Discussions By Condition: I cannot get a diagnosis.

I simply can't get a real diagnosis

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Misericordia
  • September 28, 2008
  • 07:42 PM

If anyone can help it would be most appreciated.

I am thirty two and I have had body joint pain for years. I was diagnosed with Fibro at twenty as well as given a diagnosis of herniated discs and stenosis etc. about four years ago.
BUT that is only part of the problem.

I am suffering from chronic chest pain. It started two years ago. It hurts behind my breast bone and right below it. The pain will radiate into the left arm and jaw. Sometimes it goes into both. The pain also throbs between my shoulder blades. The left side of my chest hurts the most and I have spent some days shaking my hand just to get some relief because of the pain running from my chest down my arm to my hand. I also get intense pain UNDER my left breast and down behind my ribs that will cause you to cry out over and over again when it goes from burning to spasming.

Sometimes the pain can be crushing other times it just burns and throbs and sometimes it feels like my whole chest is sore...as if I had bronchitis and coughed until I made everything sore. Sometimes it burns and spasms.

I often feel as if I have a lump in my throat...or food or something has *swelled* inside. It will also feel like my stomach is trying to come out of my mouth. Even my ears hurt and feel infected with this sometimes.
There is a lot of pressure in my head and prickly feelings in my forehead when this is at it's worst or right after I eat something, I spend a lot of money on cough drops because of this.
I can not cough or bend over without suffering horribly. I will be in misery for days if I do that or strain to do most things. Straining to defecate or urinate is out of the question as well. It will make my whole chest and diaphragm and arm and jaw hurt.

I also suffer when the chest pain is REALLY bad from these *bouts* of sinus rhythm tachycardia and PVC's that are made worse by any sort of chest strain or pressure or "chest jarring". They are also made worse by eating. I can throw PVC's just from swallowing.
I have seen a cardiologist and physiologist who says my heart is fine but will beat fast and skip beats for reasons they can't explain.
I have had a stress test and a angiogram test and several EKGs. I have even wore a halter monitor. I have had attacks that felt exactly like the way a heart attack is described.
Some have been so severe I urinated on myself a little from the pain.:(
(My heart rate has gone up to 150 and my pressure 180-109)

When I was a child they diagnosed me with hyper-mobility disorder and heartburn-reflux and a spastic duodenal bulb.

I went to see a gastroenterologist a few years ago but all they found was the reflux and IBS I have suffered from for years. I take nexium for one and a lot of fiber for the other. They also found a hiatial hernia and a little gastritis.

When the attacks and pain are at their worst I suffer horrible constipation....I don't know if that is significant or not. I also become weak and shaky.

This pain and physical limitations and heart palpitations have taken over my life. I can't get any relief. I am miserable and I don't respond well to any beta-blockers or any other stomach medication other than nexium...even then I still get reflux...just without as much acid in it.

Just hiccuping can send my chest pain into a spin for days..... I use to suffer nausea and vomiting and now luckily it is just nausea. I have vomited once in the past four months and I like to have passed out from the pain.

I also can't get a good breath for what seems like days when the pain and *fullness* are acting up. It feels like I have my stomach shoving into my lungs and like my stomach is going to come out of my mouth if I breath too hard or deep.

Does anyone have ANY idea?

I have okay cortisol and blood cell levels. I also have okay thyroid levels.
BUT my protein levels are rather low. As in all of them are low. And I have changed my eating habits greatly...I now eat healthier than I ever have. I eat lots of beans for example.

Another thing. When my chest and stomach pain are at their worst... I puree all of my food so I can swallow it. This helps some.

Can anyone help?

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6 Replies:

  • Have you read up on Ankylosing Spondylitis? The sore chest is one of the symptoms...
    Anonymous 42,789 Replies
    • September 28, 2008
    • 08:37 PM
    • 0
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  • Yes I have, and I have recently had an mri of my lower back and my upper spine.Wouldn't it have shown up there? None of my joints or any part of my body swell or become hot or inflamed. Why would this make my esophogus weak?Make it to where I can easily choke or have such intense pain that my heart palpitates and throws pvc's? I have had HARD heart beats that have lasted for days while my chest hurt and felt "full". Is there something I don't know about it? If so point me in the right direction.:):o You have to understand. ANY chest strain or exertion can set this off. It will hurt all day mildly as long as I do next to nothing. Exertion makes it a hundred times worse.Sex, urination, defecation, lifting, tugging, pulling,etc. has an effect on this.My chest and throat can hurt and swell to the point I can hardly speak and my voice sounds like I have a cold. It is most bizarre.
    Misericordia 4 Replies
    • September 28, 2008
    • 10:16 PM
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  • Please anyone don't think I'm being rude....if something I say sounds rude it isn't meant that way.I'm just in a LOT of pain and it makes it difficult to type and difficult to think. I am desperate for answers because the pain is taking over my life. And the heart "attacks" or bouts or what ever they are can frighten you and humiliate you.It feels like your dying.The pain is unGodly.
    Misericordia 4 Replies
    • September 28, 2008
    • 10:39 PM
    • 0
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  • Okay, based upon your description I think we're actually dealing with 2 different problems here. Let's speak about the GI problems first and foremost since that seems to what is causing the most pain. Based upon the former findings, it may be possible that you've developed ulcerative esophagitis, which can certainly account for the mid-sternum pain that bores through to the back between the scapluae. Palpitations and tachycardia are also common with esophagitis and coughing with hoarseness or sensations of bronchial irritation can represent signs of esophagitis as well. Esophageal spasms are likely the cause of most of your pain symptoms. Also, if you've been diagnosed with IBS, then you should be aware that high fiber can cause extreme exacerbation of the symptoms in some persons. While it's typically advised to relieve the symptoms of constipation, it can actually worsen the overall range of symptoms and discomfort in many patinets with IBS. The lump in the throat is typically induced by increased pressure at the esophageal sphincter and belching often relieves the sensation. Some patiens even describe a sense of thirst that is relieved on belching as well. It's also important to realize that severe constipation can set in motion the upper GI symptoms, whereas the reverse is not likely. I'd suggest a return visit to the gasteroenterologist and have an upper endoscopy performed, as well as acidity monitoring in the esophageal corridor to determine to what extent reflux may be present. If you suffer from IBS, then it may be advisable to withhold the high intake of fiber to determine whether it may be exacerbating, rather than relieving, your symptoms. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • September 28, 2008
    • 11:23 PM
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  • I have an appointment to see the gastroenterologist this week.When I saw one a few years ago they claimed that none of my symptoms could be caused by esophageal spasms or irritation and to eat lots of fiber. They did a scope then and said I had gastritis and reflux. But my symptoms have become much much much worse of late. I was also told that what I really might have was anxiety. And that my hiatal hernia would not cause ANY problems ever....unless it became strangulated.That the classic symptom of anxiety was IBS.*sighs* They also told me they had never heard of a spastic duodenal bulb....and that it did not matter that my grandmother suffered from a poorly functioning but stone free gallbladder or liver ailments as that did not really apply to me....essentially that it wasn't hereditary. So I am so glad to hear something from someone that might be leading me in the right direction. Thank you so much for your time.And for the wealth of information. I will update with what the doc says later this week.
    Misericordia 4 Replies
    • September 29, 2008
    • 00:16 AM
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  • The lump in the throat is typically induced by increased pressure at the esophageal sphincter and belching often relieves the sensation. Belching will actually hurt rather than help a good many times. And it doesn't relieve the pressure always. Could the hernia or possible swelling in the throat and chest area cause the pressure symptoms?
    Misericordia 4 Replies
    • September 29, 2008
    • 00:20 AM
    • 0
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