Discussions By Condition: I cannot get a diagnosis.

immobile mom

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • March 8, 2007
  • 11:13 PM

I hope maybe someone has heard of this happening before. For the last 3 days, my legs have been tingly/numb/burning. I can move, but it's like I have to cross country ski with my feet to get anywhere. I have fallen and gotten a concussion twice when this happens, and of course I can't drive. I have also noticed memory and concentration problems, like repeating myself and forgetting why I went somewhere. This has been happening for over a year, and along with my legs, my face, arm, and shoulder can go numb at any time, and last from 20 minutes to 5 days straight. I have had MRI's, EEGs, bloodwork, physical therapy, psychological testing, spinal taps, you name it. Basically, my doctors have told me it's like I have MS without having a positive test saying so. But because of no official diagnosis, I cannot be treated for something that "isn't there". This is severely frustrating because I can't drive, move around at work, go up stairs and take care of my 2 year old. Has anyone heard of anything like this?

Ps-MRI has revealed 2 brain lesions, not changed for 1.5 years

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1 Replies:

  • i have ms and it does sound alot like it to me. there is no test for ms they just have to rule everything else out as far as the lesons go those can change all the time some times more sometimes less you also need to have spinal tap done
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