Discussions By Condition: I cannot get a diagnosis.

I want to know what's wrong

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: lynda92
  • September 29, 2009
  • 00:47 PM

I'm 17 years old. I have been to lots of doctors. I have seizers EEG's come back clear and they can't find a cause. I'm in chronic pain all over my body from under breast bone to my toes I'm on morphine for it. Poor coordanation. Swallowing and bladder difficulties. Headaches. Poor sight that's getting worse. Bowel and stomach probelms. Reflux. Depression. Asthma. Low iron, B12 and vitamin levels. Fatigue. Chronic infections. Persistent tachycardia heart beat resting at 130bpm.

I know many of these must be unrelated. But surely some are I have had every test and seen every specialist but no one can out what's going on I just want an aswer so I can get on with the rest o my life I don't want to be like this for the next 70 years. If you have any ideas it would be really appriciated.

Thanks Lynda

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  • I'm 17 years old. I have been to lots of doctors. I have seizers EEG's come back clear and they can't find a cause. I'm in chronic pain all over my body from under breast bone to my toes I'm on morphine for it. Poor coordanation. Swallowing and bladder difficulties. Headaches. Poor sight that's getting worse. Bowel and stomach probelms. Reflux. Depression. Asthma. Low iron, B12 and vitamin levels. Fatigue. Chronic infections. Persistent tachycardia heart beat resting at 130bpm. I know many of these must be unrelated. But surely some are I have had every test and seen every specialist but no one can out what's going on I just want an aswer so I can get on with the rest o my life I don't want to be like this for the next 70 years. If you have any ideas it would be really appriciated.Thanks Lyndahi Lynda,sorry you are having such a hard time!what are your pulses like?especially on your wrists and feet(on top of your feet)???my daughter has Takayasu arteritis,and some of the symptoms you posted matched her.have you had MRI scans??please mention Takayasu to your doctor if you havent been tested for it(it's very difficult to diagnose,can only be through CRP counts and MRI/MRA scans).good luck to you and please keep updates on here.stay strong and I hope they can find what's wrong very soon.
    Anonymous 42789 Replies
    • October 2, 2009
    • 01:08 PM
    • 0
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