Can any one help me answer a few questions I have?
I was born with a severe case of this disorder, paralysis as early as 4 or 5.
It has attacked my whole body, there isn't an organ or an extremity that isn't effected. In all honesty, my family just brushed this under the rug hoping it didn't need any attention, meaning it wouldn't effect me any worse than did with the rest whom are effected in my family, (and there are a lot of us, at least one or two kids were effected per family, that in what I have read is a very high ratio.
My life has been a living ***l having to deal with this on my own, very little was ever said about it from my parents until I stubbled across it. I think it was all a huge conspericy, my mother gave us all some strange name of what she felt she had, needless to say I never found anyone that new what it was or had even heard about it??? I couldn't concentrate long enough to finish a single math quiz nor could i read a single page from a text book or a regualr book for that matter. Still no flags, I was just diagnossed with having a learning disorder and was placed in a special education class for the remainder of my middle school, high school and that was as far as i was capable of conning every one. I had no idea my mental instability or mental malfunctions as it were, were the result or cause of this circulation problem I was told i was born with..... never did i think for one moment my recent depression could have been caused yet again by HSP or FSP. (I include both becuase it would appear I have just about every symptom, from head too toe, as fantastic as that might sound if you were able to witness one of my seizures or as many as I can break out of myself to show just the extent of my problem.
My symptoms have become much much worse over the past five years, as amazing as this all sounds or as unbeleivable as it all may seem, especially to someone that has only a few mild symptoms. I had run out of hope, my life has been a total unwinding nightmare to put it mildly. For some reason my symptoms have become so much worse I have now attempted suicide twice in my life, one very recently, a valid attempt indeed, now I can't get it out of my mind, has this disease taken over now, having trouble walking, sleeping, eating at some times even leaving the house is something I am unable to pull off. Is there any hope for me, I don't have a great deal of time so if anyone reads this and feels they might have an answer or two for me I can't tell you how happy I would be.....
Thanks for reading, steven r on Vancouver Island, B.C.