Discussions By Condition: I cannot get a diagnosis.

Incompetency= drugs and more drugs

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • January 15, 2007
  • 06:25 PM

Two years ago I had a full blown grand-mal seizure ( no previous history of seizures) that dropped into statis, and for the last two years, i have had to fight to get my insurance company and my doctors to look at the symptoms as a whole.. ie.. my blood pressure and temp increase, i have an aura before the seizures, sudden intense headaches after seizures - unlike anything i have ever experienced, makes me want to put my head through the wall, nausea and vomiting after a seizure along with the headache. ( no history of any kind of headaches or migraines). Discrepencies in neurological function-ie i can't speak, move, etc.

During my original interview witht he first neurologist i saw for the seizures, he didn't ask me a single question, just made disparraging remarks about women, spent about 4 minutes being obnoxiously rude, and promptly walked out... of course , i promptly went to get another neuro, but as we all know, Dr's taint eachoters diagnosis's and their treatment of their patients.

Until two years ago, and until i moved to Florida, i had never had issue with the medical community, which i am a part of, and at this point in my journey in florida, i am ashamed of. I was diagnosed with malignant MS and fought my way to live with it.. not become it.. i have never, not while i lived in NC, or in IL or in IOWA where i went to graduate school been told i was a bad, non-copmpliant patient.

How ever.. i feel that this particular DR's opion ( and i do use the word opinion, very lightly) sabatoged not only my diagnosis , but my access to care.. they are treating the systems individually.. but i am not a symptom or disease, nor do i wish to die simply because, someone was to lazy to order an angiograph. and Listen to a patient instead of one line in a five minute insulting conversation two years ago.

BTW... any recommedations as to what else we can look for. This isnt sijple seizure activeity. i have been on 20 different meds in 2 years, and they are refractory seizures... always following the same pattern.. static or LT clustering, increase BP/Body temp, headache. nausea/vomiting.

Any suggestions would be greatly appreciated.



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1 Replies:

  • Lyme Disease & its co-infections come to mind, many tests give false negs, so get the western blot, ....Lyme does affect the brain and can cause seizures. Hope you feel better soon.
    Anonymous 42789 Replies
    • January 17, 2007
    • 00:04 PM
    • 0
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