I had been seeing a Pulmonologist for over a year due to shortness of breath PFTs only show issues with diffusion. He sent me to see a cardiologist due to rapid heart beat on exertion. Cardiologist did a stress test which i faile in 3.5 minutes due to a hb of 183. I am 33 and physically fit. Next an echo was done and slightly restrictive left sided heart damage was found along with an EF of 50 and regurgitation. For many years I have gotten severe flushing on my chest and face which looks like a severe sunburn. The cardio doc saw this and sent me to a endocrinologist to test for carcinoids. First 5-HIAA came back 49 reference 1-14.5 repeated the test during a red episode and test came back 62.3 same reference range. Doc is scheduling the Octreotide Scan but she seems very disinterested. Says she wants the numbers to be over 100 for carcinoids. My numbers are much higher than normal so why would she not think this is carcinoids? Any other opinions??Reply Follow This Thread Stop Following This Thread Flag this Discussion
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