Discussions By Condition: I cannot get a diagnosis.

Is this lupus, MS, CFS or something else?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: chebs100
  • June 18, 2010
  • 08:37 AM

What could be the cause of this long-term illness? And why do I get leukopenia a lot?

About 2 and a half years ago I started to have headaches and overwhelming tiredness.
I was sent for an MRI and everything appeared normal.

A couple of months later I started to suffer from recurrent infections and illnesses.

In the last 2 years I have had many infections including:
Recurrent UTI's, kidney infection, recurrent uvulitis, ear infections, recurrent thrush, lymphadenitis and cellulitis (the last 2 requiring hospitalisation).

I have also had lots of viruses, colds and flu symptoms.

On a regular basis I suffer from migraines/headaches, aching limbs, neck, shoulders and backache, numbness in arms and hands, with loss of dexterity in the fingers, fatigue, skipped heart-beats and chest pain, 'brain fog' and occasional blurred vision, occasional low grade fever. I also suffer from a lot of sores, on my mouth and in my nose, and get lots of mouth ulcers, and more recently muscle twitching, spasms and cramps.

I eat a healthy diet although I am unable to exercise due to chronic pain. I have put on 2 stone in 2 years but this may be due to lack of exercise and my age - 40 years. I have also had bouts of depression, usually as a result of being so fed up of it all.

I was referred to an Infectious Diseases Specialist about 18 months ago, and initially it was suggested that it was possibly CFS. She has run many blood tests to rule out things like thyroid, diabetes and HIV, and I have also had an ECG and cardiac scan.

Although my blood tests are usually relatively normal (apart from when I am really ill), the one thing that does crop up almost every time is a low white blood cell count. Neutropenia and leukopenia have been noted on several occasions.

I recently had another test and all was normal apart from a low absolute leukocyte count (normal range 1.5 - 4.......mine was 1.1).
As yet I still don't have a diagnosis and I am really wanting some answers so that I can begin treatment or a cure.
I am fed up of having so many illnesses and infections and feeling so ***n ill all the time, and having no idea of the prognosis.

Am I right in assuming that the reason I am always getting ill is because of the leukopenia? Or is the leukopenia a result of always being ill?
And I have read that leukopenia rules out ME, is that correct?

Does anyone have any ideas of what could be the cause?
Or any suggestions of a diagnosis?
Or can you suggest or recommend any more tests?

I would be very grateful for any assistance, thanks.

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