toward sending me for a psych eval...I'm 38, a nurse and no hx of psych in myself or my family...I'm not depressed, I don't have mental problems and I am not a hypochondriac...I have several severe sx, frequently...similar to yours...please reconsider ME after I went to new Dr few days ago and am currently being tested for it...I have gone so far as to contact the CDC and my local health dept. I am a medical professional and I felt it my obligation to inform health organizations that there is something going on here...please reconsider ME as I am learning from others here...there are many reasons for ME...Dr's have a really negative stigma of ME, chronic fatigue...it's so much easier and much less expensive to send us all to freakin shrinks than to actually listen, believe and test patients for it...If I were you, regardless, I would find a new Dr.. whether you believe you have ME or not...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Ron...please keep in mind that ME is confused with Lupus all the time as well as ithers...MS, Fibromyalgia, rheumatoid and several others...just a thought...EVERY sx you list is an ME one...Good Luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • The facial rash is probably excema, see http://en.wikipedia.org/wiki/Eczema - but be warned to stay far away from all cortizone, as found in some ointments. It makes the rash better first and then far worse. Try camphor cream (aqueous cream with camphor oil) twice daily. Don't wash the area with soap, only with water. Dab on colloidal silver (it is made with distilled water).My mother has severe excema and tiredness. She now started taking 1-2 tablespoons flax seed oil per day, mixed with cottage cheese. (It has no taste.) Some say this won't work, but the fact is, it is already working very well for all my mother's problems. Caps are no good, it has to be bottled oil, refrigerated at all times and not rancid. We had no trouble finding a good supplier. Originally it was developed for cancer patients. See www.cancertutor.com/Cancer/Budwig.html and www.beckwithfamily.com/Flax1.htmlI'm impressed with a site I found, www.westonaprice.org/askdoctor/ - I recognise easy tips there that I've been told but have forgotten again. Such as fermented bran, the secret of many healthy Africans. Be sure to read this one: www.westonaprice.org/soy/complaints.html whole page (!) and elsewhere http://thyroid.about.com/cs/soyinfo/a/soy.htm .. There is a lot of soy in commercial bread and in many other products.
    Curly Stooge 319 Replies Flag this Response
  • I agree with CurlyStooge, zoloft can be nasty and has lots of side effects and discontinuation symptoms. Please look it up on www.drugs.com and decide if it is worth taking...won't do anything for your symptoms I fear. Ron, would you be interested in trying NAET - a lot of your symptoms point to a food intolerance/allergy and also possible allergy to key nutrients, like b vitamins and calcium. NAET (Nambudripad Allergy Elimination Technique) will pinpoint this and clear it from your body. It has changed my life and I highly recommend this treatment. Visit www.naet.com for info. There is a correlation between autoimmune dysfunction and an allergic response. The brain sends signals to the nervous system and immune system and it is like a misfire or miscommunication. NAET helps correct this miscommunication between the brain and nervous/immune systems in a noninvasive way. Please look into this. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • check for selenosis.aspects of this are very reminicent of selenosis.(overexposure to selenium) and possibly other mineral or vitamin overdoses.they take a long time to recover from,and could easily create this kind of picture.(did in my case,anyway.)it is quite easy to become unwittingly overexposed.some foods are very ,very high in selenium----brazil nuts for instance.and once a hypersensitivity reaction has become established,quite small doses will serve to maintain the problem.a small helping of white fish ,for example ,could do it.if two overexposures are interacting ,say selenium and vitamin d ,(my guess here,a very broad spectrum of symptoms may be anticipated,otherwise unaccountable,and baffling.as we see here.)overdosing on vitamins and mineral supplements is increasingly common in britain.---people thinking if one is good,then four must be four times as good---and doctors are referring to it as "the american mistake."but as i have indicated,it can arise from a seemingly normal diet----brazil nuts are so healthy after all.(!)i really hope it is something daft like this which is easy to treat and with a very high rate of good outcome.
    Anonymous 42789 Replies Flag this Response
  • The facial rash is probably excema, see http://en.wikipedia.org/wiki/Eczema - but be warned to stay far away from all cortizone, as found in some ointments. It makes the rash better first and then far worse. Try camphor cream (aqueous cream with camphor oil) twice daily. Don't wash the area with soap, only with water. Dab on colloidal silver (it is made with distilled water).My mother has severe excema and tiredness. She now started taking 1-2 tablespoons flax seed oil per day, mixed with cottage cheese. (It has no taste.) Some say this won't work, but the fact is, it is already working very well for all my mother's problems. Caps are no good, it has to be bottled oil, refrigerated at all times and not rancid. We had no trouble finding a good supplier. Originally it was developed for cancer patients. See www.cancertutor.com/Cancer/Budwig.html and www.beckwithfamily.com/Flax1.htmlI'm impressed with a site I found, www.westonaprice.org/askdoctor/ - I recognise easy tips there that I've been told but have forgotten again. Such as fermented bran, the secret of many healthy Africans. Be sure to read this one: www.westonaprice.org/soy/complaints.html whole page (!) and elsewhere http://thyroid.about.com/cs/soyinfo/a/soy.htm .. There is a lot of soy in commercial bread and in many other products.Thank You.........I'll definitely get a bottle of flax seed oil.
    Anonymous 42789 Replies Flag this Response
  • Is there any SSRI that is safe to take?:( Thank you guys for the support!!:) I know I need to see another doctor as well however, having no medical insurance has limited me. I can go to another clinic, but it could take 1-2 months till the next available appointment.:(
    Ron51ca 28 Replies Flag this Response
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