Discussions By Condition: I cannot get a diagnosis.

Insane spreading rash

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: so_itchy
  • March 11, 2011
  • 05:24 AM

This rash started in mid-January as what I thought might be an insect bite. It was a small bump just inside my hairline on the back of my neck. It itched insanely. I took a shower and it did feel better. The next morning, when I woke up the spot was still itching but it seemed to have spread down the back of my neck and the itching was horrible. The kept on for about 2 weeks. The spot in my hair turned into more bumps (more like welts or bugbites), and the welts on my neck just moved on down to cover my neck. I went to the Doc and he just half-**s glanced at it proclaiming to be folleculitis (sp?). I had been searching for rashes that matched what I had for over a week and folleculitis didn't match but hey, I don't get paid the big bucks so I went with Doc's opinion.

He prescribed a selnium sulfide shampoo and 2 ointmints. Money well wasted because nothing has touched this rash. At this point, my rash has totally covered my scalp, down my neck, moving around both sides of my neck, on the backs of my ears, along the tops of my shoulders, and seems to be trying to move down my back.

Heat really seems to affect my rash. It will itch when not hot, but just sporadically here and there. If it gets hots, it goes off the deep end and everywhere it effects itches horribly.

Showers seem to keep the itching at bay while I am in them but about 20 minutes once I get out, itching I go. Lol! Also, it is NOT contagious. My husband, nor 4 year old daughter, has been phased by it. Well, my DH talks about it being annoyed whenever I go on an itching rampage. I have tried a Benadryl anti-itch gel, Cortizone 10, Lamisil (at Mom's insistance that it CURES EVERYTHING!), and no dice. Going to bed at night is a chore as I have to just wear myself up and once I get up, my rash is 3x as angry as it was when I went to bed.

At this point I have thought about shaving my head to see if it will help. But seeing as nothing is helping on the rash that is on open skin, I don't think that would help what is in my hair. I have scratched myself so horribly on some occasions that a few of the spots in my hair line and on my neck and shoulders have developed scabs.

Does anyone have any ideas? Nothing I have seen on the net seems to match it. If I can think about it while it is acting up, I will get some photos. It turns red as hellfire and welts up all over the place. At the rate it is going, it is going to slowly engulf my body and I don't know if I can take that. Lol!

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3 Replies:

  • This rash started in mid-January as what I thought might be an insect bite. It was a small bump just inside my hairline on the back of my neck. It itched insanely. I took a shower and it did feel better. The next morning, when I woke up the spot was still itching but it seemed to have spread down the back of my neck and the itching was horrible. The kept on for about 2 weeks. The spot in my hair turned into more bumps (more like welts or bugbites), and the welts on my neck just moved on down to cover my neck. I went to the Doc and he just half-**s glanced at it proclaiming to be folleculitis (sp?). I had been searching for rashes that matched what I had for over a week and folleculitis didn't match but hey, I don't get paid the big bucks so I went with Doc's opinion. He prescribed a selnium sulfide shampoo and 2 ointmints. Money well wasted because nothing has touched this rash. At this point, my rash has totally covered my scalp, down my neck, moving around both sides of my neck, on the backs of my ears, along the tops of my shoulders, and seems to be trying to move down my back. Heat really seems to affect my rash. It will itch when not hot, but just sporadically here and there. If it gets hots, it goes off the deep end and everywhere it effects itches horribly. Showers seem to keep the itching at bay while I am in them but about 20 minutes once I get out, itching I go. Lol! Also, it is NOT contagious. My husband, nor 4 year old daughter, has been phased by it. Well, my DH talks about it being annoyed whenever I go on an itching rampage. I have tried a Benadryl anti-itch gel, Cortizone 10, Lamisil (at Mom's insistance that it CURES EVERYTHING!), and no dice. Going to bed at night is a chore as I have to just wear myself up and once I get up, my rash is 3x as angry as it was when I went to bed. At this point I have thought about shaving my head to see if it will help. But seeing as nothing is helping on the rash that is on open skin, I don't think that would help what is in my hair. I have scratched myself so horribly on some occasions that a few of the spots in my hair line and on my neck and shoulders have developed scabs. Does anyone have any ideas? Nothing I have seen on the net seems to match it. If I can think about it while it is acting up, I will get some photos. It turns red as hellfire and welts up all over the place. At the rate it is going, it is going to slowly engulf my body and I don't know if I can take that. Lol! hi mate not sure if i'm doing this right but I got a similar thing when i went camping and I got itchy welts across my back,just between the shoulders, at first I thought I had gotten badly burnt when I put the tent up and didn't take much notice, even though it was exremely itchy especially when hot. Eventually went to my doctor who is great and he admitted he was baffled but gave me some steroid cream to try. This made it itch worse and I soon gave up on that. I have always used (WITCH HAZEL available in large supermarkets, health stores and chemists for about $6 aud)for any itches, so every time it got itchy I just put more witch hazel on. Most of my welts have gone now but I still get itchy and I know that there are still bumps there but at least I can alleviate that horrible itch. Don't know if witch hazel or time has helped to heal mine all I know is it helped. You can put it in your hair it just looks like water but a bottle lasts me about 6-12 months and I use it to clean my face. It is a good product so I hope it helps with your itch. I can totally empathise.
    worried sharon 1 Replies Flag this Response
  • Have you checked out grovers disease?
    Anonymous 42789 Replies Flag this Response
  • Did you ever find out what this was or find an effective treatment? I have the exactly the same symptoms and am struggling to find a diagnosis/treatment.
    Anonymous 1 Replies Flag this Response
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