Discussions By Condition: I cannot get a diagnosis.

Ignored Chiari I Malformation

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: dmelissa13
  • December 1, 2007
  • 08:26 PM

My MRI results from 02, 03, and 06 all show Chiari I Malformation (1-1.2 cm), no visible syrynx. Somehow these results have been overlooked and no doctors have pursued it as the cause of the symptoms that have plagued me for years - headaches, neck and shoulder pain, dizziness, brain-fog and spacey-ness, choking, falling, blurry vision, chest pain, poor hand-eye coordination, fatigue, pulsing head and headaches on exertion and exercise, many more.

I recently found my copy of the MRI results and looked it up online - discovering the correlation! I brought it to my doctor's attention and she didn't seem to think it was related. I have been treated for depression for over a year. Treated with Strattera for ADD (I can't tell if it helps with focus and brain-fog - I guess that means it doesn't?). I have been treated for migraines for several years - triptans have never worked (because they aren't migraines?!) What can I expect from here? How do I get my doctor to seriously consider this? Could it be something else? So frustrated and miserable living this way!

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1 Replies:

  • get another doctor pronto!Don't stop till you find one that will really listen!!Start sending your MRI reports to well know chiari experts. keep your chin up and don't give up!!
    Anonymous 42,789 Replies
    • December 1, 2007
    • 11:53 PM
    • 0
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