Discussions By Condition: I cannot get a diagnosis.

Is this hormonal hypoglycemia?

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Great Dane
  • November 6, 2009
  • 10:38 PM

Approximately one hour after eating food containing starch, such as potatoes, bread, pasta or corn my fingers will start tingling. Later I will feel a pressure above my eyes and my vision becomes blurry. I get dizzy and anxiety comes in. My pulse is rapid and I have also noticed increased urination. After a couple of hours I get very tired, and if possible I fall asleep. The following day I am very cold (especially my feet), dehydrated, depressed and I often start crying for no reason.

It all started 10 years ago, and in the beginning I thought it was an allergic reaction, but nothing shows up in blood tests. The problem is increasing in strength and frequency, and my GP admits he has no clue of what is going on, so he finally referred me to an endocrinologist, who did an ACTH test and tested for diabetes. Both were negative, so he has now suggested, that I see a psychologist. I strongly disagree, and has spent some time searching the web for information, and I now believe I have hormonal hypoglycemia.

There are other things indicating hormonal problems. I have polyuria, with a measured urine output of more than a gallon a day. I think this was what made the endocrinologist decide to test me for diabetes, but he did not figure out something else could be wrong!

Since April this year I have lost more than 20 pounds - without trying at all, and I am extremely tired, so tired that I have given up my work. Finally, this summer I have had a very beautiful tan - like a Greek god:-) - I am blond and blue-eyed, so normally I get red and sunburned very easily.

I also have problems with very little stomach acid (hypochlorhydria), and yesterday they did a gastroscopy at the hospital. It showed two gastric ulcers and since no H. pylori was present, they took biopsies for cancer screening. I think this problem might also be related to decreased cortisol output.

After reading about hormonal hypoglycemia, I have had one chance to test if it works to eat sugar or carbohydrates when symptoms start. I does, but the symptoms did return an hour later. It might be a question of dosage, so I will keep experimenting, even though I always try to avoid carbohydrates in my diet. I am very interested in hearing from other sufferers from hormonal hypoglycemia. Do you think this is what I have? Should I find another endocrinologist? How did you get diagnosed? Any other information you would like to share is really appreciated. If you have any questions, please let me know.

Thanks for reading this far, I look forward to hear from someone.

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7 Replies:

  • Has your endocrinologist tested you for Addison's disease? If not, I would ask to be tested.
    Anonymous 42789 Replies Flag this Response
  • Has your endocrinologist tested you for Addison's disease? If not, I would ask to be tested.Thank you very much for your suggestion. Yes, I have been tested for Addison's with no result, but I have recently received a diagnosis on celiac disease in combination with SIBO (Small Intestine Bacterial Overgrowth) and antibiotics in combination with a gluten free diet has resolved my problem.
    Great Dane 3 Replies Flag this Response
  • I just randomly came came across this thread when I did a search for hormonal hypoglycemia for myself. Are you still experiencing these symptoms? I have a very similar reaction to eating carbs except I usually get dizzy, the right side of my face becomes sort of numb along with my eye ball, and I'll also feel a faint swirling feeling at a certain point on the right side of my head.... Other symptoms are a slight achy feeling in my kidneys (or what I think are my adrenals) and inability to talk and communicate effectively... Foggy thinking and tired. I've had these symptoms for about 3 years and have not been able to work because of them. I also gained about 20lbs in a short span of time (the weight gain seems to have plateaued now, thank god) and im generally tired all the time. I basically stay away from carbs, especially wheat and corn. I will eat rice or beans but I need a good dose of protein and some fat to prevent the symptoms from happening. I've also learned that if I do a high protein meal/shake in the morning I generally feel a lot better for the rest of the day. After a long time of not finding anything wrong with me, my GP decided to send me to a Holistic MD. He tested my thyroid and it came up as "subclinical hypothyroid" which is why my GP wouldn't send me to an endo. They only send you if you're within lab parameters of what is statistically considered to be abnormal. Unfortunately we are not statistics and don't all fit into cute little boxes. Anyhow, I am taking a low dose of armor thyroid hormone and I've noticed an improvement in my digestion, and the ulcers I used to have, the brain fog and dizziness, as well as the fatigue. I'm not 100% yet but I'm hoping that over time, and with some good quality sleep, excercise and herbs, I will be able to work again and live my life.Curious to hear how you're doing now. :)Please let me know.Xo
    Marashara 1 Replies Flag this Response
  • Dear Marashara,Thanks for asking. My health is a complicated matter, but I am feeling better and have now started working again. My hypoglycaemia was caused by two things, a small intestine bacterial overgrowth and an atrophic pancreas. I frequently get antibiotic treatment for the bacterial overgrowth and take enzyme replacement (Creon) with every meal. The doctors believe the two things are somehow connected, and when treated properly my energy increases. The bacteria and a malfunctioning pancreas has prevented me from getting enough nutrients, and a dxa scan of my bones has showed the beginning of osteoporosis, so I have started taking calcium + vitamin D supplements.I was loosing weight, and thought I had to increase my fat and protein intake – but when my fat intake was decreased I stopped loosing weight. I still don't gain weight.Today I can eat starch (except gluten), but I still develop new allergies.The doctors are unable to explain any reason behind my many symptoms.I have on my own initiative sent a blood sample to a lab in Germany and the result indicates a chronic borreliosis (Lyme disease). This is not unlikely as I went to my GP 20 years ago with a red rash on my leg. Even though I get tick bites every year, he diagnosed the rash as shingles and left it untreated.Many doctors don't believe in the existence of chronic borreliosis.I hope you will get better soon.
    Great Dane 3 Replies Flag this Response
  • I just randomly came came across this thread when I did a search for hormonal hypoglycemia for myself. Are you still experiencing these symptoms? I have a very similar reaction to eating carbs except I usually get dizzy, the right side of my face becomes sort of numb along with my eye ball, and I'll also feel a faint swirling feeling at a certain point on the right side of my head.... Other symptoms are a slight achy feeling in my kidneys (or what I think are my adrenals) and inability to talk and communicate effectively... Foggy thinking and tired. I've had these symptoms for about 3 years and have not been able to work because of them. I also gained about 20lbs in a short span of time (the weight gain seems to have plateaued now, thank god) and im generally tired all the time. I basically stay away from carbs, especially wheat and corn. I will eat rice or beans but I need a good dose of protein and some fat to prevent the symptoms from happening. I've also learned that if I do a high protein meal/shake in the morning I generally feel a lot better for the rest of the day. After a long time of not finding anything wrong with me, my GP decided to send me to a Holistic MD. He tested my thyroid and it came up as "subclinical hypothyroid" which is why my GP wouldn't send me to an endo. They only send you if you're within lab parameters of what is statistically considered to be abnormal. Unfortunately we are not statistics and don't all fit into cute little boxes. Anyhow, I am taking a low dose of armor thyroid hormone and I've noticed an improvement in my digestion, and the ulcers I used to have, the brain fog and dizziness, as well as the fatigue. I'm not 100% yet but I'm hoping that over time, and with some good quality sleep, excercise and herbs, I will be able to work again and live my life.(quote)Have you been tested for Hashimotos Disease? Testing for it requires 2 thyroid antibody tests. Don't let any doctors tell you your thyroid is fine based on tsh or just t4.
    kwcvmw 1 Replies Flag this Response
  • I think feeling of breathlessness, headaches; loss of appetite, shakes, stomach pains, hot sweats, cold hands and feet is the cause of hormonal hypoglycemia but please for better suggestion consults the doctor.
    DanaNeal 3 Replies Flag this Response
  • I just randomly came came across this thread when I did a search for hormonal hypoglycemia for myself. Are you still experiencing these symptoms? I have a very similar reaction to eating carbs except I usually get dizzy, the right side of my face becomes sort of numb along with my eye ball, and I'll also feel a faint swirling feeling at a certain point on the right side of my head.... Other symptoms are a slight achy feeling in my kidneys (or what I think are my adrenals) and inability to talk and communicate effectively... Foggy thinking and tired. I've had these symptoms for about 3 years and have not been able to work because of them. I also gained about 20lbs in a short span of time (the weight gain seems to have plateaued now, thank god) and im generally tired all the time. I basically stay away from carbs, especially wheat and corn. I will eat rice or beans but I need a good dose of protein and some fat to prevent the symptoms from happening. I've also learned that if I do a high protein meal/shake in the morning I generally feel a lot better for the rest of the day. After a long time of not finding anything wrong with me, my GP decided to send me to a Holistic MD. He tested my thyroid and it came up as "subclinical hypothyroid" which is why my GP wouldn't send me to an endo. They only send you if you're within lab parameters of what is statistically considered to be abnormal. Unfortunately we are not statistics and don't all fit into cute little boxes. Anyhow, I am taking a low dose of armor thyroid hormone and I've noticed an improvement in my digestion, and the ulcers I used to have, the brain fog and dizziness, as well as the fatigue. I'm not 100% yet but I'm hoping that over time, and with some good quality sleep, excercise and herbs, I will be able to work again and live my life.Curious to hear how you're doing now. :)Please let me know.XoHi Here are the symptoms of hypoglycemia:1.Excess refined sugar and white flour in your diet.2.Pancreatic or adrenal under activity or over activity3.Allergies For more information visit:http://www.doctorshealthpress.com
    jacobedward02 10 Replies Flag this Response
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