Discussions By Condition: I cannot get a diagnosis.

Intermittent extreme fatigue

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: lobster
  • November 21, 2006
  • 10:38 PM

I am a 44 year old female whose symptoms are:

Fatigue
Always cold - especially extremities
Sore throat - especially in winter months
Mental fog
Crave salt
Excessive sweating

I have had my glucose, hormone and thyroid tested and was told all is normal (my TSH was 0.50). My symptoms are normally tolerable but in the last six months the fatigue has been horrible (usually right after I start my period). I am so tired I can't even read a book. What should I do next? I feel it is hormonal but my general practioner seems to be done with me. I have another appointment at a different clinic next week but I don't know what to ask for regarding tests or a referral.

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4 Replies:

  • Its possible you could have CFS also known as chronic immunity disfuction syndrome (CFIDS) esp if you have another symptom also which you havent mentioned eg possibly headaches, weakness, dizziness etc etc If its something like CFIDS you will feel worst after excertion and get post excertional fatigue. CFIDS does affect the hormones.
    taniaaust1 2267 Replies
    • November 22, 2006
    • 02:16 AM
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  • Thank you for the information. I actually do have frequent headaches but not bad ones. I also get the dizziness and weakness but have always thought of them as "sugar crashes" and thought I was eating poorly. What tests or what specialist should I ask for? I have to get a referral at my clinic if I want to see someone else.
    lobster 1 Replies
    • November 22, 2006
    • 11:14 AM
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  • If you are sweating a ton and craving salt you may want to try eating a few salty things and see if it makes a difference. If you are really thirsty you may be getting dehydrated from all the sweating and you are craving the salt to help you retain some of the water you are loosing in sweat. Sorry if I am talking in circles. The other thing is have you had your Iron checked ?? anemia can cause you to be really tired all the time, and where it is related to your period also. I have a relative with similar symptoms, also related to her period, and her Iron was so low that they were amazed she was still standing. If you believe it is Hormonal go see a gyno md, trust yourself you know your body. hope this is helpful.
    Anonymous 42789 Replies
    • November 22, 2006
    • 03:37 PM
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  • Thank you for the information. I actually do have frequent headaches but not bad ones. I also get the dizziness and weakness but have always thought of them as "sugar crashes" and thought I was eating poorly. What tests or what specialist should I ask for? I have to get a referral at my clinic if I want to see someone else. You couldnt have CFIDS unless you also have "post excertional fatigue" but if you have that too, to find a specialist who should be able to tell you if its CFIDS or not, I suggest for you to contact you local CFIDS or CFS or ME (all same problem) or sometimes it's a FM/CFS support group and ask them for the names of doctors they recommend. Ive found this is the best way to find doctors who specialise in these problems. Your countries (I dont know where you live) CFS or ME association should be able to give you recommendations on doctors too. Just do an online search for "CFS" "ME" "Your countries name or area" and "associations" or "support groups" Ive found that asking about CFS support groups etc in doctors clinics is usually useless. To be diagnosed with CFIDS all other things need to be ruled out first as there is no definate diagnosic marker for CFIDS at this point of time eg the doctor cant just do a blood test and then say you have CFIDS so everything else has to be discounted out. Some other tests the doctor should probably run if hasnt been done already are complete blood work, C-Reactive protein test (to see if and how much imflamation is happening within you body), EBV test. My doctor for my CFIDs also did blood tests to make sure I didnt have rickettsia, toxoplasma, cytomegalovirus, brucella, lyme and a heap of other stuff, it all depends on your history. Just anything the doctor thinks its possible you may have, all need to be ruled out. If you have CFIDS.. you will likely have deficiencies of certain enzymes and things like D3. I suggest you ask your doctor for a blood test of D3 levels. best luck
    taniaaust1 2267 Replies
    • November 22, 2006
    • 10:49 PM
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