Discussions By Condition: I cannot get a diagnosis.

I STILL feel like I'm dieing.....its getting old now!

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: Anonymous
  • February 12, 2008
  • 06:23 AM

Hi everyone, I had put a thread on here about a bunch of weird symptoms I have been having. Maybe some of you remember if you visit this board alot. I am a 21 year old female and I have had all of these symptoms since July of 2007.
All these things have changed my life completely around from what it used to be. I hardly was ever sick. These are my symptoms as follows.

Vision:
Flashes of light (like someone took a picture and the flash is still in my eye)
Flashes that are yellow and purple that come and go around my field of vision.
Double vision.
Floaters.
Zig-zag lines.
Everything that is black looks purple and white looks either yellow or pink.
Decreased night vision.
It seems like my eyes are sensitive to light.
Brown rings that just started forming around both my eyes.

Body:
Tingling in hands and feet sometimes.
Tremors.
Decreased feeling in my hands. They don't exactly feel numb but they don't feel like they used to.
Fatigue. I feel weak most of the time.
Lightheadness.
Always feeling like I'm in dream. (derealization)
Sometimes my muscles feel sore, like I haven't stretched them in a while.
My muscles feel extremly sore (episodes of 2-3 days) after any kind of extreme physical aspects. Mainly in my thighs.
Dizziness. (Not as severe as I have been having, but still get dizzy sometimes)
Sometimes parts of my body twitch/jump but not severe.
Sometimes I get a burning sensation in different parts of my body.
And then sometimes I feel as if I am going to pass out if I stand too long.

Physiological:
Anxiety
Depression
Trouble concentrating.
Confusion-always having to remind myself of what I am doing and where I am.
I feel Crazy!


No fevers.

My neuro also said that I have hyper-active reflexes. He sent me for a EMG and found I have right superficial peroneal nerve damage to my right leg. He wasn't sure of the cause and is sending me another doctor who deals with that. The only suggestion my neuro gave me is he though it could be due to LEAD poisoning, or Lyme's disease.

My whole body feels crazy at night sometimes, the tingling is so severe, I feel it everywhere. Some nights are ok and then others are bad. Like how people who have Restless Leg Syndrome feel, but all over.

No changes in weight but I do feel like I have gained weight from not doing as much as before.

I have been to the ER about 5 times because of how sick I've felt. They did an EKG, chest X-ray, and whatever blood work they do and didn't find anything. Also a urine culture. I also have gotten some blood and urine samples done from my doctor checking for any signs of diabetes or thyroid problems. Also lupus and auto-immune diseases. My blood work came back fine. I also had an MRI that was negative as well. CT scan was fine too.

I have also been to an ophthalmologist 2 times who has told me he can not see anything wrong from his perspective.

I also suffer from high Blood Pressure and have so since I was about 18. I am actually seeing a doctor now who is having me get a kidney ultrasound, stress test, and echo-doppler to see if they are any contributing causes to it.

I have noticed over the last couple months that after I eat my heart races. Usually around 80-110 beats per minute. The blood pressure pill that I am currently on helps that.

This is what gets me, is when I went to the doctor everytime my heart was pounding, she kept telling me it was anxiety. But it was weird because after everytime I ate my heart POUNDED. She still said it was anxiety and wrote me off. I finally went to another doctor who found out my blood pressure was high and put me on some medication. My heart pounding was what was giving me the anxiety. I wish I would have known that when she almost sent me to the psych ward.

I think I should ask this new doctor if I could get tested for Lymes. I thought it was MS but the MRI didn't show any signs of it, nor did my blood work.

IF anyone could possibly think of what could this all mean please let me know. I know I don't know exactly whats wrong with me yet until they figure it out but I really do feel like this is all due to something that is terrible. Thanks.

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11 Replies:

  • Hi,I am feeling excatly the same way my vision just isn't right I can't think straight my face went numb intermittantly i have a twitch and i also have migraines really bad!I too went to the hospital but CT was fine feel like i'm going crazy too and my doctor won't listen I understand completely
    Anonymous 42789 Replies
    • November 3, 2008
    • 10:51 PM
    • 0
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  • Brown rings may be what's called "allergic shiners." Perhaps you have an allergy that's causng your symptoms, or food intolorance.
    aquila 1263 Replies
    • November 4, 2008
    • 05:54 PM
    • 0
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  • Hi Confused, I've had alot of similiar symptoms. You may or may not identify with me on this but if you do then, good for you! Long story short, I was diagnosed w/ PTSD. I had a hard time realizing how that could have such a devestating effect on my health. Well, it did! Once I was able to accept this I began taking the appropriate steps to health. Growing up in my house was ***l, and fearing for my life,via my father completely depleted my adrenals (fight or flight) and left me with severe IBS among many other things, hence PTSD. THe more I studied it the more things made sense for me. I only say this because I searched for 10yrs before I was able to get lasting help. For what it's worth, I hope it helps.
    purplehayes 1 Replies
    • November 4, 2008
    • 10:13 PM
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  • I hope i`m totally wrong!!! but the symptoms you present are much simmilar with simptoms in multiple sclerosis
    Anonymous 42789 Replies
    • November 5, 2008
    • 03:11 PM
    • 0
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  • Hi Confused, I've had alot of similiar symptoms. You may or may not identify with me on this but if you do then, good for you! Long story short, I was diagnosed w/ PTSD. I had a hard time realizing how that could have such a devestating effect on my health. Well, it did! Once I was able to accept this I began taking the appropriate steps to health. Growing up in my house was ***l, and fearing for my life,via my father completely depleted my adrenals (fight or flight) and left me with severe IBS among many other things, hence PTSD. THe more I studied it the more things made sense for me. I only say this because I searched for 10yrs before I was able to get lasting help. For what it's worth, I hope it helps.PurpleHayes, Ive been diagnosed with PTSD, but didnt believe them. I also had a very rough time growing up and with my family and especially the neighborhood I was in, I was extremely paranoid 24/7 and feared for my life at all times. It soon got ridiculous, I couldnt sleep, I was worried about people breaking into my 2nd story window or aliens and demons coming to get me, all from PTSD. Now that I think about it, I do have a lot of symptoms. Can you please tell me more about it? It would help a lot if you would tell me about your symptoms you had and what you did to overcome it (if you have), please I need help.Confused!!!, Im sorry I cant really help you right now, but if it means anything I have also had a lot of the symptoms that you speak of. I experienced nearly all of those, all the way up to the high blood pressure as early as age 16 (turned out it was due to extreme constant stress in my life).
    HelpinOhio 32 Replies
    • November 5, 2008
    • 06:33 PM
    • 0
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  • I replied to your other post.... Kiera
    Anonymous 42789 Replies
    • November 5, 2008
    • 10:17 PM
    • 0
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  • I too have had many of those symptoms and was tested for Lyme disease, I even had the tell tale Lyme rash and yet my Lyme test came back normal, no sign of Lyme so I can tell you DO NOT TRUST TESTS! I also have Hypothyroidism and suffered for years with it all my thyroid tests were well within normal range and they only found the thyroid problem because I was having trouble swallowing and they did an ultrasound and voila a thyroid 5 times the normal size and not functioning as it was supposed to. All your symptoms could be a thyroid disorder added to lyme or lupus. Hate to say it but don't trust test results, trust your body and bother your doctors until you get treatment. I myself am going thru ***l now trying to get treatment and have pretty much lost hope in the medical community as a whole. Good luck and hope you find out what's wrong with you.
    snipsofscraps 1 Replies
    • November 6, 2008
    • 00:59 AM
    • 0
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  • And then sometimes I feel as if I am going to pass out if I stand too long. This symptom shows an issue with "orthostatic intollerance".. so shows that there is something more than just something psychological going on. There are several kinds of orthostatic intollerance eg POTS (postural orthostatic tachycardia syndrome) (where the heart rate increases by over 30 beats a minute triggered by standing) and orthostatic hypotension (where the BP drops on standing). Orthostatic intollerance often occurs with other conditions eg half of those with POTS have chronic fatigue syndrome (CFS). I have a form of orthostatic intollerance where my BP rockets a crazy amount when im standing (orthostatic hypertension), i have that cause of CFS which has caused a sympathetic nervous system dysfunction in my body. Orthostatic intollerance can cause certain vision issues (blurred, dimmed vision, momentary blindness eg white outs, black outs) among other symptoms. Unfortuntely most doctors dont know about orthostatic intollerance (as it is a fairly newish field of study and just not known about much).... so you may have to find info about it online to take to your doctor or ask to be refered to someone who does know about it. I suggest for you to research orthostatic intollerance seeing that is PART of your issue. http://en.wikipedia.org/wiki/Orthostatic_intolerance to get you started................ Decreased night vision.It seems like my eyes are sensitive to light. those symptoms are symptoms of vitamin A deficiency. I cant currently think what else vit A deficiency causes but it is something you should look more into in case that is your issue or part of it........................ My other thought with you is possible chronic fatigue syndrome.. that can cause vision issues most commonly light sensitivity floaters and double vision (in over half who have CFS), muscle pain, concentration and memory issues and so may other symptoms including hyper-reflexia (over reactive reflexes). I have CFS, doctor on testing my reflexes once noted (i nearly kicked him!) i had hyper reflexia at times in one of my legs (doctor who didnt realise that CFS causes this.. once had me ambulanced to my states main city hospital due to it and the other symptoms).I suggest for you to check out http://wwcoco.com/cfids/bernesx.html for a good list of symptoms
    taniaaust1 2267 Replies
    • November 6, 2008
    • 04:03 AM
    • 0
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  • Man, I really feel for you. I also have been diagnosed with PTSD. I also suffer from migraines, and have all of the same visual symptoms you are having. No neurologist has ever been able to explain why. It sounds like you are also suffering from depression/ anxiety. In addition, I would say there is probably another medical condition related to the high blood pressure (which is probably also related to the migraines). I would not say that it is one specific thing causing your misery. I hope you find the right doctor- I finally found mine after 15 years and no longer feel helpless.PTSD will exacerbate all of the physical problems you are having. It makes you scared all the time, even when you kinow you are being irrational. Knowing this does not take away the fear and paranoia, as these are REAL feelings you are having, whether substantiated or not. Many, many doctors will write you off as a hypochondriac, especially if they think you may be mentally ill. Please don't give up: I know how you feel. It sucks and is impossible to enjoy life when you are scared and in pain 24/7 and the professionals we trust to help us just turn us away and thank God it isn't happening to them. You are not dying, but you are not healthy either. Try to deal with the anxiety first, it will help you to figure out which symptoms are real, and which ones are being exaggerated by your fear.
    Anonymous 42789 Replies
    • November 6, 2008
    • 04:50 AM
    • 0
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  • I also suffer from high Blood Pressure and have so since I was about 18. I am actually seeing a doctor now who is having me get a kidney ultrasound, stress test, and echo-doppler to see if they are any contributing causes to it. I have noticed over the last couple months that after I eat my heart races. Usually around 80-110 beats per minute. The blood pressure pill that I am currently on helps that. . i was just researching info on one of my issues (the orthostatic hypertension i have) to copy and take to my new doctor http://www.medscape.com/viewarticle/543590_2 and come across something in there called "pheochromocytoma" which when i looked that up.. it made me think of your high BP, elevated heart rate and anxiety . i doubt very much if this is it.. but you may also want to find out more about that too and make sure something like that isnt causing your BP issues if no other cause can be found. http://en.wikipedia.org/wiki/Pheochromocytoma
    taniaaust1 2267 Replies
    • November 6, 2008
    • 04:57 AM
    • 0
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  • I don`t mean to scare you but M.S is not easy to diagnose,i really hope it`s not your case but the symptoms are very simmilar
    Anonymous 42789 Replies
    • November 7, 2008
    • 00:55 PM
    • 0
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