Discussions By Condition: I cannot get a diagnosis.

If not MS then what?

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Lola56
  • October 26, 2006
  • 02:30 PM

For about two years I have experienced all the symptoms of Multiple Sclerosis yet my neurologist has yet to confirm the diagnosis. This is most frustrating as a definite diagnosis would really help me in my day to day life, for example getting help from the MS Society and getting physiotherapy. She keeps asking for tests to be redone and for more tests to be done. Again, I show all the symptoms of MS, I with difficulty using canes and I do not like to go anywhere alone in case I fall. I cannot climb stairs or lift anything. I cannot use the computer or type for long since my hands shake and my eyes tire easily.

My MRI showed the nodes of someone with MS, and they also showed a mass behind my left eye. This bothers me since I do not know if the mass is cancer, though if it was I am sure my doctors would have removed it by now. I just seem to be waiting in limbo as my overall helath is affected.

If not MS, what could be the cause? Thank you,


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2 Replies:

  • mass behind eye on MR scan associated with ?MS = retrobulbar neuritis
    Anonymous 42789 Replies
    • October 26, 2006
    • 08:01 PM
    • 0
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  • I think it's time for a new doctor. That's way too long to suffer without a diagnosis. You can go in and get your records or have them sent over to the new doc if you don't want to do the tests over again.Two years! Wow! Good luck...
    vylette 1 Replies
    • October 27, 2006
    • 01:19 AM
    • 0
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