Discussions By Condition: I cannot get a diagnosis.

Is this RA or other autoimmune?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: ang9743
  • January 7, 2010
  • 05:06 AM

When I was a kid, around 7 I was told I had JRA. I was never formally diagnosed because my dr didn't want it to hinder my chances with athletics. I would have sever joint pain mainly in my knees. They would swell and feel hot. At times I would wake up at night and not be able to straiten them, or bend them...they would basically be locked. I also had joint pain in both ankles. My glands stayed swollen and I had alot of fatigue. As I got older the symptoms decreased. I still had aches, especially with a weather change, cold or rainy weather would set it off but not sever pain. But The aches started spreading....to my feet, hips, I developed TMJ. This was off and on for years. I had surgery when I was 15 on my left knee to repair alot of cartilage damage, but I played volleyball and thought maybe it was from that. I had injured it in a game. When I had my first child my left hip popped out of socket during child birth. I started having sever back and hip pain after that radiating down my leg to mid calf....at times, my big toe would go numb. I started physical therapy and the therapist told me that my L4 and L5 facet joints were locked...they did not rotate or move at all. I had a series of spinal infections, the last of which were injections into the 4 facet joints that seemed to be locked up. That made things tuns worse for about 10 days or so, then the leg pain stopped. But the facet joints were still locked. A few years later I was having alot of pain in my big toe on both feet. And developed large bunions. So I had surgery to correct that. That dr said when he was in there he noticed a lot of cartilage damage as well. I also have had sever neck pain off and on for years, that felt like a horrible crick in my neck, I was told it was muscle spasms...but they would last for a week to ten days, where I could not turn my head, or barely lift it. A year and a half ago when I was pregnant with my second child I started having Low back pain again and it actually started swelling. The area around my tail bone and L4 L5 area was puffy, tender to touch and red and swollen. My tail bone also stuck out a great deal. My OB thought that the JRA may have become active again. After my baby was born it went away. I have also threw out my life have had a series of illnesses....I got sick alot. I've had 5 Cholesteatoma resulting in two modified radical mastoidectomies. The other 3 were taken out in the office. I now have permanent T-tubes...one of which came out and had to be replaced. But the skin keeps building up in my inner ear and I have to get it cleaned out about every 4 months to keep from developing more.
In the past year I have been under alot of stress, more so in the past few months, extreme amounts. About two weeks ago, I noticed the pain and swelling in my low back and tail bone again. I had blood work done, which basically came back normal. ESR was normal, ANA, CRP, RF all normal. My WBC was high and so was my RBC and glucose levels were slightly elevated which I had redrawn today. My dr put me on a medrol dose pack which didn't help the swelling or pain so I was sent for an MRI of the L spine and sacrum. All that was found was a small to moderate amount of free fluid around the facet joints of L4 and L5. A few days after that my left shoulder started hurting and I had a very limited range of motion for a day or two. It is still aching but not the pain that was. Then about two days later I developed an allergic type rash all over, it looked like a tanning bed burn with goose bumps basically. It itched some but mostly stung. I have not used or ate anything different, we tried an antihistamine but no help. I've taken benadryl...again no relief. Could this be RA or another autoimmune disorder? Could sever stress trigger it? And would you suggest seeing an ortho for my back pain or should I see a Rheumotologist? I'm at a loss. I know that swelling, heat, tenderness, pain, rash, are all can be an immune response but I'm just not sure whats going on. Any advice would be appreciated. I'm at a loss.:confused:

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  • When I was a kid, around 7 I was told I had JRA. I was never formally diagnosed because my dr didn't want it to hinder my chances with athletics. I would have sever joint pain mainly in my knees. They would swell and feel hot. At times I would wake up at night and not be able to straiten them, or bend them...they would basically be locked. I also had joint pain in both ankles. My glands stayed swollen and I had alot of fatigue. As I got older the symptoms decreased. I still had aches, especially with a weather change, cold or rainy weather would set it off but not sever pain. But The aches started spreading....to my feet, hips, I developed TMJ. This was off and on for years. I had surgery when I was 15 on my left knee to repair alot of cartilage damage, but I played volleyball and thought maybe it was from that. I had injured it in a game. When I had my first child my left hip popped out of socket during child birth. I started having sever back and hip pain after that radiating down my leg to mid calf....at times, my big toe would go numb. I started physical therapy and the therapist told me that my L4 and L5 facet joints were locked...they did not rotate or move at all. I had a series of spinal infections, the last of which were injections into the 4 facet joints that seemed to be locked up. That made things tuns worse for about 10 days or so, then the leg pain stopped. But the facet joints were still locked. A few years later I was having alot of pain in my big toe on both feet. And developed large bunions. So I had surgery to correct that. That dr said when he was in there he noticed a lot of cartilage damage as well. I also have had sever neck pain off and on for years, that felt like a horrible crick in my neck, I was told it was muscle spasms...but they would last for a week to ten days, where I could not turn my head, or barely lift it. A year and a half ago when I was pregnant with my second child I started having Low back pain again and it actually started swelling. The area around my tail bone and L4 L5 area was puffy, tender to touch and red and swollen. My tail bone also stuck out a great deal. My OB thought that the JRA may have become active again. After my baby was born it went away. I have also threw out my life have had a series of illnesses....I got sick alot. I've had 5 Cholesteatoma resulting in two modified radical mastoidectomies. The other 3 were taken out in the office. I now have permanent T-tubes...one of which came out and had to be replaced. But the skin keeps building up in my inner ear and I have to get it cleaned out about every 4 months to keep from developing more. In the past year I have been under alot of stress, more so in the past few months, extreme amounts. About two weeks ago, I noticed the pain and swelling in my low back and tail bone again. I had blood work done, which basically came back normal. ESR was normal, ANA, CRP, RF all normal. My WBC was high and so was my RBC and glucose levels were slightly elevated which I had redrawn today. My dr put me on a medrol dose pack which didn't help the swelling or pain so I was sent for an MRI of the L spine and sacrum. All that was found was a small to moderate amount of free fluid around the facet joints of L4 and L5. A few days after that my left shoulder started hurting and I had a very limited range of motion for a day or two. It is still aching but not the pain that was. Then about two days later I developed an allergic type rash all over, it looked like a tanning bed burn with goose bumps basically. It itched some but mostly stung. I have not used or ate anything different, we tried an antihistamine but no help. I've taken benadryl...again no relief. Could this be RA or another autoimmune disorder? Could sever stress trigger it? And would you suggest seeing an ortho for my back pain or should I see a Rheumotologist? I'm at a loss. I know that swelling, heat, tenderness, pain, rash, are all can be an immune response but I'm just not sure whats going on. Any advice would be appreciated. I'm at a loss.:confused: Thanks My vote goes to the rheumatologist or an immunologist.It sounds auto immune but I am not a doctor.
    chrismia 159 Replies
    • January 7, 2010
    • 00:49 PM
    • 0
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