Two years ago I had a full blown grand-mal seizure ( no previous history of seizures) that dropped into statis, and for the last two years, i have had to fight to get my insurance company and my doctors to look at the symptoms as a whole.. ie.. my blood pressure and temp increase, i have an aura before the seizures, sudden intense headaches after seizures - unlike anything i have ever experienced, makes me want to put my head through the wall, nausea and vomiting after a seizure along with the headache. ( no history of any kind of headaches or migraines). Discrepencies in neurological function-ie i can't speak, move, etc.
During my original interview witht he first neurologist i saw for the seizures, he didn't ask me a single question, just made disparraging remarks about women, spent about 4 minutes being obnoxiously rude, and promptly walked out... of course , i promptly went to get another neuro, but as we all know, Dr's taint eachoters diagnosis's and their treatment of their patients.
Until two years ago, and until i moved to Florida, i had never had issue with the medical community, which i am a part of, and at this point in my journey in florida, i am ashamed of. I was diagnosed with malignant MS and fought my way to live with it.. not become it.. i have never, not while i lived in NC, or in IL or in IOWA where i went to graduate school been told i was a bad, non-copmpliant patient.
How ever.. i feel that this particular DR's opion ( and i do use the word opinion, very lightly) sabatoged not only my diagnosis , but my access to care.. they are treating the systems individually.. but i am not a symptom or disease, nor do i wish to die simply because, someone was to lazy to order an angiograph. and Listen to a patient instead of one line in a five minute insulting conversation two years ago.
BTW... any recommedations as to what else we can look for. This isnt sijple seizure activeity. i have been on 20 different meds in 2 years, and they are refractory seizures... always following the same pattern.. static or LT clustering, increase BP/Body temp, headache. nausea/vomiting.
Any suggestions would be greatly appreciated.
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