Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • May 22, 2008
  • 04:57 AM

I have been struggling with this for over a year. First I'm told steroids should do the job, then that does not work. Next I am on the WHNRO treatment AND IT WORKS FOR ABOUT TWO WEEKS. Third, I am trying IVIG. I want somebody out there to shed so light on this sitation. (PLEASE)

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  • My father has chronic idiopathic ITP, he was unaware of it until he had a heart attack 7 years ago. He also did the steriods, and the winro and also the rituxumb (i don't know spelled that right). Finally, after 7 years the disease won, in december he started swelling up, which they attributed to his kidneys not working properly. And couldn't breathe and fatigue so he went to cardiologist heart fine. Did another round of winro, and this time it attacked his body with a venegence. He began bleeding rectally, admitted to hospital did ivig therapy which is expensive and only works for about 3 weeks. Got sick again, platelet count down to 6,000 and H&H red blood cells where being destroyed by the winro. Finally he agreed to have his spleen removed 4 weeks ago, this was not without hesitation. But without it his body just couldn't go on. I am happy to say that as of today his platelets are up, and he recovering nicely. Only time wlll tell if the procedure will work. I empathsize with what your going through, it is a nightmare...Find a good hematoligst who is willing to work with you. In my town alone 4 people have itp, I know they don't know the cause, but I find it to be a cluster effect. If the time comes and you need to have your spleen removed it is an 80% chance it will work. Good Luck!
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