Discussions By Condition: I cannot get a diagnosis.

I think I am ready to Jump !!!

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: bodinejcs
  • January 12, 2007
  • 06:38 AM

I need help , I write this in tears , tears of 17 years of unknown illness . I am a 43 old male and Have been feeling very ill for years . I am not critical , infact I eat , breath , sleep (sortof ) , and function . But I am very unhappy all the time as I feel , very fatigied , dizzy and confused all the time , and just in poor health overall . I have been to doctors , but due to no insurance , I get the run around . They just want to give me anti-depressants , I have tried , but they are just a mask . I got this ***t
after a bad cold or virus , I basically woke up with it , felt like crap and then 4 days later i was in the hospital with a major irregular heartbeat .
Diagnosis = Anyxiety . I still have this problem , along with a host of come and go symtoms , but most of the time its the same crap . Iregular heartbeat that sometimes can make me dizzy momentarely , constant fatigue, headaches on the back of my head , anxiety and depression, confusion and dizziness , jsut a out of it feeling . I exercise but if I do , I pay the price later for sure . I am not overwieght , and genrally eat okay , I Used to be very active . This is the problem , due to this crap , I have in the 17 years since this started , I got divorced , lost my job , house , friends , even my kids as they are tired of hearing how sick I feel all the time , I can't help it , I am sick and IIIII know it . I basically sit in my bedroom and avoid the world now ( I live with my parents) and i am rotting away . In the last 5 years or so I have been getting worse , and really have no hope of any good feeling anymore , and I feel like jumping. I think about it more and more everyday . It sucks to be unhealthy , but with no insurance , I am helpless ............ To top it off , my innards must be declining , I just suffered a heartattack two months ago and had to have a stint put in , sure , no problem with the hospital doing that and charging me a 70,000 dollars that I don't have , but that was cut and dry and they had to help me by law . But this other crap , I cannot get help with , nor does anybody care . I might as well be dead as I have lost the willingness to go on , i just can't fucntion , work or make any friends . Even my parents do not now what to do , I have been such a burden to them anyway . I have been to the free - clinic near me and the doctor is treating me for a sinus-infection that I am not sure I have . I have no great ammount of nasal discharge , nor have I had a cold in so long , how could this be ??? He syas due to my headaches and dizzyness , and I admit that I have issues with headaches over my eyes and soreness when I look up , that he wants to treat me with long term antibiotics . Is this right ??? He says I could have had this for many years . I think this maybe another take a guess treatment . My only question is , What id the most organized way of finding whats wrong with me , if not for me but for my 12 year daughter , she doesn't understand this and I think she has forgotten about me . I have thought about going to the best hospital there is and going into the emergency room and fake passing out on the floor to get help , but will this work ??? It sure worked when I had a real heartattack !! I have prayed and prayed for some relief but , I have not got any and its looking grim for me , I really feeling like throwing in the towel................This is my last hope

Reply Flag this Discussion

18 Replies:

  • I don't know you but it's sad to hear your sufferings, I won't be able to help much or at all with your condition but if you need someone to talk to, msg me please!
    eQuinox` 11 Replies
    • January 12, 2007
    • 06:59 AM
    • 0
    Flag this Response
  • Jumping definitely won't help your daughter. While you are unsure of your new doctor's diagnosis, it appears that he is willing to treat you long-term. This is very positive considering that this is a free clinic. I would try to record symptoms and testing from the onset of your illness. Include everything you can remember- no matter how small. For example, have you experienced changes in skin like easy bruising, increase/decrease in urine or bowel output? Try and notate any environmental information at the time symptoms began. With this data your doctor may notice a pattern and he can begin eliminating possible causes. Most importantly, continue to read these forums for similar illnesses and as a communication and support tool. Good Luck!
    jeff88 15 Replies
    • January 12, 2007
    • 10:34 AM
    • 0
    Flag this Response
  • Your symptoms are EXTREMELY general. Almost any auto-immune condition could be causing those types of reactions, so I understand how hard its been for you and your doctors.Can you dig a little deeper, and try to explain any other symptoms you've experienced? Even if they are minor and aren't the ones that really bother you the most, they can help diagnose the condition.What is your metabolism like? Do you have a good appetite? Good weight? Or do you eat only a tiny bit? I don't think you need to directly treat your thyroid, but figuring out if its acting hypo or hyper would help narrow things down.Have you had any bone injuries that could have knocked some nerves out of alignment? If its not auto-immune, this could be a cause of what you're describing.Any history of working with heavy metals, especially in an industrial setting?Any family history of chronic illness or early mortality? Even if they seem completely unrelated, they can show hints to genetic pre-disposition. Some auto-immune disorders also take on different symptoms in different people, making them even harder to diagnose.
    Azaral 152 Replies
    • January 12, 2007
    • 02:15 PM
    • 0
    Flag this Response
  • get tested for lyme disease. Make sure they don't test for the bacteria that causes it, they need to test for the presence of that bacteria. (It is a lesser known more accurate test).
    Anonymous 42789 Replies
    • January 12, 2007
    • 06:23 PM
    • 0
    Flag this Response
  • Thank you, Thank You , Thank you for your concern . I could add a ton of symtoms that I have had , but they come and go , the ones I listed are the ones that bother me most . To answer some of th other questions , I got this ***t in the middle of winter , I was ice fishing and after days end , I felt normally tired . But when I woke up the next day , I felt sick as ***l , but I assumed it was a normal cold ,actually I went to the doctor and was dianosed with bronchitus and was given anti- biotics . Then 4 days later, I felt somethin strange in my chest (at the time I had never felt a irregular heart beat ) and befroe I could even figure out what was going on , I started to lose my breath and couldn't breath very well . My wife at the time rushed me to the hospital and they injected me with something that made my heart beat perfect again for several hours . They kept me overnight and it started again , but they wanted to see what it was doing (my heart) and did not interfere . I was released and the diagnosis was anxiety . From that point on , my life has been ***l , the first year I was bedriddin and could not go to work , my legs would tremble under my own wieght and the doctors kept saying virus , you should feel better soon , yeh right . Actually , 17 years later , I do feel better than I did then , but not alot . I still have no energy at all , I used to love to play golf , but I can barely play 9 holes anymore and thats with a cart . I get headaches on the back of my head when I lean over for extened periods , and over my eyes too , in the last two or three years I have had trouble urinating , I have too strain to go , but not all the time , sometimes during the day I can go fine with a powerful stream , and then the next morning I have to strain to go . I am usaually constipated , but If I eat nuts and fruit , its manageable .My weight has stayed the same for all these years , I eat normally and have a good appetite most of the time , but last year I went through a time of feeling sick when I eat . Thats another thing , when I eat , I feel weird for a few hours , it makes me feel more out it sometimes too , sometimes it makes me veryu drousy and makes my heart pound hard for awhile , and then other days its fine .When I have breakfast , I feel fine , but when I eat dinner I get that out of it feeling and my heart just pounds and I feel all trembly . I used to think it was the food I was eating , but I experimented with diffrent things , and I cannot find a pattern . My ears are ringing constantly , this is a new symtom , since the weather got colder . Thats also a mystery , everytime the weather changes , I feel like crap for a few days . Its like clockwork . I have had some tests done , I have had a 2 MRI's ,negative except for sinus polyps in which my doctor at the time said not a problem , I have went to a clinic in wisconsin and they did the once over on me , and the doctor said all fine , except a sinus xray that showed what he said as Raw sinuses . He treated me with anti biotics and when I returned two weeks later , that doctor had retired , so they put me on with another doctor and he asked if I felt better with the treatment , I said no , he said well thats probaqblt not it then . This is the problem , I cannot get any long term help , they just give up due to my shortage of money and insurance . When I left the clinic , they recommened a phyciatrist . Thats a cop out . I was jsut recently in the hospital for a heart attack , I was wonderin with all the blood teats that they did , would they notice any irregularity in my blood or would that go unnoticed . Just curious . Again thanks for all your concern , I know that jumpn will not help my daughter any , but frankly I am of no help to her the way I am , as she thinks I am a freak !! Thanks and God Bless you all , you seem to care more than my own family .
    bodinejcs 3 Replies
    • January 12, 2007
    • 10:15 PM
    • 0
    Flag this Response
  • I know it doesn't help much, but I experience the same feeling about not wanting to go through another day and the guilt of being a burden to others. It is so frustrating and depressing to watch the world, that you want to experience as well, go on around you; see others so easily get up and do things that your body just won't let you do anymore. I have been sick for ten years and lost everything too. I don't have the money to get better now. I spent yesterday in the ER for more of nothing. I didn't think I was depressed, but going there, facing that I was at my last place to get help and receiving nothing, makes me wish my time here is over very soon. I just can't take another day of this either. You must be pretty darn tough to even ice-fish. I sense you have a lot of mental strength (or did, and have like me, hoped your mental determination would pull you through but now you are totally exhausted). I need to review your symptoms again, before I can offer a "non-medical- professional" idea of what my be causing your symptoms. I have two autoimmune diseases and my symptoms change daily too. Can you or your wife (maybe your daughter, this would be a wonderful way for her to help and I'm sure her being a part of your solution would be a fulfilling activity not a burden) keep a daily journal of your eating, symptoms, feelings etc.? I know (and I know you know) if you can get better, you can rebuild what you have lost. When you wake up to 'another' day, remember I am probably crying in the shower too. Our persistance will help others one day get to a resolution to their illness a little faster. My thread is under Lindayx12. I hope we can sort through and research your illness together. I want you to wake up one day soon and feel like taking on the world again!:o
    Lindsayx12 29 Replies
    • January 13, 2007
    • 09:54 PM
    • 0
    Flag this Response
  • I was first insulted when someone suggested I go to one. After much research, I found that their role could be very valuable in finding a physical illness. A psychiatrist can decipher whether a physical illness is having mental repercussions or visa-versa. For instance, neurotransmitters could be giving off the wrong signals and having your body actually feel pain where physically there should be none. Not the 'mental' symptoms that we are accustomed to initially associating with 'mental illness'. Once your body is out of balance, the chemicals in the brain are affected (or again, visa-versa). This can be caused by a virus, injury, disease etc.. I am going to give it a try, and I will let you know what I find. Like I mentioned in my previous post, you sound like a mentally strong willed person, not one who's mental condition would have negative effects on your body. I also don't think that your body not being well would effect your 'mental' condition either. Your body's chemical processes, often altered or attacked by autoimmune problems, can be not working properly. A good psychiatrist can identitify where they may be malfunctioning and find the right 'cocktail' of meds to get that part back in balance and give your body the fighting chance it needs to heal or at least uncover other physical problems to be adressed. I hope I explained this okay. I know I don't have a 'mental' problem and it *****s me off when someone thinks I would let my life come to this because I was not mentally sound. I do know that my excess sleeping problem has to do with the chemicals in my brain not working properly. I also had panic attacks in the past. I have diabetes type 2, I'm not overweight in the least. Blood sugar imbalances and a drop in my blood pressure, I found were causing my 'panic attacks'. I will share with you later how I have prevented them, once a daily occurance, from happening. I hope this helps a little.
    Lindsayx12 29 Replies
    • January 13, 2007
    • 10:24 PM
    • 0
    Flag this Response
  • Try asking the doctor to run tests to check your pituitary function. If they haven't already, it's worth a shot. There are so many hormone controls that come from the pituitary that when they're out of whack, the symptoms can truly run the gamut and often present in a vague and general fashion.
    Anonymous 42789 Replies
    • January 13, 2007
    • 10:30 PM
    • 0
    Flag this Response
  • the doctors don;t seem to want to be troubled with me doctorin myself , they just say na , this is half the trouble , just getting the doctor to TRY and help me . Thanks , I will mention it though !
    bodinejcs 3 Replies
    • January 14, 2007
    • 04:19 AM
    • 0
    Flag this Response
  • I was first insulted when someone suggested I go to one. After much research, I found that their role could be very valuable in finding a physical illness. A psychiatrist can decipher whether a physical illness is having mental repercussions or visa-versa. For instance, neurotransmitters could be giving off the wrong signals and having your body actually feel pain where physically there should be none. Not the 'mental' symptoms that we are accustomed to initially associating with 'mental illness'. Once your body is out of balance, the chemicals in the brain are affected (or again, visa-versa). This can be caused by a virus, injury, disease etc.. I am going to give it a try, and I will let you know what I find. Like I mentioned in my previous post, you sound like a mentally strong willed person, not one who's mental condition would have negative effects on your body. I also don't think that your body not being well would effect your 'mental' condition either. Your body's chemical processes, often altered or attacked by autoimmune problems, can be not working properly. A good psychiatrist can identitify where they may be malfunctioning and find the right 'cocktail' of meds to get that part back in balance and give your body the fighting chance it needs to heal or at least uncover other physical problems to be adressed. I hope I explained this okay. I know I don't have a 'mental' problem and it *****s me off when someone thinks I would let my life come to this because I was not mentally sound. I do know that my excess sleeping problem has to do with the chemicals in my brain not working properly. I also had panic attacks in the past. I have diabetes type 2, I'm not overweight in the least. Blood sugar imbalances and a drop in my blood pressure, I found were causing my 'panic attacks'. I will share with you later how I have prevented them, once a daily occurance, from happening. I hope this helps a little. Yes it does help , if you would like to chat more , my email is bodinejcs@hotmail.com Thanks
    bodinejcs 3 Replies
    • January 14, 2007
    • 04:23 AM
    • 0
    Flag this Response
  • Hey, I think I might have found something. I don't think you had a cold/flu or virus after your ice-fishing-------You had hypothermia! I am still researching so I can better understand how not treating hypothermia can develop into possible autoimmune problems brought on from the 'trauma' your body went through, and how hypothermia can damage your body's systems. Thus far, I have matched your headache, sinus problem, fatigue and urinary symtoms to support this. Talk about a mentally strong person! Next time take a girl ice-fishing with you. I'm sure you will be forced back to civilization before you nearly freeze yourself to death! :)!
    Lindsayx12 29 Replies
    • January 18, 2007
    • 02:19 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Okay, I finally found out what was wrong with me and I think it will help you!I have some more research to do for you but I think the right doc can speed your recovery up.I saw a neurologist with a sleep medicine specialty (a regular neurologist could have done the same). I did see one at the Cleveland Clinic but he did nothing and usually the CC is outstanding.My doctor new within five minutes of talking to me what was wrong! No kidding!! I brought my sleep study, and some blood work results, but I don't think he even needed those.I have a neurological disorder where I have too many of the 'flight or fight' chemicals. They are going constantly. Look at the article called 'Brain Chemistry' (google it, you will know when you have the correct article because it uses a baseball analogy to explain how neurotransmitters work). After finding I had been on the wrong antidepressents for six years, I think for anything like that, I will also go to a psychiatrist for medication of this kind.Alot of my other conditions could be caused by the state of panic my system is in. Here I just thought I was really ambitious, hee, hee, I'm wound so tight I'm wearing myself out! Testing my reflexes, my knee for example, sent my **s up in the air! I changed my email address again, I couldn't get the other one to work right. It is : l.mills2007@gmail.com
    Lindsayx12 29 Replies
    • February 28, 2007
    • 03:15 PM
    • 0
    Flag this Response
  • Please do not jump! I will pray that God gives you some relief or some answers. I myself have some pain issues and a child. I hope I do not sound cliche'but please just ask God for some relief...I truly believe he will send a answer..he may not always send the answer now, or how we want, be he is ultimately in control. Have you been tested for MEN type 1 or MEN type 2?Lyme disease? I am not a doctor, but those are some ideas.In the meantime. You do have purpose in this life..please hang in there!
    Anonymous 42789 Replies
    • February 28, 2007
    • 04:57 PM
    • 0
    Flag this Response
  • Some of what you desribe sound like in immunodeficiency when doctors check your blood get them to look at the break down of your immunoglobulin levels a normal blood test will not show this. I have been troubled by sinusitus, bronchitus, bladder infections and have trouble with my heart rate and anxiety. I have been diagnosed with cvid (common variable immunodeficiency )It makes you more prone to infection and fatigue. if you could get an immunologist to look at your blood count this might help. I know you have problems getting treatment because of health insurance but it will be worth it for the correct diagnosis and treatment good luck. Diane
    Diane Sistern 29 Replies
    • February 28, 2007
    • 08:33 PM
    • 0
    Flag this Response
  • Friend,Read panic411.org. My neurologist figured out that my neurotransmitters were over firing fight-or-flight signals. This is really over-simplifying the situation but it can be the cause of certain physical conditions or visa-versa. Go to a neurologist. I'm getting much better (well, more like a nursing home patient finally feeling ready to start a fitness program) and just a week ago I was really ready to give up.
    Lindsayx12 29 Replies Flag this Response
  • If most of your symptoms occured immediately following a virus, I would definately check into an auto-immune disease or infectious disease. Also, keep on the anti-depressants and/or anti-anxiety medicine. This doesn't mean your crazy. Anxiety and/or depression can cause many physical symptoms. Also, check with your local hospitals on charity programs to help with your bills. If you're unemployed or fall under a certain income line they will sometimes write off or help with some of the payments. Most importantly, don't give up on yourself. If you're sick of being sick, do something about it. Don't let doctors give you the run around. Keep copies of results of medical tests and lab results to avoid repeat testing. You're in my prayers! Isaiah 40:28-31 Have you not known? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He does not faint or grow weary; his understanding is unsearchable. He gives power to the faint, and to him who has no might he increases strength. Even youths shall faint and be weary, and young men shall fall exhausted; but they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint.
    BNC052083 3 Replies Flag this Response
  • with cardiac problems, you need coenzyme q10 but 400mg per day, along with carnitine 1000 mg/day, and taurine 500 mg/day, along with proteolytic enzymes 8 twice a day empty stomach. www.fortifyhealth.com
    drbeilin 8 Replies Flag this Response
  • Don't jump...go to www.ahummingbirdsguide.com all of your sx are there...it's autoimmune caused by a virus...good luck mommy cat
    mommy cat 1654 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.