Discussions By Condition: I cannot get a diagnosis.

I still feel like I'm dieing...

Posted In: I cannot get a diagnosis. 34 Replies
  • Posted By: Anonymous
  • September 3, 2007
  • 11:09 PM

Hi everyone, A couple of weeks ago (probably around a month) I had put a thread on here about a bunch of weird symptoms I have been having. I am a 21 year old female and I feel like all these symptoms I have been having are still here and progressively getting worse. All these things have changed my life completely around from what it used to be. I hardly was ever sick, and never had any sort of medical issues in my past. These are my symptoms as follows.

Vision:
Flashes of light (like someone took a picture and the flash is still in my eye)
Flashes that are yellow and purple that come and go around my field of vision.
Double vision.
Floaters.
Zig-zag lines.
Everything that is black looks purple and white looks either yellow or pink.
Decreased night vision.
It seems like my eyes are sensitive to light.
Brown rings that just started forming around both my eyes.

Body:
Tingling in hands and feet sometimes.
Tremors.
Decreased feeling in my hands. They don't exactly feel numb but they don't feel like they used to.
Fatigue. I feel weak most of the time.
Lightheadness.
Always feeling like I'm in dream. (derealization)
Sometimes my muscles feel sore, like I haven't stretched them in a while.
My muscles feel extremly sore (episodes of 2-3 days) after any kind of extreme physical aspects. Mainly in my thighs.
Dizziness. (Not as severe as I have been having, but still get dizzy sometimes)
Sometimes parts of my body twitch/jump but not severe.
Sometimes I get a burning sensation in different parts of my body.
And then sometimes I feel as if I am going to pass out.

Physiological:
Severe panic attacks.
Trouble concentrating.
Feeling as if I have to rush everything.


My allergies are horrible so I have alot of sneezing, stuffy noses, itchy throat and coughing. I think that is because of my new move to Jersey from Nevada.

No fevers even though sometimes my temp is a little elevated at 98.8.- 99.0

My neuro also said that I have hyper-active reflexes.

Everything gets worse at night when I lie down. Sometimes it's so uncomfortable that I can't sleep. My whole body feels crazy at night sometimes, the tingling is so severe, I feel it everywhere. I feel as if my body is dieing.

No changes in weight but I do feel like I have gained weight from not doing as much as before.

I have been to the ER about 5 times because of how sick I've felt and they did an EKG, chest X-ray, and whatever blood work they do and didn't find anything. Also a urine culture. One time they tested my thyroid and the doctor said it was a LITTLE elevated but it could of been due to an error.


It all started when I was having anxiety attacks. One day at work I felt like I couldn't breathe and my chest hurt and then I had one. I went to the doctor and she told me that I had an anxiety issue and told me to take xanax. I was taking that and still getting anxiety attacks. All the xanax would do was make me think things were funny and also made me eat. Which was good because I wasn't eating much at the time. She then suggested paxil, which I haven't taken because I feel like I do not have an anxiety issue, but more anxiety due to what is going on with my body and what COULD be wrong with me. I probably should take it to help me cope with this but I'd rather just wait and see if they could figure it out and then if I still need it I will take it.

See sent me for a thyroid test which came back fine. Also a CT scan of my head which came back fine as well. I also been to an ophthalmologist 2 times who has told me he can not see anything wrong from his perspective. I am currently seeing a neurologist as well who just had me get a fasting glucose done to see if it could be diabetes. He also said it could be due to migraines, but I don't really get headaches too much. Plus all these symptoms are an all day event. I get NO relief. And then he though it could be due to LEAD poisoning, or Lyme's disease. He also thought I could be showing signs of Polyneuropathy.

I haven't really had very many tests done but I am freaking myself out on what this could be. I have not felt the same since all this started. I have also became agrophobic. The only time I really leave the house is when I have to go to work. I AM NOT LIKE THIS. I was never like this. I was always into doing things and being a social butterfly. Now I get scared to go out cause I might feel sick or I might have an anxiety attack and embarrass myself. I am also seeing a counselor as well but I don't see her very much. I haven't had insurance through all this either so it is hard for them to do tests because of the price.

I recently got insurance (thank god) and now I can get whichever testing I need to get done which is giving me SOME peace of mind but I am still freaking out over this and what could be wrong with me and wanting SO badly to just feel better. I have been feeling like this for about 2-3 months now and nothing seems to be getting better. I fear I have something horrible. (which could very so be) Naturally I am a worrier so thats what I have been doing for the past 2-3 months CONSTANTLY worrying. I am driving myself crazy.

IF anyone could possible think of what could this all mean please let me know. I feel so young but yet so old because of this. I know I don't know exactly whats wrong with me yet until they figure it out but I really do feel like this is all due to something that is terrible. Thanks.

Reply Flag this Discussion

34 Replies:

  • Hello, I remember your post. I had the same symptoms...even the mental issues.Someone in this forum recommended NAET to me. It is an "alternative" form of medicine. I've only had 6 treatments and my symptoms are resolved.Your allergies are not just from the move. You are allergic to things you don't even know you are allergic to. Trust me, when I went to this therapy, I learned I was "allergic" to all kinds of foods and other things.My symptoms are resolved and the best part is I do not have to avoid all of the foods I am allergic to. here is the link for NAET in Jersey...find a practicioner and go for 3 sessions. After all, what have you got to lose at this point?This forum is full of people who have had this done and even some who are becoming practicioners themselves. I am considering it as well. This stuff works and I am living proof. http://www.naet.com/subscribers/doctorResults.asp?FromQS=1&db=default&uid=default&City=&State=NJ&Zip=&Last=&Country=&Status=on&sb=4&view_records=Search When you go and your symptoms disappear, please come back and let others know. This is starting to catch on...Best of luck and be well, mommy cat:D
    mommy cat 1654 Replies
    • September 4, 2007
    • 00:43 AM
    • 0
    Flag this Response
  • Hi everyone, A couple of weeks ago (probably around a month) I had put a thread on here about a bunch of weird symptoms I have been having. I am a 21 year old female and I feel like all these symptoms I have been having are still here and progressively getting worse. All these things have changed my life completely around from what it used to be. I hardly was ever sick, and never had any sort of medical issues in my past. These are my symptoms as follows.Vision: Flashes of light (like someone took a picture and the flash is still in my eye)Flashes that are yellow and purple that come and go around my field of vision.Double vision.Floaters.Zig-zag lines.Everything that is black looks purple and white looks either yellow or pink.Decreased night vision.It seems like my eyes are sensitive to light.Brown rings that just started forming around both my eyes.Body:Tingling in hands and feet sometimes.Tremors.Decreased feeling in my hands. They don't exactly feel numb but they don't feel like they used to. Fatigue. I feel weak most of the time.Lightheadness.Always feeling like I'm in dream. (derealization)Sometimes my muscles feel sore, like I haven't stretched them in a while.My muscles feel extremly sore (episodes of 2-3 days) after any kind of extreme physical aspects. Mainly in my thighs.Dizziness. (Not as severe as I have been having, but still get dizzy sometimes)Sometimes parts of my body twitch/jump but not severe. Sometimes I get a burning sensation in different parts of my body.And then sometimes I feel as if I am going to pass out.Physiological:Severe panic attacks.Trouble concentrating.Feeling as if I have to rush everything.My allergies are horrible so I have alot of sneezing, stuffy noses, itchy throat and coughing. I think that is because of my new move to Jersey from Nevada.No fevers even though sometimes my temp is a little elevated at 98.8.- 99.0 My neuro also said that I have hyper-active reflexes.Everything gets worse at night when I lie down. Sometimes it's so uncomfortable that I can't sleep. My whole body feels crazy at night sometimes, the tingling is so severe, I feel it everywhere. I feel as if my body is dieing.No changes in weight but I do feel like I have gained weight from not doing as much as before. I have been to the ER about 5 times because of how sick I've felt and they did an EKG, chest X-ray, and whatever blood work they do and didn't find anything. Also a urine culture. One time they tested my thyroid and the doctor said it was a LITTLE elevated but it could of been due to an error. It all started when I was having anxiety attacks. One day at work I felt like I couldn't breathe and my chest hurt and then I had one. I went to the doctor and she told me that I had an anxiety issue and told me to take xanax. I was taking that and still getting anxiety attacks. All the xanax would do was make me think things were funny and also made me eat. Which was good because I wasn't eating much at the time. She then suggested paxil, which I haven't taken because I feel like I do not have an anxiety issue, but more anxiety due to what is going on with my body and what COULD be wrong with me. I probably should take it to help me cope with this but I'd rather just wait and see if they could figure it out and then if I still need it I will take it. See sent me for a thyroid test which came back fine. Also a CT scan of my head which came back fine as well. I also been to an ophthalmologist 2 times who has told me he can not see anything wrong from his perspective. I am currently seeing a neurologist as well who just had me get a fasting glucose done to see if it could be diabetes. He also said it could be due to migraines, but I don't really get headaches too much. Plus all these symptoms are an all day event. I get NO relief. And then he though it could be due to LEAD poisoning, or Lyme's disease. He also thought I could be showing signs of Polyneuropathy. I haven't really had very many tests done but I am freaking myself out on what this could be. I have not felt the same since all this started. I have also became agrophobic. The only time I really leave the house is when I have to go to work. I AM NOT LIKE THIS. I was never like this. I was always into doing things and being a social butterfly. Now I get scared to go out cause I might feel sick or I might have an anxiety attack and embarrass myself. I am also seeing a counselor as well but I don't see her very much. I haven't had insurance through all this either so it is hard for them to do tests because of the price.I recently got insurance (thank god) and now I can get whichever testing I need to get done which is giving me SOME peace of mind but I am still freaking out over this and what could be wrong with me and wanting SO badly to just feel better. I have been feeling like this for about 2-3 months now and nothing seems to be getting better. I fear I have something horrible. (which could very so be) Naturally I am a worrier so thats what I have been doing for the past 2-3 months CONSTANTLY worrying. I am driving myself crazy. IF anyone could possible think of what could this all mean please let me know. I feel so young but yet so old because of this. I know I don't know exactly whats wrong with me yet until they figure it out but I really do feel like this is all due to something that is terrible. Thanks.I have had problems similiar to yours. I have had over 1000 panic attacks, fatigue, etc. I was finally helped. I had major depression and my mind would create all kinds of problems. It took me over 50 years living in a form of ***l on earth before I finally told my wife that I didn't want to live anymore. I now take antidepresants for my depression, Klonopin for my panic attacks, adderall for my fatigue. Hope this helps. David
    Anonymous 42789 Replies
    • September 4, 2007
    • 03:34 AM
    • 0
    Flag this Response
  • Hello, Did you feel like this before you moved to NJ, besides the allergies getting worse? The vision disturbances could be "aura migraines" , where you don't have actual pain. Perhaps get a second opinion, vision is not something to be fooled with. Have you been tested for tick born illnesses and lyme disease? Sometimes lyme and co infections are misdx'd for yrs. You are too young to be having all these problems. There are many people on the east coast with undx'd lyme and co infections. A good place to go for info is lymenet.org it is based in NJ. Hope you can find answers soon.~~Dee
    Anonymous 42789 Replies
    • September 5, 2007
    • 11:48 AM
    • 0
    Flag this Response
  • I've gone through alot of what you are going through, especially dwelling on thoughts that I have something seriously wrong with me. I have had visits to the emergency room thinking I was having a heart attack and have had CAT Scans because I thought I had a tumor. It sounds to me like your ailments are more of a mental disorder than an actual physical one. I personally went on Lexapro for about a year and got great results. I don't believe that prescription drugs are the way to go for everyone as about 100,000 people die yearly from drugs. I replaced my Lexapro with a functional health beverage made from The Mangosteen Fruit, and have not been on any medications of any kind for several months now. I would try that along with 1/2 hour a day of exercise. I would also purchase the "Secret" Book and read the chapter on health. Try to shift your focus away from your ailments and start visualizing your health as awesome. Remember health is a journey - Good Luck!
    jtlmusic 3 Replies
    • September 6, 2007
    • 04:40 PM
    • 0
    Flag this Response
  • Check the carbon monoxide levels in your house and car.
    rad-skw 1605 Replies
    • September 7, 2007
    • 10:29 AM
    • 0
    Flag this Response
  • you say you have had a CT of your head. you need an MRI. sounds completely like MS. and if it is.. your neurologist is not good. if they have not sent you to get an mri now that you have insurance, then please find another doctor. you have all the symptoms of it. including the vision stuff. check out this site. im not trying to scare you but the earlier you catch it.. the better. montel has it.. and you see how good he lives.http://www.emedicinehealth.com/multiple_sclerosis/page3_em.htm
    Anonymous 42789 Replies
    • September 7, 2007
    • 11:10 AM
    • 0
    Flag this Response
  • Why would the elevated thyroid be a fluke? It really does sound like Graves Disease (hyperthyroidism). You may be a borderline case, and I would not ignore the test that showed your levels as elevated. If you have the lab results, take them to an endocrinologist, tell them your life has been ***l, and request you be treated. This is an easily treated disease and wilol make all the difference in the world.
    Anonymous 42789 Replies
    • September 7, 2007
    • 03:54 PM
    • 0
    Flag this Response
  • Im so sorry your going through this, I have a handful of your symptoms but can't get an answer. Like you im not like this, I was an active mom with three kids working a job at home that i loved making great money and bammo, something changed now im sick all the time. I think they blame this on anxiety way to much - its BS Well you know you can rule out MS becuse your MRI was clean - but it leaves things even more confusing doesn't it :o( I get the odd visual things one time I did have an occular migrane lost vision in both eyes like a big white light and it lasted 15 mnutes then went away leaving me with a wicked headache. I also get disorted blurry vision, my thoughts on this are, some inflammatory process
    burninghead 37 Replies
    • September 7, 2007
    • 05:25 PM
    • 0
    Flag this Response
  • Did all of your symptoms start after you moved to Jersey or were many of them existing prior to your move? If some existed prior to the move which ones came after the move? nutritionist :)
    nutritionist 14 Replies
    • September 8, 2007
    • 10:22 AM
    • 0
    Flag this Response
  • I have most of your same symptoms, wierd disconected feeling in limbs (hands mainly), fullness in ears, anxiety, dizzyness, ect. I have been feeling like this for alomst 1 year. It will be 1 year on November 15th. I cant beleive my symptoms have gone on for almost a year and I still dont have a diagnosis...and I work for one of the leading laboratories in the US. I have lost most hope in health care this last year. I have been through $30,000 worth of tests and no one can explain it. I have been told that MS has been ruled out after a brain and neck MRI, I have been told maybe its Thorasic Outlet Syndrom (since my fingers were swelling)...the orthopedic doctor ruled that out yesterday which was hard, since I thought I would finally have an answer. I am only 28 and my whole life has been affected by this.I am trying Zoloft and Zanax and have been for 3 months...no releif from anything but the anxiety. I am not me anymore and im loosing hope that I will never feel like i used to. Keep on trying to find an answer...Ever since anxiety was written into my chart, thats how im treated. Its so sad and frustrating. KEEP ON LOOKING FOR ANSWERS. We dont deserve to be suffering like this.
    stacky 52 Replies
    • September 8, 2007
    • 04:58 PM
    • 0
    Flag this Response
  • I have most of your same symptoms, wierd disconected feeling in limbs (hands mainly), fullness in ears, anxiety, dizzyness, ect. I have been feeling like this for alomst 1 year. It will be 1 year on November 15th. I cant beleive my symptoms have gone on for almost a year and I still dont have a diagnosis...and I work for one of the leading laboratories in the US. I have lost most hope in health care this last year. I have been through $30,000 worth of tests and no one can explain it. I have been told that MS has been ruled out after a brain and neck MRI, I have been told maybe its Thorasic Outlet Syndrom (since my fingers were swelling)...the orthopedic doctor ruled that out yesterday which was hard, since I thought I would finally have an answer. I am only 28 and my whole life has been affected by this.I am trying Zoloft and Zanax and have been for 3 months...no releif from anything but the anxiety. I am not me anymore and im loosing hope that I will never feel like i used to. Keep on trying to find an answer...Ever since anxiety was written into my chart, thats how im treated. Its so sad and frustrating. KEEP ON LOOKING FOR ANSWERS. We dont deserve to be suffering like this. Stacky, You are right. You don't deserve to be suffering. Anyone that has the following symptoms can be helped: Flashes of light (like someone took a picture and the flash is still in my eye)Flashes that are yellow and purple that come and go around my field of vision.Double vision.Floaters.Zig-zag lines.Everything that is black looks purple and white looks either yellow or pink.Decreased night vision.It seems like my eyes are sensitive to light.Brown rings that just started forming around both my eyes.Tingling in hands and feet sometimes.Tremors.Decreased feeling in my hands. They don't exactly feel numb but they don't feel like they used to. Fatigue. I feel weak most of the time.Lightheadness.Always feeling like I'm in dream. (derealization)Sometimes my muscles feel sore, like I haven't stretched them in a while.My muscles feel extremly sore (episodes of 2-3 days) after any kind of extreme physical aspects. Mainly in my thighs.Dizziness. (Not as severe as I have been having, but still get dizzy sometimes)Sometimes parts of your body twitch/jump but not severe. Sometimes get a burning sensation in different parts of my body.And then sometimes you feel as if I am going to pass out.Severe panic attacks.Trouble concentrating.Feeling as if you have to rush everything.I have 20 years experience helping people with these symptoms. Anyone that would like my help can contact me at nutritionist@advancedsupplementsonline.com nutritionist :)
    nutritionist 14 Replies
    • September 8, 2007
    • 06:23 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • SO I took Mommy Cat's advise and got into contact with a NART doctor in my area, he e-mailed me back within 2 hours. He has given me hope! This is our conversation: Hi Your problem shouldn't be thoracic outlet bc you wouldn't have all the other symptoms as well.... NAET is often successful at "weird" problems as we can use the muscle testing to hopefully pin down a diagnosis... since you've ruled out most everything else you're mostly left with an infectious process or allergy.... I'm treating a lady and a gentleman right now who have a similar presentation as yours and we diagnosed enterovirus and they are recovering and doing much better....let me know if you wish to be tested...Dr. Tom Anderson> Thanks so much for your reply. I have recently had very high IGA > levels and high ANTI bdnas antibody levels, which I guess is Strep A > but no one seems too concerned with either. So perhaps the NAET > testing could benefit me. Can you tell me where you are located and if > insurance covers any of this as well as your rates?That can be significant so bring in lab work, I find that a chronic infection either bacterial or viral can cause havoc and is often mis-diagnosed...Insurance doesn't cover.... initial testing is $115, treatments are $48....I look forward to meeting youDr. Tom AndersonI will definitly give this a try, a bit pricy w/o insuance but I JUST WANT TO FEEL BETTER AND GET MY LIFE BACK. I will let you all know how it goes. Thanks Mommy Cat!
    Anonymous 42789 Replies
    • September 8, 2007
    • 07:05 PM
    • 0
    Flag this Response
  • Stacky, where do you live? Find a local NAET/Bioset practicioner. No kidding. I had most of your syhmptoms too....read around, you are not alone.Someone here recommended it to me and I went. It works.It was the best advice and I found it, just like you...right here in this forum.Pay it forward...mommy cat www.naet.com www.bioset.net check them out...:)
    mommy cat 1654 Replies
    • September 8, 2007
    • 10:19 PM
    • 0
    Flag this Response
  • Dear Unregistered from above...:D :D :D :D I am so glad you are on the way to wellness!! PLease come back and let others know how to get "fixed" It works wonders!! Bless that doctor!! My Bioset doc is wonderful also!! Be well.....mommy cat
    mommy cat 1654 Replies
    • September 8, 2007
    • 11:27 PM
    • 0
    Flag this Response
  • I have graves disease and had all the symptoms you listed down to the panic attacks and agoraphobia. My eye stuff was only slightly different. Do you have a racing heartbeat? Mine was 140-160 at rest. Make SURE that hyperthyroidism is ruled out- I'd get a second opinion. It can be really dangerous if you have a thyroid storm. Its rare to have one, epecially at your age, but it happened to me at 24. I'd see an endocrinologist and immunologist even if it is ruled out. When I was in the hospital recovering, an endocrinologist ran tests on other glands that can cause the same type of symptoms. I also developed several allergies in the year that I think the graves started. The best advice I can give you is to make the most out of doctor appointments, and see someone else if you get the go-home-and-take-a-xanax-blow-off vibe. My boyfriend suggested keeping any language that could be perceived as emotional to a minimum. Since doing this, the doctors I've seen seem to listen to me better and take my concerns more seriously. Could be coincidence I suppose, but I doubt it. Example: If I was talking to a friend, I might say "I'm really worried/scared about . My hurts really bad. What the heck is wrong with me?!" At the doctors office (especially a first visit) I aim for " I've been experiencing these symptoms" I hand the doc a written list at this point if there are more than 3 or 4. After he reads it I ask "What do you think could be causing this?" When describing pain I try to stick to the 1-10 scale for severity and the simple words like burning, stabing, throbbing or if it's hard to describe, 'its unusual, but most like x ' or something to that effect. Keeping a medical journal can be helpful for this too, and doesn't take long once you've developed the habit.Bring a close friend or family member in with you to make sure you've covered everything and to help you remember or write down instructions. Also, they can help you do a lot of the talking if you're not up to it (which I never was :P)- Many, many prayers from some random chick in Ohio
    Anonymous 42789 Replies
    • September 9, 2007
    • 00:46 PM
    • 0
    Flag this Response
  • I live in Utah, I wento the website you provided for NAET and found a couple of local doctors here that do NAET practices. I am not sure about the Bioset part, I will enquire tomorrow when I call to make my first appointment. Hang in there everyone, the more proactive you are the sooner you will feel better....I know how tiring it is though. Trying to maintain "normal" life and trying to get doctors to take you seriously.
    stacky 52 Replies
    • September 9, 2007
    • 01:44 PM
    • 0
    Flag this Response
  • Bioset was developed by Dr Ellen Cutler who worked very closely with Dr. Devi N who developed NAET.You will only need one or the other...not both.I am so glad that you are taking the steps to get your life back.This treatment is miraculous.:D I even said to my bioset doc that he must feel like an angel when he "gives people their lives back"...he smiled ear to ear and said..."I do"...Be well my friend and let us know how it goes...will be thinking of you...mommy cat:)
    mommy cat 1654 Replies
    • September 9, 2007
    • 01:50 PM
    • 0
    Flag this Response
  • Thats so good to know, Thanks Mommy Cat. Is one more benificial than the other? (Bioset vs. NAET) Has anyone heard of Amino Acid therapy also? I came across an intersting website www.neurogistics.com. I am currently seeing a Naturopathic Physician and she mentioned it to me. Just curious to know if any of you have heard of this for the mental side of things.
    stacky 52 Replies
    • September 9, 2007
    • 09:02 PM
    • 0
    Flag this Response
  • Have you researched Wilson's Disease? It is caused by having an over abundance of copper. Brown rings around the cornea is very characteristic of Wilson's Disease. If it is found early and treated properly, the prognosis is very good.
    Anonymous 42789 Replies
    • September 10, 2007
    • 06:00 AM
    • 0
    Flag this Response
  • I dont believe in wilsons disease. Its a name made up by Dr Wilson who gives people a thyroid DX who do not have one.
    Anonymous 42789 Replies
    • September 10, 2007
    • 03:33 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.