Discussions By Condition: I cannot get a diagnosis.

Infection has us going around in circles - please help!

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Jerrie
  • April 17, 2008
  • 07:26 AM

http://forums.wrongdiagnosis.com/images/icons/icon4.gif Infection has us going around in circles
Hi, a family member has been very ill for several months now & doctors treating him have had little success chasing their tales.
First he was treated for lung problems as his lungs were filled with water & he had great difficulty breathing. Then other doctors said he needed dialysis. He also has high blood pressure, lung congestion, shortness of breath, lots of clear flem, he hasn't been able to sleep, he shivers in the sun, has weak knees, sometimes loses focus & is in his mid 50s.

Recently we conducted an independant sputum test & found that e coli was present in his lungs.

Please help us with the following :
i) what could this disease be?
ii) what are the implications?
iii) how serious is it?
iv) how do we treat it?
v) what type of specialist could we take him to that might be able to help us? (e.g.
Pulmonologist /Nephrologist...)

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12 Replies:

  • I am sorry I don't have an answer for you...but just bumping this up....wow he has a lot going on! How did he get e coli in his lungs?! Where was he prior or what was he doing prior to this illness?
    Joan5555 316 Replies Flag this Response
  • Have they checked for Legionella Pneumonia? It can cause renal failure (needing dialysis).http://www.legionella.org/general_info.htm
    Beth56 272 Replies Flag this Response
  • What medications is he currently taking? DOM
    acuann 3080 Replies Flag this Response
  • Hey Guys thank you all for your support & concern. sorry I'm replying so late, but here's an update. We think he picked up the e coli from the lagoon he often visits to fish (there have been reports that toxicity levels there recently have been a bit high). The e coli is out of his system now (thank god), the doctors had him on ciprobay i think, but the independant tests showed that this strain was resistant to it. We picked up a some stuff from the chemist that was ridiculously expensive but rid him of the bacteria with a few doses (not quite sure of the name). However, he has now picked up a rare strain of strep. it's called Strep Mitus Group. The doctors still have no idea what's going on with him. Will check into that type of pneumonia. thanks again everyone
    Jerrie 11 Replies Flag this Response
  • Hey there, checked out some info on the legionella pneumonia. Not sure what to make of it now... Legionalla Pneumonia is caused by gram negative bacteria (e coli is no exception). He has some of the symptoms associated with the disease (shortness of breath, kidney failure etc.), but if the e coli is out of his system, will he still be affected by it? Also, he now has the strep mitis, but it is gram positive.
    Jerrie 11 Replies Flag this Response
  • I assume he is on mega doses of antibiotics - which ones? Also, is he taking a PROBIOTIC? He needs this - he should be taking a good quality probiotic with at least 5-7 strains of beneficial flora, and he should take this 2 hours before or after his antibiotics. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Hi DOM I've got the names of the stuff he's on...The antibiotic that he took to get rid of th e coli is cefuroxime, the doctors had him on some other ones like ciprobay but it wasnt working & we then found that it was because that strain of e coli was only sensitive to the cefuroxime (by the way the 'over the counter' name for cefuroxime is Zinnat). & now the sputum tests we conducted showed that the strep mitis is sensitive only to a vancomycin. The problem is that he can't take probiotics because of his kidney problems.
    Jerrie 11 Replies Flag this Response
  • The problem is that he can't take probiotics because of his kidney problems. I am sorry I don't understand this. Why did they say he couldn't take a probiotic due to his kidney problems? I have NEVER heard of any contraindications for probiotics. Could you please explain? Also, what are his kidney problems specifically? DOM
    acuann 3080 Replies Flag this Response
  • Hi, I would see a good infectious disease doctor or a rheumatologist who will test him for a bunch of different infections (bacterial, yeast, fungi, mold). I had a lot of infections, which were the root cause of my organ problems. It sounds like since he has at least a few already, he could have even more, which are making him miserable. If the infections are deep enough, they can cause all kinds of problems. Lyme is also a good thing to look into, just to make sure it's not in his system. If it is, it could weaken his immune system enough so that he's susceptible to other things.
    Writer53 10 Replies Flag this Response
  • Quite frankly I don't understand it either. The doctors just said its because of his potassium & electrolyte levels. He has Kidney failure & has been on dialysis for approx. 2months. & to top it off... He won't stop smoking. He stopped a few months ago for a month, but now he says he doesn't want to stop for the moment. He insists he'll stop when he's been fully treated for strep mitis.
    Jerrie 11 Replies Flag this Response
  • Quite frankly I don't understand it either. The doctors just said its because of his potassium & electrolyte levels. He has Kidney failure & has been on dialysis for approx. 2months. & to top it off... He won't stop smoking. He stopped a few months ago for a month, but now he says he doesn't want to stop for the moment. He insists he'll stop when he's been fully treated for strep mitis. Good lord - Kidney failure, dialysis, strep mitis AND smoking?!? I am sorry you are going through this. He is very, very ill. I hope the docs help him. I still feel strongly he needs some support for his immune system. Best wishesDOM
    acuann 3080 Replies Flag this Response
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  • Yes he is very sick... they discharged him from the hospital on friday, but yesterday he couldn't breathe & they had to admit him again. & its not like he's not going to a good hospital - he's at one of those hospitals you can only get into if another hospital transfers you to it - its one of the best in the country. When asked why he won't stop smoking he says he needs a better reason. & yet when he keeps getting sick he swears the doctors & say they're not doing their job.This is causing so much stress on the family.
    Jerrie 11 Replies Flag this Response
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