Discussions By Condition: I cannot get a diagnosis.

I was turned down by Mayo Clinic

Posted In: I cannot get a diagnosis. 21 Replies
  • Posted By: Anonymous
  • January 11, 2007
  • 01:50 AM

I am just so frustrated & do not know what to do now. For 2 years I have been going to specialist after specialist to find out what is wrong with me. They usually do a few blood tests & then send me away telling me everything is fine. I have not had extensive testing for Lupus. My cortisol did test low a couple of years ago & the Endocrinologist mentioned that I might have a problem with my Thyroid (My Cortisol was 3.3 in the AM). He then did another test 3 months later (It took me that long to get an appointment) & it was 13.3. He told me the first test must have been wrong & after the 2nd test being so high I was fine. I also just had excision surgery for Endometriosis (the surgeon said he removed all of it---I was at Stage II). I have missed so much time from work for tests & doctors appointments (I cannot keep missing & missing). I have not even had a break for over 2 years to take a vacation (not even a day---that sucks big time). I finally decided as my last option to go to Mayo Clinic (what the heck---I have PPO & can choose who I want to go to). They take my insurance. After hanging up on one person & speaking with a manager at Mayo I was told that the nurse reviewed all my symptoms (I filled out an online application) & due to me having chronic fatigue there is nothing they can do (They said that their clinic in Minnesota handles chronic fatigue). I told them no one had diagnosed me with chronic fatigue & I do not know why they would tell me that. They said that due to all my symptoms being related to chronic fatigue they cannot help me & that I need to either follow up with my doctors (which do not do CRAP where I live) or go to one of the teaching hospitals in Florida. I told them that maybe I have an underlying illness (which I think I might have a problem with my Thyroid) that could be causing my fatigue & I need someone to just do testing to find out what is wrong. They still stated there is nothing they can do. They were refusing to send me something in writing until I spoke with a manager. I am supposed to be getting something in the mail shortly.

CAN THE MAYO CLINIC DO THIS???? I DO NOT KNOW WHAT TO DO NOW. I FEEL LIKE I AM AT THE END OF MY ROPE

Does anyone know of a teaching hospital in Florida that deals with Chronic Fatigue?

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21 Replies:

  • :) Hello, God willing i'll take on the task of finding a good health care profesional, in florida i was born in jacksonville @ the navy hospital & so my friend i'm off to see what's up. As Always, In His Service.:)
    hogndog 426 Replies
    • January 11, 2007
    • 02:48 AM
    • 0
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  • I know exactly what you're going through. My husband is undiagnosed after 4 years with dibilitating symptoms. The only way we could get to the Mayo was on a referral from a doctor in our network after we'd seen everyone we could locally- and IT WAS NOT EASY!!! I literally had to beg on his behalf to get help. If you can, find the most compassionate doctor you've been to, tell him/her that you are at the end of your rope and you want a referral to Mayo. If you can, find an advocate who can speak on your behalf to come with you to an appointment - preferably someone who is good at speaking up. The Mayo has a long line of people wanting to get in so you'll need the backing of a doctor to get in. Then ask to be put on the cancellation list at Mayo. Be ready to get there at the drop of a hat. It worked for us over a Thanksgiving weekend when another patient cancelled last minute. We have an open invitation to return whenever we want to since my husband is now an existing patient.Hope that helps. Good luck.
    Anonymous 42789 Replies
    • January 11, 2007
    • 04:34 AM
    • 0
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  • I was also turned down by Mayo. My aunt works as a nurse there though & I asked her what I could do. If you physically go to Mayo and let them know that you want to be seen, they have to see you, legally. Sometimes you have to wait and the longest wait is usually three days, but you don't need a referral if you do it this way. Just bring a copy of all your medical records & tests.
    Anonymous 42789 Replies
    • January 11, 2007
    • 02:38 PM
    • 0
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  • :( Yesterday i did a search for you & i googled a place in Florida, just for you. Did you recieve this information? If not do what i did, enter natural health care faucilities in the state of Florida, it is there you will find your answer. Have a problem with doing this on your own. let me know. Good Luck!:)
    hogndog 426 Replies
    • January 11, 2007
    • 02:48 PM
    • 0
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  • Honestly, I don't understand why the Mayo Clinic is so fantastic - it is like the Holy Grail of Western Medicine. The fact is, there are countless disorders that go undiagnosed in Western Medicine and especially for CFIDS there are not many good treatments for the ones they do diagnose! I recommend two things to you: 1. Test yourself for Candida. Most doctors think this is bunk, but it is not and affects millions of Americans. Please visit these websites: www.candidasupport.org and www.wholeapproach.com. There is a written questionaire you can download, as well as a saliva test you can do at home. These aren't definitive tests, but there aren't any truly accurate tests out there (hence the difficulty and denial in diagnosing it!) Candida is a contributing factor in all kinds of disorders, such as CFIDS, Fibro, Endometriosis, and others. Please take a look and use their suggestions! 2. Find an acupuncturist who is also trained in Chinese Herbs. This can be very helpful. Oriental Medicine is a complete form of medicine based on very ancient principles of health and balance. We diagnose disease in a very different way and I believe it is more effective at treating so called "mystery diseases". To find one near you please visit www.acufinder.com and type in your zip code. It must be frustrating to have someone like the Mayo clinic not take you seriously. But please consider other forms of treatment that may be more effective! Wishing you the best of luck.Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 11, 2007
    • 02:53 PM
    • 0
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  • Thanks for everyone's help!! I have heard some very interesting & informative information. Sorry it took so long to get back to everyone who responded. Sometimes I do not get on my computer at home for weeks at a time. Also, people usually think Fridays are the best days of the week, but to me it is the worst day of the week. I am usually the most tired because on Fridays I am trying to finish up & get everything caught up & ready at work for the next week. I am sure some of you know how that is. I will do much more reading & responding this weekend when I can rest from such a long work week. I have people at work asking me why I haven't read my E-mails that they sent me 2 weeks ago. I work all day long for 5 days a week at a computer & with this fatigue (especially during the week) it is worse when I get on the computer. I am checking all your responses out right now. I will keep all of you posted of what I find out. I am looking into the Natural Health Care facilities right now & I have found alot of information. The thing about the yeast (I think that is much of a possibility & I am looking into those sights as well). I have quite a bit more that I would like to say, but I am going to have to get off the computer right now (I get to the point that my eyes get sooo tired I can't hardly hold them open---especially when I am on the computer for long hours). Will get back with you within the next few days.
    Anonymous 42789 Replies
    • January 12, 2007
    • 11:26 PM
    • 0
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  • :) Just a note, be waiting for you to come back; Now go & get some rest. Ta-Ta.
    hogndog 426 Replies
    • January 12, 2007
    • 11:33 PM
    • 0
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  • HERES THE SCOOP!!! SORRY SO LENGTHY BUT I WANTED TO LET YOU ALL KNOW WHAT IS GOING ON WITH ME!!!I am going to try to see if I can go in person to the Mayo Clinic. Of course that is hard when you have a job that is very demanding & I do not get alot of time to miss to go the doctor & such. Right now I only have approx. 2 days to miss from work. That is the problem I am having.I honesty do think that some of my problems could be either (celiac, yeast or toxin related). I did buy a book around January of 2006 (before I had my first Endometriosis surgery). It is called the Yeast Connection. I was about to change my whole diet (& still want to when I am able to). I don't think it related to everyone, but I think there are some of us that are more sensitive to yeast than others. And of course, I have been on antiobiotics so much I think they they have thrown out my whole good bacteria (bad bacteria) balance. I get put on antiobiotics it seems like at least once every month (sometimes 2) by the ER. I have went round & round with them about that (especially the last time they did not do a Urine Culture & I told them that they may have put me on antibiotics when I did not even need them). The reason being is that I recently (within the past month) had some testing done (of course all the doctors said there was nothing to be concerned about). My direct bilirubin was high on my blood test. My protein level was high (I had 2 Urinalysis tests with the both Urine cultures being negative for a Urinary Tract infection) on both Urine tests. I also had a 24 hour urine test & my creatine was either low or high (I can't remember right now). They also did a ANA titer that was negative. Now last year I had some testing done by an Endocrinologist. He did a Cotisol & it was low but when he did it again it was fine & he just dismissed the low cortisol as a lab error. He also did an ACTH test & it was very low according to my test results. I also had a TSH a while back & it was (either low or high I can't remember). I had a recent Pelvic/Abdominal Ultrasound that was fine. I had a recent Abdomen CT scan & they found a 4.8 mass on my right side (they said it looks like a cyst on my ovary). I was also scheduled to go to a Neurologist last week to do a Nerve Conduction studies on my hand (but had to cancel because I could not afford it---they wanted me to pay all my 20% coinsurance up front). I have been having weakness in my hand. It gets to the point (it also happens in my other hand too but not as much because I do not use that hand as much) where I cannot fill out paperwork at work (luckily when this happens I just make phone calls or do something else instead). I also have to stop stearing when I drive & use my left hand (& only my left hand because my right hand hurts so bad). I start having this stabbing like feeling right in the middle of my wrist. At night sometimes it starts knawing all around my palm & the top of my hand around my joints (sorta I guess like arthritis--not sure because I have never had it so I do not know). Not sure if it is related but I do have 2 bulging discs in my back too. The neurologist I saw (he is VERY good) said it does not sound like carpal tunnel because I have no numbness at all & no flaring pain up my arm.I have an appointment on 01/26/07 to go to the Otolaryngologist (not sure if I spelled that correctly) to look at my ears. I have also been having problems with them. I am having ear pain & problems being sensitive to noise. It is the strangest feeling in the world. Sometimes I can't hear things & have to turn the tv or phone at work up real loud but then other times (it has to do with certain pitches) the noise bothers me so much I almost start crying & then it gives me a headache. I am also having alot of other problems (fatigue-----losing my mind----It gradually gets worse as I get older. I graduated with honors & I am slowly falling apart. I used to be so sharp & quick & hardly ever forgetful. Lately I feel like a complete idiot especially at work. I am always having to look for things over & over because I am always losing them. I can't remember things from one day to the next. I was even driving the other day & could not remember where I was. I got completely lost & to this day I do not know what happened. My husband has to do bills because I lose them & forget to pay them. Everytime I turn around I am late to work with all kinds of excuses (I think my boss sometimes thinks I am lying about the excuses because they are so out of the ordinary but I am not). I constantly buy things over & over at the store & before you know it we have 5 things of suger in the pantry (& I honestly do not remember buying the others). My mother tells me that I tell her things when I told her I did not. We argue about it & I keep denying it. I tell my husband things & then change the story later on because I can't remember. Then he thinks I am lying. Of course at times I am still sharp & I am so fast at work (I have always been faster than everyone else) that even though I spend alot of my day, looking for things & redoing things over because I thought I did it when I did not, that I still get my work done with practically no errors. Its sad though knowing that I could actually go back to school & get a degree & work at a job making a WHOLE lot more money but with these memory problems & such there is not alot of jobs that I can do. I am lucky that I have the job I have. It does not take a lot of smarts to do & I get paid pretty well considering. I DO feel like though if I did not have these problems I could do a whole lot better for myself). Of course, most of these problems I do not tell my doctor. I just wait for them to do the testing & hope that the tests speak for themselves but they never do. I swear I feel like I am 80 years old sometimes. I tell myself when I turn 80 years old it will not be so bad because I have already went through almost everything. And, to top it off my husband does not believe in the yeast or toxin connection. I am rambling on & on & probably boring you to oblivion. Oh, another thing. In my family I have a history of Dementia, Sjogrens Syndrome, Thyroid problems, Lupus & Rheumatoid Arthritis.I am searching the web regarding everything that all of you told me about (the natural healthcare facilities in florida & the websites about the yeast diet & everything). I did find a few things that I am looking into right now. I am going to try to change my diet the best I can with the money that I have (I sometimes wish I was rich so that I would not have to work & that I could go to the health food store & buy everything natural (soap, cleaning products, food, etc.) & make everything from scratch. Then I could redo my whole house & make it a completely clean environment. But there are alot of us who do not have the money to do that (me being one of them). I am really blessed to be able to get on the internet (my husband was thinking about shutting it off too to save money---we already had our cell phones & television shut off) to be able to talk to all of you. I talked him out of it several times. If I had not had the internet I would not have known I had Endometriosis & had surgery for it. That is how much all of you out there are. ALL OF YOU help no matter who you are.I got to goThanks to all of you againPlease respond back if you can & I will keep you posted.
    Anonymous 42789 Replies
    • January 14, 2007
    • 07:52 PM
    • 0
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  • ;) Hello, I have two treatments that are very inexpensive, i have used them both with great benifit. They are # 1 acidopholis: http:www.dadamo.com/forum/archive9/confg.pl?read=63581 The other # 2 turmeric: http://whfoods.org/genpage.php?tname=foodspice&d8id=78 Good Luck.
    hogndog 426 Replies
    • January 14, 2007
    • 08:41 PM
    • 0
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  • :o I'm Back, hope i've corrected my mistake. Wha i meant to say the first time is, acidopholis is an excellent way to reverse the effects of antibiotic usage. It restores the function of your immune system. Both of the methods described are very inexpensive. The other being, turmeric & i'll give you the web site for this. http://whfoods.org/genpage.php?tname=foodspice&dbid=78 Please try these & i promise you will see possitive results. As Always, In His Service.;)
    hogndog 426 Replies
    • January 14, 2007
    • 09:01 PM
    • 0
    Flag this Response
  • I do not know ir this will help any of you, but if you are in a search of a good diagnostics, Mayo Clinic is the last place I would go.I have been sick for 2 years and Found help threw doctors who use ART-testing. ( autonomic response testing)If you want to get some help get a book from Trent Nichols, Ultimative Digestive Guide. In there are the lists of the best nurtitionists and people aho really want to help you and go an extra mile.Try to contact the Institute for Functional Medicine and go from there,For Chronic Conditions Mayo Clinic is not the placeLucijaUse IgeneX lab or Metametix laboratory, check the net- excellent diagnostic methodsFind someone who will check for Free radicals, Oxidative stress, stool check-ip and good diagnostics-
    Anonymous 42789 Replies
    • September 18, 2007
    • 11:41 AM
    • 0
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  • Have they thought of hyperparathyroidism? The majority of people with hyperparathyroidism have no signs or symptoms. In those who do, the symptoms frequently come on slowly and are usually subtle, such as a feeling of weakness or fatigue, or vague aches and pains. But more severe signs and symptoms of hyperparathyroidism can develop over time, including:Increased thirst and urination due to increased excretion of calcium in your urine (hypercalciuria)Kidney stonesAbdominal painNausea, vomiting or loss of appetiteThinning bones (osteoporosis), leading to an increased risk of fracturesConfusion or poor memory Muscle weakness or fatiguehttp://www.mayoclinic.com/images/nav/elem_sectionarrow_previous.gif ·My bones hurt all over and all I wanted to do was sleep.
    rad-skw 1605 Replies
    • September 19, 2007
    • 09:43 AM
    • 0
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  • Your health and family history sound like mine.I'm learning this can be from heavy metal poisoning. Don't bother having a regular doctor check this, the regular blood and urine tests are only meant for acute exposure.Find a naturopathic doctor. The metals will only show up after a short round of chelation. Mine were not terribly high but there were several of them. A low chronic dose is enough to do plenty of multisystemic damage.I grew up in a factory town full of chemicals, had some old metallic dental work which leeched, probably had the usual amount of vaccines, and there are many other sources for these toxins too.Many of the symptoms were due to undiagnosed food allergies - especially wheat and dairy (gluten and casein). But those can be caused by heavy metals too. For example, heavy metals trash the digestive system and knock out digestive enzymes, not to mention the liver.
    Anonymous 42789 Replies
    • October 30, 2007
    • 01:57 AM
    • 0
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  • It sounds like you have a lot of autoimmune disease in your family. I spent many years undiagnsoed with "chronic fatigue syndrome" but 6 months ago finally got a diagnosis: Hashimoto's Encephalopathy, a rare disease that can look like chronic fatigue syndrome and it associated with autoimmune thyroiditis.Here's what I would do if I were you:Get copies of ALL of your medical records.Write a one-page summary of your symptoms over the yearsWrite another one-page summary of all labs done and all abnormal values- with the reference ranges posted and the dates, etcWrite a one-page summary of any studies you have had done and their results and dates, etcTake these 3 pages to a doctor in an academic center that you can access. It sounds to me like you may have some sort of autoimmune thryoiditis. Has anyone ever checked your thyroid antibodies? Both Hashimoto's and Graves disease have been linked to Hashimoto's Encephalopathy, but it is more common in Hashimoto's than graves.If your thyroid antibodies have been checked and were high, I'd seriously consider going to a neurology department in a major teaching hospital (other than Mayo) and ask if you don't have HE. Endocrine and rheum would also be good choices.Good Luck to you.
    Anonymous 42789 Replies
    • November 4, 2007
    • 05:01 AM
    • 0
    Flag this Response
  • I was also scheduled to go to a Neurologist last week to do a Nerve Conduction studies on my hand (but had to cancel because I could not afford it---they wanted me to pay all my 20% coinsurance up front). I have been having weakness in my hand. It gets to the point (it also happens in my other hand too but not as much because I do not use that hand as much) where I cannot fill out paperwork at work (luckily when this happens I just make phone calls or do something else instead). I also have to stop stearing when I drive & use my left hand (& only my left hand because my right hand hurts so bad). I start having this stabbing like feeling right in the middle of my wrist. At night sometimes it starts knawing all around my palm & the top of my hand around my joints (sorta I guess like arthritis--not sure because I have never had it so I do not know). Not sure if it is related but I do have 2 bulging discs in my back too. The neurologist I saw (he is VERY good) said it does not sound like carpal tunnel because I have no numbness at all & no flaring pain up my arm.I am also having alot of other problems (fatigue-----losing my mind----It gradually gets worse as I get older. I graduated with honors & I am slowly falling apart. I used to be so sharp & quick & hardly ever forgetful. Lately I feel like a complete idiot especially at work. I am always having to look for things over & over because I am always losing them. I can't remember things from one day to the next. I was even driving the other day & could not remember where I was. I got completely lost & to this day I do not know what happened. My husband has to do bills because I lose them & forget to pay them. Everytime I turn around I am late to work with all kinds of excuses (I think my boss sometimes thinks I am lying about the excuses because they are so out of the ordinary but I am not). I constantly buy things over & over at the store & before you know it we have 5 things of suger in the pantry (& I honestly do not remember buying the others). My mother tells me that I tell her things when I told her I did not. We argue about it & I keep denying it. I tell my husband things & then change the story later on because I can't remember. Then he thinks I am lying. Of course at times I am still sharp & I am so fast at work (I have always been faster than everyone else) that even though I spend alot of my day, looking for things & redoing things over because I thought I did it when I did not, that I still get my work done with practically no errors. Its sad though knowing that I could actually go back to school & get a degree & work at a job making a WHOLE lot more money but with these memory problems & such there is not alot of jobs that I can do. I am lucky that I have the job I have. It does not take a lot of smarts to do & I get paid pretty well considering. I swear I feel like I am 80 years old sometimes.I am rambling on & on & probably boring you to oblivion. Oh, another thing. In my family I have a history of Dementia, Sjogrens Syndrome, Thyroid problems, Lupus & Rheumatoid Arthritis.Your symptoms sounds like hypothyroidism. Feeling like you're 80 years old. Arguing with your husband. Not remembering conversations. Getting lost while driving. Rambling on and on. Your family history of Autoimmune Diseases. Memory problems. Pains in your arms which are carpal tunnel-like. Fatigue.What did you say your test results were for your TSH, Free T3 and Free T4? Also the ranges of those tests.You can find more information about hypothyroidism at:http://www.freewebs.com/thyroid
    Anonymous 42789 Replies
    • November 5, 2007
    • 10:18 AM
    • 0
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  • Have they thought of hyperparathyroidism? Increased thirst and urination due to increased excretion of calcium in your urine (hypercalciuria)Kidney stonesAbdominal painNausea, vomiting or loss of appetiteThinning bones (osteoporosis), leading to an increased risk of fracturesConfusion or poor memory Muscle weakness or fatigue·My bones hurt all over and all I wanted to do was sleep. A great website for info on it is:http://www.parathyroid.com/You normally have an elevated calcium level and PTH level.
    Anonymous 42789 Replies
    • November 5, 2007
    • 10:22 AM
    • 0
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  • Why are you so mad that the Mayo clinic will not see you? They did not say they refuse you, they said they can not help you. So find someone who can. Doctors are not God they only know so much. Some problems can not be solved. You should keep searching. You sound so stressed out. Work on your stress so you can stop driving your self crazy.
    Anonymous 42789 Replies
    • November 6, 2007
    • 04:20 PM
    • 0
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  • I was searching for answers to my question, and saw your post! Yes! Hospitals can refuse patients. My friend was banned from the Cleveland Clinic... for asking too many questions. His doctor told him he had a serious problem with his neck, and that it could be fatal. He was very worried, and he asked for a second opinion. The new doctor said he did not find the neck problem. So my friend made a complaint and asked which doctor was correct. The Cleveland Clinic sent him a "form letter" (that they use for other patients), telling him that he cound not return there for any treatment! Afterwards, he started a local advocacy group and is trying to get a law passed that would prevent hospitals from banning patients. He is trying to find other patients who have been banned.
    jeanill 24 Replies Flag this Response
  • I am just so frustrated & do not know what to do now. For 2 years I have been going to specialist after specialist to find out what is wrong with me. They usually do a few blood tests & then send me away telling me everything is fine. I have not had extensive testing for Lupus. My cortisol did test low a couple of years ago & the Endocrinologist mentioned that I might have a problem with my Thyroid (My Cortisol was 3.3 in the AM). He then did another test 3 months later (It took me that long to get an appointment) & it was 13.3. He told me the first test must have been wrong & after the 2nd test being so high I was fine. I also just had excision surgery for Endometriosis (the surgeon said he removed all of it---I was at Stage II). I have missed so much time from work for tests & doctors appointments (I cannot keep missing & missing). I have not even had a break for over 2 years to take a vacation (not even a day---that sucks big time). I finally decided as my last option to go to Mayo Clinic (what the heck---I have PPO & can choose who I want to go to). They take my insurance. After hanging up on one person & speaking with a manager at Mayo I was told that the nurse reviewed all my symptoms (I filled out an online application) & due to me having chronic fatigue there is nothing they can do (They said that their clinic in Minnesota handles chronic fatigue). I told them no one had diagnosed me with chronic fatigue & I do not know why they would tell me that. They said that due to all my symptoms being related to chronic fatigue they cannot help me & that I need to either follow up with my doctors (which do not do CRAP where I live) or go to one of the teaching hospitals in Florida. I told them that maybe I have an underlying illness (which I think I might have a problem with my Thyroid) that could be causing my fatigue & I need someone to just do testing to find out what is wrong. They still stated there is nothing they can do. They were refusing to send me something in writing until I spoke with a manager. I am supposed to be getting something in the mail shortly.CAN THE MAYO CLINIC DO THIS???? I DO NOT KNOW WHAT TO DO NOW. I FEEL LIKE I AM AT THE END OF MY ROPEDoes anyone know of a teaching hospital in Florida that deals with Chronic Fatigue? "They said that due to all my symptoms being related to chronic fatigue they cannot help me""Chronic fatigue" is different to the illness called "chronic fatigue syndrome"... tons of illnesses have chronic fatigue as a symptom.. but "chronic fatigue syndrome" is an entire illness is it's own right and causes all kinds of issues. I think they were refering to chronic fatigue syndrome when they sent you away (many will shorten this term to just chronic fatigue.. which can cause a lot of confusion in people). Basically.. cause of your symptoms and the fact that nothing much could be found..they diagnosed you with chronic fatigue syndrome (diagnoses has to be based on symptoms as there isnt an conclusive test available for it yet.. thou there ARE tests which can be done which can help indicate that diagnoses.. eg cortisol tests, which often will show up an adrenal dysfunction!.. with some cortisol tests coming back abnormal.. just as yours did. It is a fairly normal thing for those with CFS.. to have low morning cortisol levels or levels which are widely varying (eg out of normal range.. eg low.. then high..then low again etc. They can go all over the place). I can understand them sending you away if you have "Chronic Fatigue Syndrome" if they dont have any body in that clinic who specialises in it. How can they help you with the illness you have, if they dont have anyone there treating it?? The symptom with your hand.. sounds like CFS. With CFS.. any body part used.. can start causing problems with it. I have CFS and by what you said.. it really sounds as if you have this illness too. You need to find someone who specialises in it to see. (contact your local support groups and ask for doctor recommendations)."my creatine was either low or high (I can't remember right now)." umm see the study on CFS and creatine below and see if that matches your results.. get copies of them and keep them in a folder for yourself. In CFS.. there may be abnormalities with creatine .. Richards, SCM et al. Muscle metabolites detected in urine in fibromyalgia and chronic fatigue syndrome may suggest ongoing muscle damage. Abstract 382 from Conference Proceedings of the British Society of Rheumatologists, 24-27 April 2001, Edinburgh. Richards et al measured creatine and other metabolites in urine. Loss of creatine in urine is suggestive of ongoing muscle damage and the metabolites in question are known to be released from damaged muscle. Morning samples were collected from 60 patients with fibromyalgia (FM) and 60 people with CFS (undefined but likely to be Oxford or CDC criteria '94). Controls included 12 healthy individuals and 60 people with a variety of diseases. Significant levels of creatine were detected in the urine of 29 (48%) of the patients with FM and 32 (53%) of the patients with CFS compared to none of the healthy controls (both p "This study reveals that approximately half these patients with FM and CFS were excreting creatine and other muscle related metabolites in their urine in detectable levels compared to healthy and disease controls.
    taniaaust1 2267 Replies Flag this Response
  • The mayo clinic is a fraud, you are much better off without them....they killed my mother then lied about it....run don't walk from them...try ucla, stanford anywhere but don't waste your time with them. They are hacks !!!!!
    Anonymous 42789 Replies Flag this Response
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