Discussions By Condition: I cannot get a diagnosis.

is this normal??????

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: taniaaust1
  • July 18, 2007
  • 11:24 AM

Ive suspected for about six mths now that I have some kind of heart or BP problem going on. I come to think that after noting I have POTS (my heart beat can increase up to 50 beats a minute to what it previously was, just on standing, I manually took my pulse with my fingers).

After this incident I started taking my pulse, along with my BP, every time I stayed at my nannas with her BP monitor and during this found out that I had HUGE variations on what the reading would be (thou I wasnt being active at any of these times). Some times on standing, my heart was missing beats.. hence at such times causing the monitor to come up error (it beeps with the heart beats so I could tell when it was missing). (I'd noted at this point that my BP can vary from 80/60 to 158/100)

To cut a long story short, last week I was part of a CFS study and they did some BP tests there. My BP was great 136/80. They then got me (while I was still sitting) to squeeze something with one hand continously for 2 mins (at quarter of my hand strength which had been previously tested to guage what that was). My BP was taken again right at the end of that squeezing with my hand. My BP at that point was 138/115.

My question is .. would one expect ones lower BP reading to go up to 115 from only 80.. just from squeezing something for 2 minutes??????????? Is this normal????

The other thing I noticed while wearing a BP monitor (from the hospital).. was that after it constantly faulted while I was wearing it while at my most active during the 24 hrs (I was at a market at the time).... when I got home and relaxed.. and then was standing just chatting relaxed to my sister.. my lower BP reading was 136/117 .. half an hour later my Diastolic pressure reading was down to 110.

Is it likely that the hospital would end up saying I have a BP issue??? if so what??? (as I said, at other times my BP is normal.. it seems to be fluctuating all over the place). As these tests were done as part of a CFS study, i dont even know for sure if I'll end up getting my BP results.

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5 Replies:

  • How are you taking your B/P? Are you overweight? Cuff size is very important. (5 inch for normal adult) Also, B/P is very subjective in that it depends on how good the taker's hearing is! If you are reading a machine, then you must be in the exact same position each time, if you want to compare your b/p over time. Also there is a huge difference in manufacturers. Also the amount of clothing you wear. Also, when you take your pulse, take it for a full minute...not 15 seconds etc. And yes, your diastolic is too high.
    rad-skw 1605 Replies Flag this Response
  • I took my B/P with my nannas BP monitor (I took it correctly, cuff was right size and I placed it right). For the 24 hr monitoring thou.. a nurse placed it on me.. and I had to wear it throu out that time (wasnt allowed to move it or take it off).. it took my BP every half an hr throu out that time. "Also, B/P is very subjective in that it depends on how good the taker's hearing is!" it was all automatically being taken by the monitor with number reading being given (at my nannas and for the 24 hr monitoring too)... all except the one session in which a specialist took it at clinic (during that squeeze test..before and after. ..that time it wasnt automatic so yes on that occassion someones hearing was involved). "If you are reading a machine, then you must be in the exact same position each time, if you want to compare your b/p over time. " As the machine was automatically taking it..and taking it not always on the half an hr..varied so I couldnt know exactly when it was going to inflate and take it.. I was of cause in different positions over the cause of this being done for 24 hrs while I went about my normal daily activities. Im 70.1 kg and 5ft 6 ..so yeah.. a little overweight. "Also the amount of clothing you wear." the cuff was never placed over my clothes.. even with the 24 hr monitoring.. i had to wear it under my clothes eg under a loose cardigan. "Also, when you take your pulse, take it for a full minute...not 15 seconds etc." nods.. yeah.. i did take that for one minute. (I have some first aid training as I once was a recruit in the ambulance service.. so know how to take pulse). "And yes, your diastolic is too high." Hypertension I thought was when one of the readings is constantly high.. as mine goes really up and down heaps.. I thought this wouldnt be called hypertension?????????? or would it??????????? Do you know at all what this issue would be called. thank you for your post
    taniaaust1 2267 Replies Flag this Response
  • How old are you and are you male or female? Do you get frequent headaches or have dizziness problems? Do you eat regularly (at least 3-4 times/day) and do you drink lots of water? Do you also drink caffeinated beverages? Are you taking any medications currently? You do have a high diastolic, and I would say from the readings a problem with high blood pressure. Blood pressure can vary quite a bit from one minute to the next, but your readings seem to be much more extreme. Has this been a more recent occurance or have you been having these readings for awhile now? If this is a very recent occurance you may be able to control your blood pressure through diet (DASH diet), and using supplements like coQ10 and essential fatty acids (fish and flax oils). If this is more longstanding a problem then your doc will most likely put you on some BP meds. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • How old are you and are you male or female? Do you get frequent headaches or have dizziness problems? Do you eat regularly (at least 3-4 times/day) and do you drink lots of water? Do you also drink caffeinated beverages? Are you taking any medications currently? You do have a high diastolic, and I would say from the readings a problem with high blood pressure. Blood pressure can vary quite a bit from one minute to the next, but your readings seem to be much more extreme. Has this been a more recent occurance or have you been having these readings for awhile now? If this is a very recent occurance you may be able to control your blood pressure through diet (DASH diet), and using supplements like coQ10 and essential fatty acids (fish and flax oils). If this is more longstanding a problem then your doc will most likely put you on some BP meds. Best wishesDOM Im 36 yrs old.. female. As i have CFS, i do get headaches but only when i exert myself or afterwards.. or with chemical exposure (as i have MCS). My CFS symptom complex like cycles.. so i can at times have problems with constant dizziness for months on end sometimes so extreme I can have trouble with dizziness just with sitting and end up needing to be laying hanging my head down over the bed (but havent currently got that issue occuring). I thou still get dizzy at times on exertion. (hey, thanks... you've just made me see something.. maybe that is cause my BP is going up on exertion???). I do eat regularly, thou occasssionally I do forget to eat a meal cause of my memory issues. I try to drink a lot of water..but I tend to forget to drink at times (so try to remind myself throu out the day to do so). Im intollerant to caffine (I have IBS).. so dont drink any caffinated drinks at all. As far as medications go ... Im on B6, B12, folate, Calicum, D3, Vitamin C, Ginseng, Probiotics, Trimethyl Glycine/Betaine/TMG, fish oil, glucosamine, fibre supplement, olive leaf extract .. (and started antibiotics erythromycin capsules and Nystatin yesterday.. but will only be on those for a couple of weeks hopefully). Im also meant to be on Orthoplex "Mito Lift" so will be starting that soon. and yesterday, Ive restarted taking echinacea (due to the bacterial problems I have and thought seeing Im taking antibiotic, my immune system may need more of a boost (ive taken echinacea quite a bit in the past)* This is the first time Ive taken an antibiotic in about 10 yrs. Im also meant to take undenatured whey (for glutathione and to help protect my nerve cells)... i did feel better on it..but had to stop taking it as I lost bowel control completely due to it (bad intollerance). So I need to be taking something else for glutathione (I need to discuss alternative with my specialist). daily I'll explain why all thisB6, B12 (in the form of methyl cobalamin 400mcg/day and pyridoxal 5 phosphate 5-10 mg per day)and folate for MTHFR polymorphism (keep my homocysteine levels down). 1000 mg Calicum for PMDD (it stops me from getting suicidal mood swings, it balances my moods and also stops me from getting intense period cramping where i cant even walk). D3 2000 IU as i have a severe D3 deficiency (I had to have blood tests to see if my parathyroid is functioning properly a few days ago due to this. waiting for the results). Ginseng (cause i think it may help my CFS and energy.. but I aint sure.. this is the only thing Im taking that maybe I dont really have a need for) For the IBS.. I take the probotics and fibre supplement Vit C 1 g daily.. without that I suffer from a stuffed up bothersome nose. (I have staph in my nose..so that may be what is causing my nose to have been an issue for years. Yesterday I started antibiotic treatment for the Staph and also the Strep group B I have (thought to try to get rid of both in the one go..and as I have a partner who is severely diabetic, he was at risk from the Strep, there has been also studies done in which it is shown that nasal staph can sometimes produce toxins which make CFS worst).. so I are now on erythromycin capsules along with Nilstat/nystatin as I come down with thrush very easily..and taking antibiotic without this other.. would have me having a bad case of thrush. Olive leaf extract (I started taking that for the first time yesterday as the doctor said the antibiotics may not properly get rid of the Strep group B and I'd read how this can). If it seems to help my CFS as I also know its recommended for that, I'll probably stay on it). Trimethyl Glycine/Betaine/TMG (i think my specialist recommended this due to the MTHFR polymorphism?) fish oil, glucosamine .. as I have osteroarthritis in three places already (at 36 yrs :( ).. had to spend a whole week in hospital a month back, due to it as my back went. Orthoplex "Mito Lift" . CFS speciailist has prescribed this as it will help to provide neuroprotection and its designed to protect Krebs enzymes and electron transfers. (I get a lot of neuro problems with the CFS/ME) Im also on low cholestrol and low dairy diet due to hypercholestrolemia and low tollerance to dairy products (its not lactose Im intollerent too as I still get headache to lactose free milk eg goats milk). I dont take magnesium.. as I get headache from that.
    taniaaust1 2267 Replies Flag this Response
  • It is totally meaningless to take your blood pressure unless you are sitting supported and with the monitor at heart level. If you don't do this then of course it will go up and down.
    Anonymous 42789 Replies Flag this Response
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