I am just so frustrated & do not know what to do now. For 2 years I have been going to specialist after specialist to find out what is wrong with me. They usually do a few blood tests & then send me away telling me everything is fine. I have not had extensive testing for Lupus. My cortisol did test low a couple of years ago & the Endocrinologist mentioned that I might have a problem with my Thyroid (My Cortisol was 3.3 in the AM). He then did another test 3 months later (It took me that long to get an appointment) & it was 13.3. He told me the first test must have been wrong & after the 2nd test being so high I was fine. I also just had excision surgery for Endometriosis (the surgeon said he removed all of it---I was at Stage II). I have missed so much time from work for tests & doctors appointments (I cannot keep missing & missing). I have not even had a break for over 2 years to take a vacation (not even a day---that sucks big time). I finally decided as my last option to go to Mayo Clinic (what the heck---I have PPO & can choose who I want to go to). They take my insurance. After hanging up on one person & speaking with a manager at Mayo I was told that the nurse reviewed all my symptoms (I filled out an online application) & due to me having chronic fatigue there is nothing they can do (They said that their clinic in Minnesota handles chronic fatigue). I told them no one had diagnosed me with chronic fatigue & I do not know why they would tell me that. They said that due to all my symptoms being related to chronic fatigue they cannot help me & that I need to either follow up with my doctors (which do not do CRAP where I live) or go to one of the teaching hospitals in Florida. I told them that maybe I have an underlying illness (which I think I might have a problem with my Thyroid) that could be causing my fatigue & I need someone to just do testing to find out what is wrong. They still stated there is nothing they can do. They were refusing to send me something in writing until I spoke with a manager. I am supposed to be getting something in the mail shortly.
CAN THE MAYO CLINIC DO THIS???? I DO NOT KNOW WHAT TO DO NOW. I FEEL LIKE I AM AT THE END OF MY ROPE
Does anyone know of a teaching hospital in Florida that deals with Chronic Fatigue?
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