Discussions By Condition: I cannot get a diagnosis.

Is it Dermatitis Herpetiformis/Coeliac??

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • March 11, 2007
  • 11:09 AM

I went on a gluten free diet on the advice of a GP, for abdominal symptoms and an extremely itchy rash on both my shins. Although I tried not to scratch the rash, when I did, little round holes (about 2 or 3 cm in diameter) appeared that bled quite a lot. The gluten free diet cleared the rash up after about a year and a half. However, after four years I decided to try to have it properly diagnosed or to see if perhaps the improvement in symptoms was incidental and I could eat normally. I went back on a gluten containing diet, which I stuck for almost three months but the skin biopsy and gut tests came back negative. However, the diarrhoea and rash did come back, though only a little in the case of the rash. The only major incident was an episode of mild diarrhoea with a severe burning pain around my abdomen which caused me to pass out. Does this mean that the problem is something else and not gluten. I am back on a gluten free diet and well again but if it's not Dermatitis Herpetiformis or Coeliac, then what is causing these symptoms? The rash only appears on my shins, not my elbows or buttocks as is usual. I don't want to follow a gluten free diet unnecessarily.

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