Discussions By Condition: I cannot get a diagnosis.

I think my cousin is dying

Posted In: I cannot get a diagnosis. 31 Replies
  • Posted By: amandanorton
  • January 28, 2009
  • 04:21 PM

My cousin is a 16y/o male suffering from multiple symptoms.
After multiple excrutiating tests doctors have found no deffinate results.
Some symptoms are, swollen lymph nodes of the neck, arm pits and inner thighs, chronic strep, increased liver enzymes, sky high white blood cell count, chronic joint pain, chronic fatigue, succeptible to any viral, or bacterial infections.
They have ruled out, Lime disease and leukemia.

Please help me. If you have any idea guesses or good reccomendations for doctors they would be greatly appreciated.

I would also be happy to answer any further questions.

<3 Amanda:confused:

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31 Replies:

  • Even though your cousin is young, have they ruled out HIV?
    Felsen 510 Replies
    • January 28, 2009
    • 07:16 PM
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  • Have they done lymph node biopsies and cultures?
    richard wayne2b 1232 Replies
    • January 28, 2009
    • 07:20 PM
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  • What about hepatitis screens?
    richard wayne2b 1232 Replies
    • January 28, 2009
    • 07:22 PM
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  • What about tests of his immune system?
    richard wayne2b 1232 Replies
    • January 28, 2009
    • 07:24 PM
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  • Has he been checked for mono?
    richard wayne2b 1232 Replies
    • January 28, 2009
    • 07:25 PM
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  • Take a look at this about how chronic strep may be transmitted: http://www.drmirkin.com/morehealth/9073.html
    aquila 1263 Replies
    • January 29, 2009
    • 05:22 PM
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  • It could be an onset of a genetic disease, masked by his older age usually discovered at a much younger age.
    Monsterlove 2921 Replies
    • January 30, 2009
    • 00:49 AM
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  • I agree with Monster. There are autoimmune deficiencies you may be born with.
    aquila 1263 Replies
    • January 30, 2009
    • 08:48 PM
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  • i saw on mystery illness that lyme disease is often done wrong in the lab that 50% are false negatives they said to insist on it being redone
    jojo100 10 Replies
    • January 30, 2009
    • 09:14 PM
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  • My cousin is a 16y/o male suffering from multiple symptoms.After multiple excrutiating tests doctors have found no deffinate results.Some symptoms are, swollen lymph nodes of the neck, arm pits and inner thighs, chronic strep, increased liver enzymes, sky high white blood cell count, chronic joint pain, chronic fatigue, succeptible to any viral, or bacterial infections. They have ruled out, Lime disease and leukemia. Please help me. If you have any idea guesses or good reccomendations for doctors they would be greatly appreciated. I would also be happy to answer any further questions. If your cousin also lives in New England then you are in Lyme country and need further Lyme testing IMO. Join Lymenet.com and hopefully you can find a Lyme Literate Doctor to further test and rule this out. The previous poster is absolutely right on this! When did his symptoms develop? Were they gradual or sudden? I agree with Richard that Hep A,B,C,D, E, F... (just kidding, but there seem to be a ton of different Hepatitis strains!) should all be ruled out. Best wishesDOM
    acuann 3080 Replies
    • January 30, 2009
    • 11:28 PM
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  • Even though your cousin is young, have they ruled out HIV? Yes that was the first thing they've checked. There is no sign of it. But they rechecked two other times to make sure and all three were negative.
    amandanorton 8 Replies
    • February 1, 2009
    • 06:09 PM
    • 0
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  • Have they done lymph node biopsies and cultures? They did a biopsy on tuesday and we will get the results on monday
    amandanorton 8 Replies
    • February 1, 2009
    • 06:11 PM
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  • If your cousin also lives in New England then you are in Lyme country and need further Lyme testing IMO. Join Lymenet.com and hopefully you can find a Lyme Literate Doctor to further test and rule this out. The previous poster is absolutely right on this! When did his symptoms develop? Were they gradual or sudden? I agree with Richard that Hep A,B,C,D, E, F... (just kidding, but there seem to be a ton of different Hepatitis strains!) should all be ruled out. Best wishesDOM Oh yes we are getting another opinion on the lyme, one of our close family friends just came down with it about a month ago. He is also being tested for every type of hep as we speak. They took a lymph node biopsy and some more blood tests, we should get the results on monday. I will deffinately check out the lyme site too, thank you for your help and wishes!
    amandanorton 8 Replies
    • February 1, 2009
    • 06:14 PM
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  • I've left at least 3 questions that have not been answered.If I wanted help,I'd ***n sure try to be cooperative,After all,this is my time that I'm donating to you!
    richard wayne2b 1232 Replies
    • February 1, 2009
    • 07:39 PM
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  • To Richard: I would have to comment here Richard that this forum is more coming to represent a haven for predation upon people who can't find answers and the absolute persistence of boilerplate responsiveness that everyone either suffers from Lyme disease or electrical sensitivity from the household vacuum cleaner or cell phone makes one think that all people should be triaged for these complications prior to ever being evaluated by us as physicians. It reminds me of why I'm so favorable to Medscape. You have to be a verifiable licensed medical doctor to get in and even then, if your comments raise questions about your sanity, they cut your cord. I don't suggest such a strict regimen here, but some regulation for the protection of the people in search of answers would be welcome. I haven't the patience sometimes to try and illustrate here that simply because one group of physicians can't identify the underlying cause for a patient's complaint, does not constitute incompetency of allopathic medicine. I think I've about had my fill of these charismatics using language to suggest illiteracy, incompetence, and in general a sub-standard and aloof mentality demonstrated by allopathic physicians. Meanwhile, we're having to use activated charcoal to flush oil of oregano, kava kava and other trash out of the stomachs of these people who fall prey to snake-oil remedies that do nothing but bring false hope. Beware the person who fancies the physician from beyond the gate, for they will find a way to practice nevertheless for it's not healing that they're out to accomplish, but rather to feed a relentless and agonizing void within themselves. Regard, J Cottle, MD
    JCottleMD 580 Replies
    • February 2, 2009
    • 00:28 AM
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  • Dr.Cottle,I couldn't agree more with your assessment of the ''movement''here,but don;t forget POTS and celiac disease as two more of the prevalent tide of ignorance.
    richard wayne2b 1232 Replies
    • February 2, 2009
    • 11:49 AM
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  • Dr.Cottle,What is the arthrogram called that you think my wife needs?And as for the predation here,I'm also disgusted with the level of psychopathology and the poor communication skills(awful grammar and spelling) on this forum.I haven't ventured into today,and I feel better.I got on Medscape today.
    richard wayne2b 1232 Replies
    • February 2, 2009
    • 08:50 PM
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  • Dr Cottle and dr Richard Wayne2b, your help here is greatly appreciated. People, who post here, do so because they have not been helped by their doctors. These doctors are probably not at Medscape, but at golf course. So actually, your posts here might help many patients even if you somehow doubt this. I really hope that you will not be leaving this forum for Medscape. Sometimes I am also appalled by the poor English used here (especially since English is not my first language), but I think that most of us are doing our best, and somebody might be annoyed by your lack of using the space key, dr Wayne. So please be patient with us. :) Sorry, Amanda for hi-jacking your thread! ;)
    Felsen 510 Replies
    • February 2, 2009
    • 10:11 PM
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  • Look, personally I could care less if a person posting a question here can't even spell their name correctly as long as they can get their point across in a manner that can be interpreted. I've been with Medscape for some time now and I didn't make the comment to indicate that I would be leaving this forum. I will state, however, that my only reason for staying is because some of the people seeking information here truly have a dilemma and need help. This is not to state that I have all the answers but I've been around the medical profession long enough to at least try to get them pointed in the right direction. I recently fired a response back to someone on another thread concerning the constant scrutiny of my responses to these postings and that aspect of the forum is wearing thin with me in a hurry. I'm not interested in learning medicine from people who are delusional, having apparently garnered a crash course in medical terminology from an internet site or symptom base. It's one thing to offer support by sharing similar symptoms and offering personal suggestions, but what takes place here leaps well beyond that into a realm where being a medical professional is as easy as merely professing expertise. That's dangerous on a variety of levels because some folks may be willing to try anything. I become especially concerned when parents are seeking help for their children who could be exposed to recommendations or "treatment" not within their best interests. There simply needs to be some level of moderation when it relates to giving advice or treatment alternatives versus medical information. Regardless of whether the forum is open to everyone, people without a license to practice medicine should not be directing others with respect to testing and treatment within the allopathic healthcare framework. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • February 2, 2009
    • 11:29 PM
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  • There simply needs to be some level of moderation when it relates to giving advice or treatment alternatives versus medical information. Regardless of whether the forum is open to everyone, people without a license to practice medicine should not be directing others with respect to testing and treatment within the allopathic healthcare framework. This thread seems to have been officially hijacked:rolleyes:. Sorry to add my comments to the mix. If you read the Terms of Use on Wrongdiagnosis, you will clearly see that this website is not intended to diagnose diseases, and is not supposed to be a substitute for medical advice. That can't be more clearly written. Anyone who posts here should be aware of this Term of Use. It is an open forum. The moderators job is to make sure no one is using threatening language or inappropriate (spam) usage. It's not perfect, but I enjoy everyone's varied comments and disregard the ones I find inappropriate. Best wishesDOM
    acuann 3080 Replies
    • February 2, 2009
    • 11:59 PM
    • 0
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