Discussions By Condition: I cannot get a diagnosis.

Is it serotonin syndrom? doctors tell me its not

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: frexis
  • June 11, 2009
  • 04:02 PM

Hi, im adam, im 21 and i recently got diagnosed with ADD inattentive. I wanted to self medicate so i went on the internet and i learned about neurotransmitters. anyway long story short i bought 5-HTP, L-tyrosine, L-Glutamine. I started to take the L-Tyrosine and i got GREAT results, i was more talkative and fun.

Then i started to take 5-HTP 400mg and L-glutamine 3g. And every morning my head started to make buzzing sounds/ i didnt mind it and continued to take them for 7 days. the bussing started to increase rapidly so i stopped. but nothing changed for the next month. and i kept getting more and more symptoms.

I was restless, fatigue, antisocial, pain in the neck, headaches *a unicue headache*, over sleep, hostile. its a nightmare.

these symptoms presisted for another 30 days after i told the doctor about it and he said just eat helthy and do sports. i got really low grades in univessity because of this. and the L-Tyrosine isnt working anymore, infact it makes it worse.

one more thing, i took Periactin (Cyproheptadine) 2 weeks ago and the buzzing in my head got worse, BUT i felt better except from the dizziness that i got from the medicine/ but now 2 weeks after im still the same as i was before i took the medecine, but with extra dizziness.

If you know anything about this please help, any advice will do. also consider that i have ADD so i might chemical imbalances.

Thanks

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8 Replies:

  • Hi, thanksa for your response. I have never heard of electro hypersensitivity. and i am not sure that is the cause becasue i never had the buzzing head before i took the supplements. i was completley normal/
    frexis 4 Replies Flag this Response
  • Hi! 24 months ago, I was taking Zoloft for pain and sleep. The doctor decided I was depressed and changed me to Wellbutrin and Effexor. I believed him and added HTP-5, Sam-e, and was also using Fentyl patches and Percocet for pain. I kept getting sicker and sicker...head filled with "pop-rocks", buzzing and ears ringing. Blood pressure high and erratic, muscle spasms, profuse heat/sweating, nauseous, etc. I stopped taking everything that I could and went into what appeared to be serotonin withdrawal, and finally ended up in the hospital 10 months later. I hadn't slept for 2 months. I started getting better, then the doc put me back on Zoloft, and I started crashing again with all symptoms. FINALLY, I got a doctor that cared enough and got off all serotonin increasing drugs. Neurologists said I had temporary 'brain damage' which would take 12-18 months to heal. Now, 10 months later, I am improving but still suffering memory loss/concentration/memory issues. Sleep, blood pressure, sweating, and all symptoms have been improving, but still a ways to go and I hope there is no permanent damage. This is a syndrome that gets little attention now, but will in the future. I hope you can be patient!!!
    Anonymous 42789 Replies
    • September 27, 2009
    • 03:21 AM
    • 0
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  • Hi! 24 months ago, I was taking Zoloft for pain and sleep. The doctor decided I was depressed and changed me to Wellbutrin and Effexor. I believed him and added HTP-5, Sam-e, and was also using Fentyl patches and Percocet for pain. I kept getting sicker and sicker...head filled with "pop-rocks", buzzing and ears ringing. Blood pressure high and erratic, muscle spasms, profuse heat/sweating, nauseous, etc. I stopped taking everything that I could and went into what appeared to be serotonin withdrawal, and finally ended up in the hospital 10 months later. I hadn't slept for 2 months. I started getting better, then the doc put me back on Zoloft, and I started crashing again with all symptoms. FINALLY, I got a doctor that cared enough and got off all serotonin increasing drugs. Neurologists said I had temporary 'brain damage' which would take 12-18 months to heal. Now, 10 months later, I am improving but still suffering memory loss/concentration/memory issues. Sleep, blood pressure, sweating, and all symptoms have been improving, but still a ways to go and I hope there is no permanent damage. This is a syndrome that gets little attention now, but will in the future. I hope you can be patient!!!Thank you!! Im glad to know that there is someone relating to this, i thought i was crazy. Its been long with this syndrome, and my life is just a mysery. im trying to get doctors to understand me but they are just close minded. i will get help soon... hopefully. Thank you for replying.
    frexis 4 Replies
    • September 28, 2009
    • 00:59 PM
    • 0
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  • Hi, im adam, im 21 and i recently got diagnosed with ADD inattentive. I wanted to self medicate so i went on the internet and i learned about neurotransmitters. anyway long story short i bought 5-HTP, L-tyrosine, L-Glutamine. I started to take the L-Tyrosine and i got GREAT results, i was more talkative and fun. Then i started to take 5-HTP 400mg and L-glutamine 3g. And every morning my head started to make buzzing sounds/ i didnt mind it and continued to take them for 7 days. the bussing started to increase rapidly so i stopped. but nothing changed for the next month. and i kept getting more and more symptoms. I was restless, fatigue, antisocial, pain in the neck, headaches *a unicue headache*, over sleep, hostile. its a nightmare. these symptoms presisted for another 30 days after i told the doctor about it and he said just eat helthy and do sports. i got really low grades in univessity because of this. and the L-Tyrosine isnt working anymore, infact it makes it worse. one more thing, i took Periactin (Cyproheptadine) 2 weeks ago and the buzzing in my head got worse, BUT i felt better except from the dizziness that i got from the medicine/ but now 2 weeks after im still the same as i was before i took the medecine, but with extra dizziness. If you know anything about this please help, any advice will do. also consider that i have ADD so i might chemical imbalances. Thanks Adam.. It sounds like you got some possible answers with Serotonin Syndrome. I had to reply because frankly i am so incredibly impressed with your entry here. I think you should consider Medical School. The field really needs intelligent, caring and determined Doctors. I expect to see your book out in the not to distant future. Good for you for believing in yourself and continuing to search for answers. I have had similar issues going on with dizziness, numbness, neurological symptoms. I too had to tirelessly search for my own answers. Unless you have a giant brain tumor that shows up on an MRI, doctors these days seem stumpt and unable to do, what i think is, THEIR JOB. After hospitalizations and feeling so incredibly dibilitated by these symptoms. I finally narrowed down my own causes and treatment. I was told that i had Serotonin Syndrome long before this got really bad, but never returned to consider it the culpret yet again when i tried Effexsor again. Your post helped me. Thank you. Like i said, more than anything, i am so incredibly impressed with your tenacity and endurance of lazy doctors. I hope this doesn't sound bad... I am a mother.... I just feel compelled to tell you... I'm so dam impressed and proud of you. Don't give up!!! You WILL figure this out! When you do.....do post, then write a book.
    jstjude 1 Replies
    • September 28, 2009
    • 07:55 PM
    • 0
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  • Adam.. It sounds like you got some possible answers with Serotonin Syndrome. I had to reply because frankly i am so incredibly impressed with your entry here. I think you should consider Medical School. The field really needs intelligent, caring and determined Doctors. I expect to see your book out in the not to distant future. Good for you for believing in yourself and continuing to search for answers. I have had similar issues going on with dizziness, numbness, neurological symptoms. I too had to tirelessly search for my own answers. Unless you have a giant brain tumor that shows up on an MRI, doctors these days seem stumpt and unable to do, what i think is, THEIR JOB. After hospitalizations and feeling so incredibly dibilitated by these symptoms. I finally narrowed down my own causes and treatment. I was told that i had Serotonin Syndrome long before this got really bad, but never returned to consider it the culpret yet again when i tried Effexsor again. Your post helped me. Thank you. Like i said, more than anything, i am so incredibly impressed with your tenacity and endurance of lazy doctors. I hope this doesn't sound bad... I am a mother.... I just feel compelled to tell you... I'm so dam impressed and proud of you. Don't give up!!! You WILL figure this out! When you do.....do post, then write a book.Hi jstjude. Thank you for your reply. You have realy touched my heart. I cried when i read your post. Frankly, out of happiness because i helped people when everything i was doing seemed useless. I am sure meny out there have the same problem and arent being medicated, following doctors orders to wait it out, which can take years (seriously). Its horrible!!!!!But for my situation, its getting better. After being to the emergency room because my mom saw me one day crying by my self. She took me to the hospital and told them that i wanted to commit suicide so that they would let me see a physician. I saw the physician and i described to him what was going on, she told me that i had deppression and needed to be put on Prozac (Serotonin adding agent) which was the opposite of what i needed. i knew that i had to get out of there (fast) and get on my own.As you have read before i took Periactin to get rid of the Serotonin that i had in excess. I did that and i got better, but it turned out that i had another problem, and that was Dopamine blockade.Tarrrrraa!!! New thing.... What happened is when i had excess serotonin in my brain for a long perion (more than 8 months) it had stopped the dopamine pathways. the more serotonin the less dopamine, the more dopamine the less serotonin. But i had so much serotonin for such a long period of time that dopamine had stopped completley.SO, now a new solution is needed, and that was (after log search) a DOPAMINE AGONIST (remember i am not a doctor so i wouldnt know). I bought that of the internet and ive been on it for about two months and its getting better. For those of you who have the same problem there are several good dopamine agonist: Mirapex (which works on D2 D3 and D4 dopamine pathways) same thing with Requip.But there is a better agonist which works on all dopamine pathways (D1-5) which is Apomorphine (but for some reason it is hard to find this one on the internet, im trying to get this one myself)Anyway, i hoppe this helps for anyone who is reading this. And for you jstjude, GOD BLESS YOU!!!!
    frexis 4 Replies
    • September 28, 2009
    • 09:04 PM
    • 0
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  • Hi its me Adam again, after a few years!!! I've got some good news. i finally conquered this buzzing thing. it was the grace of god. after many failures with doctors and own reaserch i finally knew what was wrong with me. it turns out that the buzzing that i had was a blockade in the brain of the dopamine receprors. because excess serotonin takes away the balance of serotonin/dopamine in the brain the dopamine lowers and shuts down in some pathways eventually. Im not making an opinion here, its TRUE. **** OFF DOCTORS!!.... SO what i did is i searched on how to agonise these shut-down dopamine receptors, and it turns out there are 5 pathways to dopamine. so i had to figure out which pathway was blocked. after many attempts with different dopamine agonists, i found out that it was the D5 path way meaning pathway number 5 because i used drugs to agonise all the other 4. but there were no pharmaceutical drugs that agonised this path way as far as my research goes. but i found that the street drug amphetamine does. now i took a big risk by going on the street to get this drug, both by the danger of being cheated and not getting the right stuff and by taking this drug. long story short i got the right stuff and took it. the buzzing is gone and now my life is SO back to normal. i havent been like this for over 4 years!!!!so yeah, if anyone is suffering from the same thing, please do as i did, although take caution. thanks!!
    frexis 4 Replies Flag this Response
  • Hi Adam,incredible coincides DO occur. I don't know what to believe in. jstjude perception of you wasn't too wrong actually. However, what u did is super dangerous and maybe u didn't know it in the first place, but you do now. The brain has a very fragile balance (if sane) as you found out, and if you interfere in a way as u did, things can go terribly wrong. You obviously went through **** and i hope from the bottom of my heart that you can stay healthy and be happy because you deserve it.If you haven't already, read the novel Dr. Jekyll & Mr Hyde by R.L. Stevenson. You remind me soo much of that book. Now you feel good/better and you have possibly saved my life by posting again just a mere week ago not knowing whether your post would have any merit or not.IT HAS. i do not know what you believe in: Chaos / Coincidence / Fate?! I prefer the latter... Does it even matter?I have a long and grueling history with lets say "brain issues" that date back almost exactly 5 years just like in ur case. it's crazyYou had the chance to cure yourself and you did it and i feel highly inspired. In this satanic world you are on your own when it comes to brain deseases. "Who do I trust? Me!" (Scarface) I do not have a lot of money and most doctors love money and if you dont have what they want you often dont get what YOU need: i.e. their time (and esp not that of TRUE docotors not brain/bone sawers) all I have is my intellect which obv depends on my brain. It's all I have... I have experienced **** on EARTH. I CAN NEVER GO BACK TO WHERE I WAS OR MY BRAIN WILL IMPLODE :*(Summer back in 2008 life was good. I was young and not maimed. I sometimes try to remember how that must've felt. I hardly can.I was one year into my first relationship. Had passed my A-levels, marks okay i obv. underperformed because there were more exciting things to experience than learning useless **** by heart (first sex for instance) I had refused compulsory military service and worked in a school for disabled young kids. I lived at my girlfriends house. I smoked a bit of weed, NEVER any other drug apart from alcohol. Well whats a bit of weed? I drank waaay to much booze from 13-15 1/2 years of age. Then i discovered marijuana. You cannot imagine the relieve i felt. Alcohol is WAY more destructive and yet my path to destruction was always predetermined. I usually smoked a joint with my GF before going to sleep sometimes 2-3/day NEVER more during workdays. On weekends my consume was higher of course, but never excelled amounts that can usually cause damage.I was unlucky.That moment in time I was so HAPPY BECAUSE I WAS UNKNOWING of what lay ahead of me. I have a self-diagnoses/perceived affinity for psychosis/depression etc My uncle had similar syndroms and killed himself in 2001 as a consequence. Guess this kinda BS is handed over recessively and can leapfrog at least one generation or else my ****** genes wouldnt exist in the anyway corrupted genepool of humankind anymore.Summer 2008. The past year mightve been the best time of my life. I applied for a social job abroad and INSTANTLY was taken out of over 1000 applicants. I felt lucky, I was happy, I was innocent.One Month to surpass only and im outa here (boring small town) and in Blackpool/GB.I'm on holidays and I'm at my cousine's place. The daughter of my suicidal uncle. In the flat he lost it (not his life but his sanity). I do not think about the irony. We are careless and do what weed smokers do. Smoke, watch films, stupidly eat sweet things, go to bars, play video games. My girlfriend is with me. She LOVES me and applied for aupair in GB too to be as close to me as possible.This is the last time with our friends before heading abroad. Into uncertainty, into excitement.Then my life turns upside downI do THE SAME ******* THING JUST LIKE ANYONE ELSE, smoke weed; have a good timeI start to change: I am restless. I am aggressive. I am supertalkative (logorrhea or so), I am full of thoughts, I CANNOT SLEEPwhy everyone goes to sleep. I lay awake. next to my girlfriend. I dont want to trouble her. This will pass by I believe. Every day it becomes worse, every night they sleep I lay in bed AWAKE. thoughts, way TOO MANY THOUGHTS circle around in my brain.No **** voices telling me to slaugther anyone like ******* doctors believed. Smart ideas. Just waaay to many of them. I cannot control them, i cannot order them. I am helpless.then I CRACK UP. I CANNOT TAKE IT ANYMORE. I NEED HELP. I wake up my girlfriend. She has no idea i was awake for days and she is scared. I am scared. I CALM HER DOWN ALTHOUGH MY HEAD ALMOST EXPLODES.I tell her i might just need a quiet place to relax. We take a cab to her place. We cuddle, then she falls asleep. I TRY SO HARD TO ENTER SLEEP AND CALM DOWN which can never work...After ~4hours I get up and join her familys breakfast. I try not to show them how troubled I am.Then my memories dissolve.I remember being back at my own family's house. My GF got so scared and called my Mum and asked for advice. My GF must have driven me there. I remember crying. It's all i can. THEY WANT TO GET ME HELPTHEY DRAG ME TO ****My nightmare has just begun:I enter psychiatry.....I HAVE 10 DAYS, I think. I WANT TO GO ABROAD SO BADLY. ITS ALL PLANNED. ALL I NEED IS SLEEP AND BRAIN RELAXING MEDICATION ******* DOCTORS. WHAT DO I GET?!they start standard with Olanzapines/ZyprexaThen i cannot entirely tell. I have MEMORY BRAIN LOSS OF MONTHS (standard brain reaction to cope with traumata)Somehow I do not get healthier. My state of mind becomes worse and worse. 10 days after my voluntary commital i have an obligatory seminar for my year abroad working for IRC. I thought i'd be out by then and life would go on and i'll be fine. As olanzapines do not kick in they try something else dont remember why i'd have to look up. I guess they experimented with over 20 different medications so its hard to tell.I REFUSE TO TAKE THE MEDICATION. I WANT TO GET OUT. I WANT TO LEAVE.they tell me to wait for my family. THEN THEY PLAY DIRTY. they call my family i'd be out of my mind and they tried everything they could (AFTER MERE TEN DAYS YOU *******???????????) they claim its irresponsible if I leave and they cannot by any means allow me to go i might be a danger to the environment or some BS as aggressive as I was.I AM OF COURSE AGGRESSIVE BECAUSE I WANT TO LEAVE THEY WONT LET ME (open station what a joke)They have THREATENED ME WITH LOCKED STATION BEFORE (i have prooving notations that i made when my head was close to clear) I start fakeswallowing pills (i became an expert at that) which is superdangerous. all i know is veery basic neurophysiology from school. even if the doctors weren't horrible/criminals they dont know that any further medication depends on the assumption that i took the medication, which is wrong.they threaten me wtf? THEY FIGHT MY FEAR WITH MORE FEAR. They tell me to take the medication or i'll go down to locked station to all the retards. I refuse, they hold their word.in an overnight spooky action i get a lawyer. not mine. some xternal guy, who doesn't know me sane or insane.I DO NOT REMEMBER ANYTHING OF THIS. WHAT HAPPENED TO ME????apparently the medication i got was so strong any thought is washed out. The lawyer attests that I am certifiably insane and a danger to society. From now on I am not a citizen anymore. I am an outlaw. They can treat me as they wish, i am extradited.THEY DRAG ME DOWN THE FLOOR AND LOCK ME UP. I FIGHT. I AM ALONE. I AM HELPLESS. I HAVE NO CHANCE. THEY NEED THREE MEN TO GET ME. all the time i remember is dull. I NEVER TOOK ANY REAL DRUGS. it scares the **** outa me. i am superstoned and feel like being in the worst nightmare of all times.I still have my will. I do not cooperate which makes my life supertough in lockdown. I wont take medication freely so they make me. They put me in fixation and i get medics via tubes. Whole days pass by i am not allowed to leave bed/fixation.Im allowed 30mins out every day, they watchout very closely. especially for me. I try to flee, i fail. I am not allowed going outside anymore. I want to die so badly. They took away my cellphone, my last connection to the outside world. Family visits i hardly remember because i am full of diacepam and other drugs to calm me down. I have my clear moments. i have a full foulder full of notes/memos now at home from that time. U can clearly see how my clear moments become less and less and when i lose grip of reality.I BECOME SCHIZOPHRENIC. i think they want to poison me and do experiments with me. I refuse to eat for two reasons:I feat they have medication even in the food and as i didnt find a weak spot to commit suicide i try to starve myself to death.Considering how full of dope i was i am frightened today how logical that thinking was apart from the food theory.i want to die so badly but i just can't. I try to starve, they feed my via tubes and also give me medics hat way.my condition worsens as time passes by. All my life is one narrow floor,m y room/ i was mostly in the observational room. and the smoking room. i always promised myself to smoke weed only and never start with cigarettes ( i was an athlete before looney bin)Smoking is the only thing that reminds of life on the outside. I beg for cigs all the time cause i have none of my own.If you thought you'd seen a foggy smoking place, you arfe mistaken. I am too tired now to continue. But I will. Antoher day
    ForTheLoveOfGod 2 Replies Flag this Response
  • Pls forward my post admins. I would like to contact Adam, he has way more experience than me about cerebral metabolism. Thank you!
    ForTheLoveOfGod 2 Replies Flag this Response
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