Discussions By Condition: I cannot get a diagnosis.

Is that Asthma, Diabetes, Anxiety...What is it!!!???

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • September 20, 2009
  • 07:05 PM

I have been experiencing symptoms off and on for most of my adult life, ranging from shortness of breath to heart palpitations. I have been diagnosed with mild asthma, pre-diabetes, possible hypoglycemia, back problems (which resulted in surgery) Generalized Anxiety Disorder and Bi-polar Disorder. I am one of those people who always seems to have something going on, despite not thinking of myself as a hypochondriac. I do realize, though, that I have a very strong mind-body connection and as such, attribute many of the symptoms to mental/emotional/spiritual embalances. Nevertheless, the symptoms and discomforts that I experience do affect my quality of life and add to my overall anxiety.

Lately, I have been experiencing the following symptoms, but cannot place an exact possible cause...a common issue that connects these symptoms. Maybe someone can help?

Here is what I've been feeling off and on for the past year, in particular;

heaviness in the chest...like shallow breaths
wheezing, sometimes bad enough to take my inhaler
fatigue, lethargy, muscle aches, especially in my back
low blood-sugar type symptoms, that make me sleepy and tired
the "shakes", especially after I eat certain things like breakfast cereals
sleep disturbances/insomnia
heart palpitations & pounding in my ears
numbness, tingling, shooting pains in my body, chest and left arm and hand
feeling a bit 'disconnected"...like somewhat detached from my body
irritability, especially when I cant breath or feel the "shakes"
foggy thinking
A sinking feeling in my upper body, like Im about to "cave in" on myself
pain in my lower left flank...either a shooting pain or a dull ache (kidney area?)
high levels of anxiety, panic attack type symptoms
very mild depression
indigestive problems that cause my stomach to extend signifigantly after eating

I am currently not on any prescription medication for any of these symptoms. Despite being diagnosed with bi-polarism, I havent had and manic episodes or any MAJOR depressive states in a few years. I have been tested for diabetes several times, but never confirmed. My symptoms come and go, but there is always SOMETHING "off". Sometimes I think its all in my mind, and so I put off going to the doctor. but when I finally do go, I never feel like I actually get any answers. In the mean time, I never feel 100% ok and im only 37 years old.

Is this all anxiety related? Or could I actually have some physical issue causing these symptoms? Or could it be both? Does anybody have any ideas?

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2 Replies:

  • 1) You are not alone.2) I seriously question Bi-polar based on the symptoms you listed.3) Your problem is not in your head. (Well part of it is, but not psychiatrically)4) Problem is not specifically anything you asked, but has the symptoms of all you mentioned Exercise Induced Asthma, Diabetec-like symptoms, Anxiety/Depression; always feeling like you are in fight or flight mode, but barely having the energy to stand some daysI am not a doctor by any means, but I can tell you that after more than 20 years of suffering with Neurally Mediated Hypotension aka NMH aka Vasa Vagal Syndrome aka vasodepressor syncope, I think you have this too. (Google it, but there is also a link included below.)I was only diagnosed in the last 3 years because I went to an Internist out of pocket to get a body scan figuring on a whim I had nothing else to lose. He looked at the scans, looked at the list of symptoms, diagnosed me in under 5 minutes, gave me a list of specialists, and probably saved my life. Not healed, but I'm definetly better. Needed a beta-blocker to start with; so, the passing out (apparently dangerous whenever or where ever this happens) and blanking out (when driving) would stop. I cognitively would know how I got from point A to point B, but didn't remember doing it.Your brain and heart aren't communicating properly to regulate blood pressure and heart rate; if you have Neurally Mediated Hypotension or Postural Orthostatic Tachycardia.Every time I ever went to a doctor with my list of symptoms I always got the "well maybe your confused" or "with more than five symptoms it must be depression (aka you are crazy)" or "it's just Chronic Fatigue" speeches. Right because when you feel as horrible as I do just getting out of bed you shouldn't be down about it? What you need to know is, when a doctor doesn't have the answer they will typically give you a bucket answer = I don't know so it must be metabolic syndrome or chronic fatigue syndrome; right and that and a dollar won't buy me the trash can that answer belongs in. If it doesn't sound right; it's probably not. NO means get a second opinion or tenth opinion whatever the case may be. Hopefully this will give you some buzz words to bring to them.Please view the following site to get one of the most comprehensive listings I have seen documented on the "vaso vagal" problem to date. Maybe this is it, but either way you need documentation from someone qualified. I was told to go to a cardiologist to diagnose and treat the NMH and was also told to check out a Neurologist to rule out seizures because I was passing out when over heated or over exerted. (It wasn't a seizure disorder, but the neurologist put me on a stimulant to combat the fatigue and the increased sleepiness from the beta blocker.) http:/www.healthy-holistic-living.com/postural-orthostatic-tachycardia-syndrome-symptoms.htmlMy kidney area gives me great pain and I was told that is my adrenal glands over compensating for the stress the rest of my body is under. There are supplements for that, but you should go to an endocrinologist or at least get blood work to rule out Cushings Disease or any other vitamin deficiencies.My belly swells (i would look 5 months pregnant) when I eat excessive amounts of bread or soda. I typically do better on protein and experience Celiac Disease like symptoms with too many carbs. I have been working on fixing my Vitamin D and Vitamin B12 deficiencies and trying to cut excessive carbs where possible and my tummy has gone down drastically. I switched to carbonated Deerpark water for flavor and cinnamon bread if I have to have it. Cinnamon is a natural blood sugar stabilizer. Less spikes in blood sugar help reduce the glucose (diabetic) responses.As with anything else...you'll have to double check what anyone and everyone says to make sure it fits your situation. Hope this helps.Good Luck and God Bless
    Anonymous 42789 Replies
    • September 21, 2009
    • 05:23 AM
    • 0
    Flag this Response
  • 1) You are not alone.2) I seriously question Bi-polar based on the symptoms you listed.3) Your problem is not in your head. (Well part of it is, but not psychiatrically)4) Problem is not specifically anything you asked, but has the symptoms of all you mentioned Exercise Induced Asthma, Diabetec-like symptoms, Anxiety/Depression; always feeling like you are in fight or flight mode, but barely having the energy to stand some daysI am not a doctor by any means, but I can tell you that after more than 20 years of suffering with Neurally Mediated Hypotension aka NMH aka Vasa Vagal Syndrome aka vasodepressor syncope, I think you have this too. (Google it, but there is also a link included below.)I was only diagnosed in the last 3 years because I went to an Internist out of pocket to get a body scan figuring on a whim I had nothing else to lose. He looked at the scans, looked at the list of symptoms, diagnosed me in under 5 minutes, gave me a list of specialists, and probably saved my life. Not healed, but I'm definetly better. Needed a beta-blocker to start with; so, the passing out (apparently dangerous whenever or where ever this happens) and blanking out (when driving) would stop. I cognitively would know how I got from point A to point B, but didn't remember doing it.Your brain and heart aren't communicating properly to regulate blood pressure and heart rate; if you have Neurally Mediated Hypotension or Postural Orthostatic Tachycardia.Every time I ever went to a doctor with my list of symptoms I always got the "well maybe your confused" or "with more than five symptoms it must be depression (aka you are crazy)" or "it's just Chronic Fatigue" speeches. Right because when you feel as horrible as I do just getting out of bed you shouldn't be down about it? What you need to know is, when a doctor doesn't have the answer they will typically give you a bucket answer = I don't know so it must be metabolic syndrome or chronic fatigue syndrome; right and that and a dollar won't buy me the trash can that answer belongs in. If it doesn't sound right; it's probably not. NO means get a second opinion or tenth opinion whatever the case may be. Hopefully this will give you some buzz words to bring to them.Please view the following site to get one of the most comprehensive listings I have seen documented on the "vaso vagal" problem to date. Maybe this is it, but either way you need documentation from someone qualified. I was told to go to a cardiologist to diagnose and treat the NMH and was also told to check out a Neurologist to rule out seizures because I was passing out when over heated or over exerted. (It wasn't a seizure disorder, but the neurologist put me on a stimulant to combat the fatigue and the increased sleepiness from the beta blocker.) http:/www.healthy-holistic-living.com/postural-orthostatic-tachycardia-syndrome-symptoms.htmlMy kidney area gives me great pain and I was told that is my adrenal glands over compensating for the stress the rest of my body is under. There are supplements for that, but you should go to an endocrinologist or at least get blood work to rule out Cushings Disease or any other vitamin deficiencies.My belly swells (i would look 5 months pregnant) when I eat excessive amounts of bread or soda. I typically do better on protein and experience Celiac Disease like symptoms with too many carbs. I have been working on fixing my Vitamin D and Vitamin B12 deficiencies and trying to cut excessive carbs where possible and my tummy has gone down drastically. I switched to carbonated Deerpark water for flavor and cinnamon bread if I have to have it. Cinnamon is a natural blood sugar stabilizer. Less spikes in blood sugar help reduce the glucose (diabetic) responses.As with anything else...you'll have to double check what anyone and everyone says to make sure it fits your situation. Hope this helps.Good Luck and God BlessThanks so much for this info. I had never even heard of such a condition. I do seem to have many of these symptoms, but not to the degree that you and others have experienced. Some of the other things I do have, which seem to relate to this condition is...EXTREME sensitivity to heat...summers are unbeareable and I sweat like a crazy person when other folks seem to be just fine.high blood pressure...was VERY high last time I went to the doctorterrible migraine like head aches, sensitivity to lightBad stomach aches, gas and extreme bloating in the stomach, particularly after eatingstrange menstral cycles...cramping throughout the month and feeling PMS-like symptoms right AFTER period endsCrazy levels of anxiety and sense of panicRacing heart that speeds up so fast that I have a hard time catching my breath, but not necessarily when im changing positions or go from standing to sitting.Feelings of "hopelessness" and low energyThe problem is that these symptoms seem to come and go. And I dont experience them all at the same time, or to the same degree. I may go thru a period of daily stomach upset and instestinal discomfort. Then it will seem to level off for a while. I DO NOT suffer from constipation or diahrreah, which seems to be a typical symptom. I was getting really bad headaches last month, but then they stopped. Now, its the wheezing and heaviness in my chest, coupled with feelings of extreme fatigue and listlessness. Its evrchanging and always morphing.I will do some research on the conditions you suggested and follow up with my doctor.Thanks so much.
    Anonymous 42789 Replies
    • September 24, 2009
    • 00:59 AM
    • 0
    Flag this Response
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