Discussions By Condition: I cannot get a diagnosis.

Increasing ill for the past two or three years

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: Anonymous
  • September 16, 2009
  • 11:42 AM

26 year old, white male, six foot four, 250 pounds.

For many years I was an active athlete. In nearly perfect health. Then a few years back, I moved in with my fiancé and started getting ill. Around that time I quit most of vices, (smoking weed, cigarettes, drinking, etc.) and started exercising due to my increasing illness. Symptoms are many. I have been to the doctor, they won't really see me. Even in the ER. I had a bad trip (psychosis from psychedelics) and went nuts many years ago. However, my symptoms are very real and referrals to psychologists are frequent without running basic blood, urine and other tests.

I can no longer play sports well ( I could dunk, sprint, swim etc.) I gained a good amount of weight, which I cannot loose no matter what I try. Food is repulsive. Below are some other symptoms and I assure you, no hyperbole.


Chest pain, smoking caused me to faint, so I had to quit. Pain is still very apparent in chest.

Difficulty swallowing. Acid reflux. Numbness in throat and chest (outside not inside)

Lower right abdominal pain (comes and goes and itches) right above my hip bone.

Foamy urine that is sickly sweet smelling, bad bowel movements. Dark and light blood in stool. Moves from constipation to diarrhea. Reeks like burnt rubber. Hurts badly. Comes out like twisted play dough. I have what I think is a hemmroid.

Migraines. Pressure. Thought of taking a corkscrew to my head to relieve it. (not kidding). Extreme sensitivity to light.

Inability to run, jump or walk due to shin splints, calve pain, leg weakness.

Heart skips beats, many of them, and often, is irregular, feels like gulping. Races out of control for no reason.

I do not tire from excerise. Ever. This is odd due to the fact that my body hurts while excerising but I never feel fatigued, just pain.

I have fainted and had seizures. 3 seizures, passed out many times.

Feeling of wearing clothing I am not. Socks, hats, gloves, etc. (honestly).

No coughing, ever. Even if I try hard, doesn't seem like coughing, not like I use to. Weak and ineffective.

Swollen glands under my chin, they can be pushed around but that hurts badly. Lowering my my chin to my chest is impossible.

Left and right side of my body gets tangled. Left hand thinks it is right hand, visa versa.

Deja Vu frequently, many times a day, lasting for a very long time. Sometimes minutes.

Eye pain behind right eye. Severe and almost constant. Loss in quality of eye sight, steadily over the last few years. Need new glasses every two years. Eyesight was almost perfect before all this. Pupils are different sizes and contract and expand independent of each other.

Ear infections, clicking jaw.

Clubbed fingers and toes. Slow nail and hair growth.

Twitching muscles in arms and legs.

Occasional right arm pain.

Constantly plugged nostril. Always one, never both.

I reek badly and sweat profusely.

Despite all this. No fever. No runny nose. No flu like symptoms. In fact, I haven't had the flu in ages. I haven't had a cold or flu since these serious symptoms started. I don’t get sick like I use to, just this constant barrage of painful, and frightening symptoms.

Also, I use to vomit, alot, all the time, about 5 years ago, but it stopped about 3 years ago. Everything else has gotten steadily worse. When I did vomit, I did probably three times I day, and projectile like. This was around the time I started quitting recreational drugs (weed).

I know this sounds far fetched, and I have faithfully repeated this to many doctors, but their eyes open wide and they check my medical record, to refer me, yet again, to receive 'other methods of diagnosis'.

Does being manic depressed mean physical illness is impossible? I don't think they are mutually exclusive. I can be both. I am not taking any medication, although I did for a while ( year or so ) and retained the symptoms listed. Maybe I am only physically ill, and my panic and fearful state is being misdiagnosed as hysteria and depression?

I had meningitis as a child and a few broken limbs ( arm twice, ankle twice). Other then that, no medical history. I have taken accutane (spelling) for acne. Antibiotics. LSD, magic mushrooms, weed. Tried cocaine and ecstasy a few times. Haven’t taken a drug in three or four years except effexor and an anti psychotic (forget which one). Stopped those meds after about a year.

I have a horrible episodic memory and fantastic coordination aside from the mix ups of left and right hand activities. According to people I talk to, I should remember the month, if not the year my first dog died, or have a memory of it. I should be able to remember my old phone numbers, going to grade one, my first birthday party, basketball game, date, etc. I do not. This is not typical, I recently learned, (a few years back). I had no idea I had this handicap. I cannot say what I ate three days ago. Others apparently can. People find this impossible, but I don’t think it that odd. I remember voices, things said, pictures, but not events.

I have difficulty keeping track of time, it passes without my knowledge, and this hasn’t always been so. I am paranoid and believe nothing. This manifested itself after years of sickness and has only worsened. My personality prevents doctors taking an interest. I love socialized medicine, but I believe if I had the money to pay someone to look into this, I may find out what is a matter.

Heavy metal poisoning? Cancer? MS? Ticks? Tape worm? I have no idea. I don’t want to eat, or sleep or go outside.

One other thing. There are weird things, that occur once and a while, but the above problems are almost everyday. Stiff neck, muscle weakness, etc. These occur once and a while and go away. However, my head sometimes gets all weird and it feels like it is turning inside out. it is akward feeling and painful and signals a migraine. Also flashing lights, the feeling of being hit in the head with a blunt or sharp object.

Requesting help.

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11 Replies:

  • 26 year old, white male, six foot four, 250 pounds. For many years I was an active athlete. In nearly perfect health. Then a few years back, I moved in with my fiancé and started getting ill. Around that time I quit most of vices, (smoking weed, cigarettes, drinking, etc.) and started exercising due to my increasing illness. Symptoms are many. I have been to the doctor, they won't really see me. Even in the ER. I had a bad trip (psychosis from psychedelics) and went nuts many years ago. However, my symptoms are very real and referrals to psychologists are frequent without running basic blood, urine and other tests. I can no longer play sports well ( I could dunk, sprint, swim etc.) I gained a good amount of weight, which I cannot loose no matter what I try. Food is repulsive. Below are some other symptoms and I assure you, no hyperbole. Chest pain, smoking caused me to faint, so I had to quit. Pain is still very apparent in chest. Difficulty swallowing. Acid reflux. Numbness in throat and chest (outside not inside) Lower right abdominal pain (comes and goes and itches) right above my hip bone. Foamy urine that is sickly sweet smelling, bad bowel movements. Dark and light blood in stool. Moves from constipation to diarrhea. Reeks like burnt rubber. Hurts badly. Comes out like twisted play dough. I have what I think is a hemmroid. Migraines. Pressure. Thought of taking a corkscrew to my head to relieve it. (not kidding). Extreme sensitivity to light. Inability to run, jump or walk due to shin splints, calve pain, leg weakness. Heart skips beats, many of them, and often, is irregular, feels like gulping. Races out of control for no reason. I do not tire from excerise. Ever. This is odd due to the fact that my body hurts while excerising but I never feel fatigued, just pain. I have fainted and had seizures. 3 seizures, passed out many times. Feeling of wearing clothing I am not. Socks, hats, gloves, etc. (honestly). No coughing, ever. Even if I try hard, doesn't seem like coughing, not like I use to. Weak and ineffective. Swollen glands under my chin, they can be pushed around but that hurts badly. Lowering my my chin to my chest is impossible. Left and right side of my body gets tangled. Left hand thinks it is right hand, visa versa. Deja Vu frequently, many times a day, lasting for a very long time. Sometimes minutes. Eye pain behind right eye. Severe and almost constant. Loss in quality of eye sight, steadily over the last few years. Need new glasses every two years. Eyesight was almost perfect before all this. Pupils are different sizes and contract and expand independent of each other. Ear infections, clicking jaw. Clubbed fingers and toes. Slow nail and hair growth. Twitching muscles in arms and legs. Occasional right arm pain. Constantly plugged nostril. Always one, never both. I reek badly and sweat profusely. Despite all this. No fever. No runny nose. No flu like symptoms. In fact, I haven't had the flu in ages. I haven't had a cold or flu since these serious symptoms started. I don’t get sick like I use to, just this constant barrage of painful, and frightening symptoms. Also, I use to vomit, alot, all the time, about 5 years ago, but it stopped about 3 years ago. Everything else has gotten steadily worse. When I did vomit, I did probably three times I day, and projectile like. This was around the time I started quitting recreational drugs (weed). I know this sounds far fetched, and I have faithfully repeated this to many doctors, but their eyes open wide and they check my medical record, to refer me, yet again, to receive 'other methods of diagnosis'. Does being manic depressed mean physical illness is impossible? I don't think they are mutually exclusive. I can be both. I am not taking any medication, although I did for a while ( year or so ) and retained the symptoms listed. Maybe I am only physically ill, and my panic and fearful state is being misdiagnosed as hysteria and depression? I had meningitis as a child and a few broken limbs ( arm twice, ankle twice). Other then that, no medical history. I have taken accutane (spelling) for acne. Antibiotics. LSD, magic mushrooms, weed. Tried cocaine and ecstasy a few times. Haven’t taken a drug in three or four years except effexor and an anti psychotic (forget which one). Stopped those meds after about a year. I have a horrible episodic memory and fantastic coordination aside from the mix ups of left and right hand activities. According to people I talk to, I should remember the month, if not the year my first dog died, or have a memory of it. I should be able to remember my old phone numbers, going to grade one, my first birthday party, basketball game, date, etc. I do not. This is not typical, I recently learned, (a few years back). I had no idea I had this handicap. I cannot say what I ate three days ago. Others apparently can. People find this impossible, but I don’t think it that odd. I remember voices, things said, pictures, but not events. I have difficulty keeping track of time, it passes without my knowledge, and this hasn’t always been so. I am paranoid and believe nothing. This manifested itself after years of sickness and has only worsened. My personality prevents doctors taking an interest. I love socialized medicine, but I believe if I had the money to pay someone to look into this, I may find out what is a matter. Heavy metal poisoning? Cancer? MS? Ticks? Tape worm? I have no idea. I don’t want to eat, or sleep or go outside. One other thing. There are weird things, that occur once and a while, but the above problems are almost everyday. Stiff neck, muscle weakness, etc. These occur once and a while and go away. However, my head sometimes gets all weird and it feels like it is turning inside out. it is akward feeling and painful and signals a migraine. Also flashing lights, the feeling of being hit in the head with a blunt or sharp object. Requesting help. Being manically depressed doesn't meant that you cant also have simultaneously occuring physical illness.Also bear in mind that some organic illnesses can have symptoms or depression or psychosis and be misdiagnosed as having a mental illness.Some of the symptoms might be overanalysing for example one nostril being plugged but not the other and not being able to touch chest with chin.Many people can this this and its not a sign of illness.What tests have you already had?Have you have liver function tests and what were test results?Which pupil is larger then the other ?Have you had eeg?Is the blood in your stools from internal bleeding or is it from strain when using toilet?
    Anonymous 42789 Replies
    • September 17, 2009
    • 01:29 AM
    • 0
    Flag this Response
  • Sounds like you need a brain MRI. When you go to the doctors, only tell them the symptoms that bother you the most so the doctor can not write you off immediately as a psychiatry patient if you know what I mean. Tell them the symptoms that go together:The different sized pupilsThe head painThe seizuresThe migrainesThe light sensitivityThose are possible symptoms of a brain tumor. Tell the doctor only about that and the GI problems-the constipation and perceived bleedingDo not mention stuff like your left and right sides are getting tangled and it feels like you're wearing clothes. Maybe it's real but they won't believe you.
    Anonymous 42789 Replies
    • September 17, 2009
    • 03:55 AM
    • 0
    Flag this Response
  • I have had three MRI's? I think they were MRI's. Big, loud machine. I have what doctor's call pullips (sp?). Small growths, nothing to worry about. Apparently, almost everyone has some sort of growth, mine are harmless. I suppose I should have mentioned the tests that have been done, as well as the ones that haven't. I have had quite a few MRI's. Three or four, I honestly don't remember, over the past couple years. Some machine was hooked up to me to monitor my heart once. Blood test years ago. I can understand the merit of not telling my doctor my complete medical history and every symptom to avoid looking eccentric, but my medical record clearly states my history. Perhaps I should go to a larger city centre? The only other thing I did not mention was my difficulty in paying attention, and the FOG. I almost feel the weight of it. I **** up sentences, forget common words, loose track of what I am saying. All of this seems like mental illness, so I don't mention it. However, within mania and depression there is clarity, not confussion. Pupose, not aimless meandering. This has changed. At least, it has always been so for me. About the eyes. My right eye is larger, and both contract oddly, and rapidly, like the iris is trying to focus. The blood is my stool, I would have no idea if it is internal or external. Sometimes bright, sometimes dark red. Is an EEG something can checks out your heart? Oh, and I heard ridges on your nails means you could be injecting something you are allegic too. Mine never use to have ridges, but now, there are many flat ones running everywhere. That could be normal, I just read it somewhere a long time ago. Could that be an allergy>?
    Anonymous 42789 Replies
    • September 17, 2009
    • 10:44 PM
    • 0
    Flag this Response
  • I am going to watch your thread. I have had many of the same things and your situation sounds all too similar. I was able to get one diagnosis- celiacs. Although after going gluten free my symptoms have not gotten better. I am now exploring other auto immune possibilities since it seems that if you have you are more likely to have more. One that combines all the symptoms you have and that I share as well is autoimmune thyroid- specifically Graves. I have been tested Hashimoto's and it was negative. But my doctor seems to think that these symptoms are similar to pheochromocytoma, so she is testing me for that today. Do not give up. When you know there is something wrong, keep pushing for tests. And do not let anyone convince you that it is all in your head. These feelings are real- I find myself questioning my own reality of my symptoms after these many years. Read about autoimmune thyroid, you can have normal lab test results and still have the anti bodies. I wish you luck and I'll check back in if I have any more useful news.
    Anonymous 42789 Replies
    • September 18, 2009
    • 03:54 PM
    • 0
    Flag this Response
  • Some of the substances you took, drugs can cause life long problems unfortunately and I am not sure how long ago you got off drugs but it can cause serious withdraw and its scary but withdraw can last a long time. I was once on a med for Depression I forget now but a common one and it can take years to get off and result in Schizophrenia! If you are on prescribed meds look into their side effects see if you can find groups online of people having problems with them and if they match yours. Talk to your doctor about meds. But I know how you feel I have ADD and they act like I am insane, the moment I mention it the doctors are like mmmmhmmm well that explains it, and I am thinking ADD causes severe constipation and seizures? But its very difficult to get a doctor to listen once they know you've had any type of psychological problem, you may have to find an organization in your city that works with people who have Bipolar and various things and have them I don't know force the doctor to give you the fair treatment you deserve, because yes you can be sick.I have some of the same symptoms (posted here recently so if I find out I'll let you know encase) and I have Hashimotos Thyroiditis, and I am also going to be checking for Celiac (which can cause neurological problems even seizures). I'd try and see a Neurologist and Gastrointerologist, and definently a Cardiologist as well. It sounds like you might have a heart murmur (not that I am a doctor, among other things) but all the stuff you have done can really damage the heart.
    kesaiserris 35 Replies
    • September 19, 2009
    • 11:10 AM
    • 0
    Flag this Response
  • Some of the substances you took, drugs can cause life long problems unfortunately and I am not sure how long ago you got off drugs but it can cause serious withdraw and its scary but withdraw can last a long time. I was once on a med for Depression I forget now but a common one and it can take years to get off and result in Schizophrenia! If you are on prescribed meds look into their side effects see if you can find groups online of people having problems with them and if they match yours. Talk to your doctor about meds. But I know how you feel I have ADD and they act like I am insane, the moment I mention it the doctors are like mmmmhmmm well that explains it, and I am thinking ADD causes severe constipation and seizures? But its very difficult to get a doctor to listen once they know you've had any type of psychological problem, you may have to find an organization in your city that works with people who have Bipolar and various things and have them I don't know force the doctor to give you the fair treatment you deserve, because yes you can be sick.I have some of the same symptoms (posted here recently so if I find out I'll let you know encase) and I have Hashimotos Thyroiditis, and I am also going to be checking for Celiac (which can cause neurological problems even seizures). I'd try and see a Neurologist and Gastrointerologist, and definitely a Cardiologist as well. It sounds like you might have a heart murmur (not that I am a doctor, among other things) but all the stuff you have done can really damage the heart.Have you been checked for Diabetes sorry I just thought of that with the breath odor. Fruity or sweet breath occurs with ketoacidosis though some meds will do it.
    kesaiserris 35 Replies
    • September 19, 2009
    • 08:24 PM
    • 0
    Flag this Response
  • You would be a wonderful patient for a homeopathic doctor. I would love for you to find one and then document what he/she gives you and your results for all of us to follow your improvement. Good luck on your venture. Forget modern medicine.corkscrew to head symptom is important...just print your list and hand it to him/her.
    Monsterlove 2921 Replies
    • September 20, 2009
    • 08:05 AM
    • 0
    Flag this Response
  • Your doctors should have their ****s sued.If I were you I'd make an appointment to do a 5-day 'diagnostic program' w/ Mayo Clinic or something similar. Do it NOW, will take a month or two to get in. They won't screw you around, they have all the latest technology and they will do every possible test and get to the bottom of it very quickly. www.MayoClinic.com They have a few different locations. With your range of symptoms, I'd plan to stay 2-3 weeks, and you'll probably have to come back.
    Anonymous 42789 Replies
    • September 21, 2009
    • 04:42 PM
    • 0
    Flag this Response
  • http://www.mold-survivor.com/symptoms.htmlhttp://www.allergyescape.com/toxic-mold.html26 year old, white male, six foot four, 250 pounds. For many years I was an active athlete. In nearly perfect health. Then a few years back, I moved in with my fiancé and started getting ill. Around that time I quit most of vices, (smoking weed, cigarettes, drinking, etc.) and started exercising due to my increasing illness. Symptoms are many. I have been to the doctor, they won't really see me. Even in the ER. I had a bad trip (psychosis from psychedelics) and went nuts many years ago. However, my symptoms are very real and referrals to psychologists are frequent without running basic blood, urine and other tests. I can no longer play sports well ( I could dunk, sprint, swim etc.) I gained a good amount of weight, which I cannot loose no matter what I try. Food is repulsive. Below are some other symptoms and I assure you, no hyperbole. Chest pain, smoking caused me to faint, so I had to quit. Pain is still very apparent in chest. Difficulty swallowing. Acid reflux. Numbness in throat and chest (outside not inside) Lower right abdominal pain (comes and goes and itches) right above my hip bone. Foamy urine that is sickly sweet smelling, bad bowel movements. Dark and light blood in stool. Moves from constipation to diarrhea. Reeks like burnt rubber. Hurts badly. Comes out like twisted play dough. I have what I think is a hemmroid. Migraines. Pressure. Thought of taking a corkscrew to my head to relieve it. (not kidding). Extreme sensitivity to light. Inability to run, jump or walk due to shin splints, calve pain, leg weakness. Heart skips beats, many of them, and often, is irregular, feels like gulping. Races out of control for no reason. I do not tire from excerise. Ever. This is odd due to the fact that my body hurts while excerising but I never feel fatigued, just pain. I have fainted and had seizures. 3 seizures, passed out many times. Feeling of wearing clothing I am not. Socks, hats, gloves, etc. (honestly). No coughing, ever. Even if I try hard, doesn't seem like coughing, not like I use to. Weak and ineffective. Swollen glands under my chin, they can be pushed around but that hurts badly. Lowering my my chin to my chest is impossible. Left and right side of my body gets tangled. Left hand thinks it is right hand, visa versa. Deja Vu frequently, many times a day, lasting for a very long time. Sometimes minutes. Eye pain behind right eye. Severe and almost constant. Loss in quality of eye sight, steadily over the last few years. Need new glasses every two years. Eyesight was almost perfect before all this. Pupils are different sizes and contract and expand independent of each other. Ear infections, clicking jaw. Clubbed fingers and toes. Slow nail and hair growth. Twitching muscles in arms and legs. Occasional right arm pain. Constantly plugged nostril. Always one, never both. I reek badly and sweat profusely. Despite all this. No fever. No runny nose. No flu like symptoms. In fact, I haven't had the flu in ages. I haven't had a cold or flu since these serious symptoms started. I don’t get sick like I use to, just this constant barrage of painful, and frightening symptoms. Also, I use to vomit, alot, all the time, about 5 years ago, but it stopped about 3 years ago. Everything else has gotten steadily worse. When I did vomit, I did probably three times I day, and projectile like. This was around the time I started quitting recreational drugs (weed). I know this sounds far fetched, and I have faithfully repeated this to many doctors, but their eyes open wide and they check my medical record, to refer me, yet again, to receive 'other methods of diagnosis'. Does being manic depressed mean physical illness is impossible? I don't think they are mutually exclusive. I can be both. I am not taking any medication, although I did for a while ( year or so ) and retained the symptoms listed. Maybe I am only physically ill, and my panic and fearful state is being misdiagnosed as hysteria and depression? I had meningitis as a child and a few broken limbs ( arm twice, ankle twice). Other then that, no medical history. I have taken accutane (spelling) for acne. Antibiotics. LSD, magic mushrooms, weed. Tried cocaine and ecstasy a few times. Haven’t taken a drug in three or four years except effexor and an anti psychotic (forget which one). Stopped those meds after about a year. I have a horrible episodic memory and fantastic coordination aside from the mix ups of left and right hand activities. According to people I talk to, I should remember the month, if not the year my first dog died, or have a memory of it. I should be able to remember my old phone numbers, going to grade one, my first birthday party, basketball game, date, etc. I do not. This is not typical, I recently learned, (a few years back). I had no idea I had this handicap. I cannot say what I ate three days ago. Others apparently can. People find this impossible, but I don’t think it that odd. I remember voices, things said, pictures, but not events. I have difficulty keeping track of time, it passes without my knowledge, and this hasn’t always been so. I am paranoid and believe nothing. This manifested itself after years of sickness and has only worsened. My personality prevents doctors taking an interest. I love socialized medicine, but I believe if I had the money to pay someone to look into this, I may find out what is a matter. Heavy metal poisoning? Cancer? MS? Ticks? Tape worm? I have no idea. I don’t want to eat, or sleep or go outside. One other thing. There are weird things, that occur once and a while, but the above problems are almost everyday. Stiff neck, muscle weakness, etc. These occur once and a while and go away. However, my head sometimes gets all weird and it feels like it is turning inside out. it is akward feeling and painful and signals a migraine. Also flashing lights, the feeling of being hit in the head with a blunt or sharp object. Requesting help.
    Chevy2413 12 Replies
    • September 23, 2009
    • 03:15 PM
    • 0
    Flag this Response
  • I am going to watch your thread. I have had many of the same things and your situation sounds all too similar. I was able to get one diagnosis- celiacs. Although after going gluten free my symptoms have not gotten better. I am now exploring other auto immune possibilities since it seems that if you have you are more likely to have more. One that combines all the symptoms you have and that I share as well is autoimmune thyroid- specifically Graves. I have been tested Hashimoto's and it was negative. But my doctor seems to think that these symptoms are similar to pheochromocytoma, so she is testing me for that today. Do not give up. When you know there is something wrong, keep pushing for tests. And do not let anyone convince you that it is all in your head. These feelings are real- I find myself questioning my own reality of my symptoms after these many years. Read about autoimmune thyroid, you can have normal lab test results and still have the anti bodies. I wish you luck and I'll check back in if I have any more useful news.I posted this previously. I have since been checked for Grave's and it has come back negative. I completed the 24 hour urine test for pheochromocytoma and that was negative, but my endo told me to take it again ONLY when I am having an attack. He said that it is very easy to miss these hormones unless it is actively presenting itself. So I started collecting urine every day and if nothing happened, I dumped it and started again. Well, I was glad I did. Two days ago I had an attack that landed me in the ER. The next morning I completed the collection and brought it into the lab. i will have the results in 2 days. Don't give up. String along five doctors if you have to in order to get the tests you need. But NEVER give up. This is your one and only life, you have the right to live it well.
    Anonymous 42789 Replies
    • October 19, 2009
    • 01:35 AM
    • 0
    Flag this Response
  • I have also gotten increasingly ill over the last 5 years. The majority of your symptoms I experience as well. When my health took a turn for the worse I went from being super healthy to super sick; after about a year the illness tapered off and now I feel kind of sick all the time and am now used to it. Eventually after months of testing I finally had a positive for Lyme disease with no remission after antibiotics. I did another round of antibiotics...didn't work; so then I did 6 months of antibiotic drug therapy. Again, this did not work. Unfortunately my health insurance dropped me so I've been uninsured ever since and my symptoms have gone completely untreated. Before the insurance dropped me when I needed it most, Dr.'s at Yale New Haven Hospital were confused by my lab results. The lyme infection remained active well over a year after being diagnosed. They told me lyme disease can possibly cause other diseases like lupus or rheumatoid arthritis and seemed eager to figure me out...bottom line is that this particular disease can be very difficult to diagnose and can cause a snowball effect of problems because it can potentially effect any part of the body. The major symptoms I experience include:Muscle spasms or twitchingJaw clicking/popping/lockingFrequent faiting spells out of nowhere. (i fainted once while grocery shopping and never even felt it coming)Strange bowel movementsEXTREME sensitivity to light and sound. (not necessarily with migraine)MigraineMemory lapseStutteringNausea/vommiting/vertigoRandom pain anywhere @ any given time.InsomniaStiff neck/backSharp pain inside my head (literally feels like deep inside my brain)When I exercise, I do not get tired, I can go forever as far as cardio workouts go...but my body wont let me continue sometimes. It's very painful; and that similarity in us surprised me because most doctors have no idea what to tell me. It seems like doctors don't want to admit that all these problems could be completely just lyme related. They kept trying to find something else wrong with me instead of just palliatively treating my symptoms. Quite honestly, it was so stressful that even doctors didn't know what was wrong with me. Some referred me to psychiatry. I think that made me worse seeing as stress exacerbates symptoms. I probably know more about Lyme disease than most doctors. Unfortunately only doctors that live in deer tick territory know anything about it...with few exceptions. Do some research on auto-immune disorders. You need some peace of mind.
    Anonymous 42789 Replies Flag this Response
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