Discussions By Condition: I cannot get a diagnosis.

idiopathic autonomic neuropathy

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: nahamira
  • December 10, 2007
  • 08:29 AM

I have a dear friend and neighbor who also happens to be our small town Doctor. He is now in his mid seventies and just survived a bout with cancer(which did not stop him from going to the office every day!) A few weeks ago he started having trouble with double vision, fainting spells and first diagnosis pointed towards a heart condition. Heart surgery was performed, yet without success. Then finally he was diagnosed with autoimmune autonomic neuropathy(supposedly caused by a virus!?!), given some meds and sent home. Symptoms include: sudden severe drop in blood pressure which causes him to faint, weakness, profuse sweating, uncontrolled eyemovements etc. I spent about an hour with him this evening and witnessed 3 spells in that amount of time in which the BP dropped from 117/74 to 76/40 within moments, leaving him exhausted and depressed. Apparently whatever meds he has been given do not work, his wife is beside herself with worry and very little info was given to her when he was at the hospital. She asked me to do some research and find answers to the following questions: what treatment options are there? Is there someone who went through this also and how did he/she overcome this? Is there hope of recovery? Which doctors specialize in this area aside from the majo clinic nationally/internationally? What can she do to help him? Is there a support group? Any answers would be greatly appreciated. This is a man who dedicated most of his life to this little town, who knows everyone here and has been one of those wonderful Doctors you only read in books anymore. He deserves so much better than this:(

Reply Flag this Discussion

1 Replies:

  • i have a dear friend and neighbor who also happens to be our small town doctor. He is now in his mid seventies and just survived a bout with cancer(which did not stop him from going to the office every day!) a few weeks ago he started having trouble with double vision, fainting spells and first diagnosis pointed towards a heart condition. Heart surgery was performed, yet without success. Then finally he was diagnosed with autoimmune autonomic neuropathy(supposedly caused by a virus!?!), given some meds and sent home. Symptoms include: Sudden severe drop in blood pressure which causes him to faint, weakness, profuse sweating, uncontrolled eyemovements etc. I spent about an hour with him this evening and witnessed 3 spells in that amount of time in which the bp dropped from 117/74 to 76/40 within moments, leaving him exhausted and depressed. Apparently whatever meds he has been given do not work, his wife is beside herself with worry and very little info was given to her when he was at the hospital. She asked me to do some research and find answers to the following questions: What treatment options are there? Is there someone who went through this also and how did he/she overcome this? Is there hope of recovery? Which doctors specialize in this area aside from the majo clinic nationally/internationally? What can she do to help him? Is there a support group? Any answers would be greatly appreciated. This is a man who dedicated most of his life to this little town, who knows everyone here and has been one of those wonderful doctors you only read in books anymore. He deserves so much better than this:(my sis had some of this symptoms: Faints after every step she takes, she had a pacemaker inserted and she is fine now, had four kids after that. Pacmaker will control teh herat rate and pressure........... Might help
    Anonymous 42789 Replies
    • October 9, 2010
    • 05:25 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.