Discussions By Condition: I cannot get a diagnosis.

Is it lymes?

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • November 23, 2009
  • 07:59 AM

Please help. My wife was in Newark in September and got bitten - we don't know if it was a tick as it was not seen on her. The bite seemed to get infected although as we live in England and did not know about Lymes we paid little attention to it. About 10 days later my wife became extremely ill, constant vomiting, severe muscle and joint pain, swollen and tingling (and itching pain) on her hands, blinding headaches, visual disturbances. She was eventually admitted into hospital with viral mengingitis. 4 days later (and no treatment given) she was out of hospital and seemed to be recovering. It took a further month to get over the extreme fatigue she was feeling - but no-one here would take Lymes seriously as a possible cause - it was too rare they kept saying. Then earlier this month it all came back only worse - more vomiting, muscle and joint aches - and meningitis. Still the doctors will not consider Lymes saying it is very rare. Everything I read has all of her symptoms and I am worried that the longer this goes on without appropriate treatment the worse she will become. She is still in hospital now - is still suffering terrible headaches (she was given morphine last night for one!), her knee is really painful and she seems to have a swollen liver. To me it all points to lymes - does anyone else agree or am I going mad....please help.

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6 Replies:

  • It could very well be Lyme, but I'd also consider the coinfections bartonella, ehrlichia, babesia, rickettsia. Few only have one bug. Join Lymenet.
    kermworm 81 Replies
    • November 23, 2009
    • 11:57 PM
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  • My wife was twice tested for Lyme's disease. I believe preliminary testing is just blood work. If your doctor won't send you for bloodwork given that your wife was bitten, then I recommend a new doctor. That being said, if the tick embedded itself enough to cause Lyme Disease, you should see evidence of that. The tick will stay on you for quite some time, and must actually begin digesting tissue (it's head will be fully embedded at this point) to cause the disease.
    Helpmywife 4 Replies
    • November 24, 2009
    • 05:51 PM
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  • :(I am so sorry - that is horrible and I understand her pain. It sounds like she may in fact have Lyme and needs to be tested ASAP. The internet can be a great resource - to find sites around your area that may have online support groups so you can contact people in your area to find out the names of doctors that WILL LISTEN and test. However, even if she were to test negative, it does not mean she is not infected with Lyme. There is a film out now, called Under Our Skin about this Lyme controversy that I CANNOT understand - it is a hard disease to live with, diagnose, treat and to find a doctor to listen and really believe a patient suffering from so many head to toe symptoms. I too am suffering from Chronic Lyme disease - for over 4 years. Undiagnosed and untreated for so long due to the lack of knowledge, proper diagnostic testing and doctors that do not listen.The spirochetes in Lyme can cause symptoms to flare up monthly, to cycle, change, move around the body. Lyme can imitate so many other conditions but your wife should be tested for all auto immune diseases, MS and others to rule out other possibilities.I was very sick in late 05 and in April 06 had an infection spread to my spine. My Lyme testing initially showed numerous bands - but not enough to be considered positive by our CDC criteria. But Lyme is supposed to be A clinical diagnosis - like depression - based on symptoms. Most people who have it do not remember being bitten by a tick or get a bullseye rash so it is very insidious and evasive. The longer someone has it, the harder it can be to test for and treat as it starts to hide in tissues, cells, and it evades the immune system.:eek: It really is awful. I got flu like symptoms first, severe sudden onset osteoarthritis/ osteomyeltis and for years have been sick with shock like zaps in body, head pains, head aches, poor healing, numbness and tingling in body and face, pelvic pains, breast pain, rib pain, stomach problems - the list goes on and on. More recently, my skin is atrophying. Lyme in the UK is different - caused by a different - Here it is caused by B Burgdoferi and in the UK is usually B afzelli I believe. I am actually getting symptoms of what happens more in England and I am in the US - I am getting atrophy of the skin (Acrodermatitis Chronica Atrophicans) and also had borrelial lymphocytoma - a painful lump that can develop after infection on the ear lobe or nipple. Having a flu like illness, severe fatigue is all common - around time of infection. I couldn't walk around I was so exhausted and in pain. ALL safe links!!! http://www.netdoctor.co.uk/diseases/facts/lymedisease.htmhttp://www.lymediseaseaction.org.uk/http://www.wadhurst.demon.co.uk/lyme/http://www.lymenet.org/http://www.canlyme.com/patsymptoms.html -- complete list of symptomsmdjunction.comUse some of these sites for resources and try to find more around you - a Lyme Disease association online with links for doctors or hospitals. Tell the hospital to test her for Lyme or if she has it you will sue them for unnecessary suffering and medical malpractice?.... My prayers and thoughts are with you and your wife. My boyfriend has suffered watching me go downhill over these past long 4+ years - it takes a toll on everyone that loves the person suffering. It is ESSENTIAL TO TEST AND TREAT ASAP - essential. Do anything you can to make it happen. Not knowing what this was the 1st time was unacceptable - they have to test - no excuses. Good luck to both of you. :rolleyes:Please help. My wife was in Newark in September and got bitten - we don't know if it was a tick as it was not seen on her. The bite seemed to get infected although as we live in England and did not know about Lymes we paid little attention to it. About 10 days later my wife became extremely ill, constant vomiting, severe muscle and joint pain, swollen and tingling (and itching pain) on her hands, blinding headaches, visual disturbances. She was eventually admitted into hospital with viral mengingitis. 4 days later (and no treatment given) she was out of hospital and seemed to be recovering. It took a further month to get over the extreme fatigue she was feeling - but no-one here would take Lymes seriously as a possible cause - it was too rare they kept saying. Then earlier this month it all came back only worse - more vomiting, muscle and joint aches - and meningitis. Still the doctors will not consider Lymes saying it is very rare. Everything I read has all of her symptoms and I am worried that the longer this goes on without appropriate treatment the worse she will become. She is still in hospital now - is still suffering terrible headaches (she was given morphine last night for one!), her knee is really painful and she seems to have a swollen liver. To me it all points to lymes - does anyone else agree or am I going mad....please help.
    rainsky 28 Replies
    • November 24, 2009
    • 08:49 PM
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  • Most people with Lyme do NOT recall getting bit, seeing a tick or getting the usual bullseye rash - so that is totally not true. I posted another whole post on this but have not seen it come up yet - hoping it does. Most of the problem diagnosing and treating Lyme :confused:and why so many people are sick for YEARS is due to thinking that you have to see the tick - it stays in under your skin, etc - that is not true - totally false. :o
    rainsky 28 Replies
    • November 24, 2009
    • 09:13 PM
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  • For some reason, my earlier reply has not posted... YOU HAVE to get her tested asap though even if negative, she could still have it. Look online for Lyme Association around your area or support groups. There are sites like lymenet, mdjunction and others that have members you can email or forums you can post on to look for other doctors that will help her - and you out.Flulike symptoms, head pains - all of that can be Lyme though because it can be unreliable to test for, other conditions should be ruled out such as autoimmune disorders, thyroid or hormonal problems, neuro problems and MS. Tell the hospital to test - if they don't and she has it, you will sue. The longer someone has Lyme, the harder it is to find as you thought - it hides in tissues and evades the immune system.:(Demand the testing or take her elsewhere. I have been suffering with this for 4+ years - undiagnosed so long because blood tests showed many bands but not "enough" for a 100% positive - infection spread to my spine and this could have all been prevented with some antibiotics if the doctor knew it should be diagnosed on the clinical symptoms and appearance - not ONLY blood tests.Good luck - I hope other post I put for this thread comes up eventually. If so, sorry for the repeat!!:p
    rainsky 28 Replies
    • November 24, 2009
    • 09:25 PM
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  • I apologise, I can help nothing. I think, you will find the correct decision. Do not despair.
    Anonymous 42789 Replies
    • January 7, 2011
    • 00:20 PM
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