Discussions By Condition: I cannot get a diagnosis.

I need some help with these symptoms!!

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: hollynadine
  • April 6, 2008
  • 04:57 AM

I'm a 20 year old female.
This month has been really awkward for me since for the most part I've always been quite healthy.

I've never been fond of hot weather to say the least, I get extremely annoyed and feel worn out even though Im Costa Rican.

Earlier this past month of March I was at Uni and the classroom was extremely hot to me although my classmates had their sweaters on and said it was cold. I began feeling dizzy, nauseous, and slightly sweating. Eventually ended up at the nurse's office. She said my blood pressure was slightly low, but nothing to be particularly concerned about, but she ordered a CBC.

When I got my results it said positive for thrombocytosis. I kept feeling quite dizzy, it has been a constant feeling of lightheadedness (like when you stand up really fast). I've also been having really bad knee pain for about 2 years but my other doctor only ordered Xrays and concluded it was nothing. however, after this thrombocytosis thing, the Uni doctor ordered ANAS and rheumatoid factor tests which both came out negative.

I have no idea whats going, and neither the doctors. I have a high sed rate, very mild petechiae, dizziness, fatigue, joint pain, and slightly low MCHC. My CBC was normal, although all of the numbers ranged borderline; some really borderline low and others borderline high like the WBC.

They said that the provisional diagnosis was polymialgia rheumatica, but then they said it could be fibromyalgia and Im still awaiting for the internist to say something, but in the meantime Im rather worried. Could anyone please please give me an opinion???

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9 Replies:

  • I woke up today because of my wisdom tooth ache... I saw about 5 red spots around my mouth, inner cheeks and inner lower lip. they look as if I wouldve bitten myself, but I didn't. Theyre not painful, nor swollen, it;s like theyre from the inside.my gum where my wisdom tooth is supposed to be is mighty swollen, looks like a balloon thats gonna be exploded. it hurts like ***l, and when I floss a bit of abscess comes out. I just have no clue about whats going on. I have an appt with the internist next friday, but in the meantime I'd like to hear any other opinions or thoughts.Im a psychology student and all I keep thinking about is that I might be crazy and this could all be stress and mentally related. It makes me feel awful to think like that.
    hollynadine 7 Replies Flag this Response
  • Your dental infection could be the source of most of your troubles. You have a dental emergency and need to have it removed immediately and get on anitbiotics. The sed rate indicates the infection is thoughout your body. Make sure you drink plenty of fluids, too.
    Monsterlove 2921 Replies Flag this Response
  • Well, it would make sense if the tooth ache wouldve started months ago but it just did on sunday. The rest of my symptoms have been going on some for years (like my knee pain and constantly not feeling well) however, petechiae has been for about 3 months and the dizziness and thrombocytosis and rest of things have been going on for over a month!!
    hollynadine 7 Replies Flag this Response
  • please don't think this is mental- your labs are pointing to it not being psychosomatic.if the internist cannot figure this out for you, you might consider asking to be referred to a hematologist. hopefully they will be able to figure it out;if they can't, you might consider a rheumatologist given your elevated sed rate, joint pain, and fatiguehope they figure it out soonbest wishes
    Anonymous 42789 Replies Flag this Response
  • I'm back!Well...I went to the internist which also happened to be a hematologist.Turns out I have Ehler-Danlos syndrome type 3. I always thought my hyperelasticity was because I practiced cheerleading and gymnastics when I was a kid...hahaHe ordered some more tests because my sed rate was high and the mean corposcular volumen was low. Did an electrophoresis and turned out that my fetal hemoglobin was high. He said It appears to be that I have a beta thalassemia.However..I was looking at the symptoms and nothing really matches. I mean, I might have the gene, however Im not particularly satissfied with the diagnosis. It doesnt explain my heat intolerance, dizziness, fatigue... he said the BThalassemia was mild, meaning I shouldnt be having any symptoms, and I dont so I really dont see the point in giving me such diagnosis. I need some help, my hem A is borderline low and fetal H is 6%Hem S is normal and hem A2 is 2.8%
    hollynadine 7 Replies Flag this Response
  • However..I was looking at the symptoms and nothing really matches. I mean, I might have the gene, however Im not particularly satissfied with the diagnosis. It doesnt explain my heat intolerance, dizziness, fatigue... he said the BThalassemia was mild, meaning I shouldnt be having any symptoms, Im wondering if you exhaust fast too?? Do you tire much more easily than most people? If so.. i have a suggestion on what the issue could be
    taniaaust1 2267 Replies Flag this Response
  • They said that the provisional diagnosis was polymialgia rheumatica, but then they said it could be fibromyalgia It doesnt explain my heat intolerance, dizziness, fatigue... Those symptoms and low BP usually goes along with it, is typical for CFIDS (chronic fatigue immunity dysfunction sydrome..also called chronic fatigue syndrome (CFS). I have CFS and are so sensitive to heat (im also sensitive to cold, im all over the place).. that Ive actually gone unconscious due to heat 2-3 times in the past 6 mths. Fibromyalgia is an over lapping illness with CFS.. most with CFS..have fibro and a quarter of people with fibromyalgia..have CFS. and slightly low MCHC. Thou i havent read anything about CFS and low MCHC (Im not quite sure what that is).. in my own test results my MCHC is just out of the normal ranges and low. (if that has something to do with clotting?? studies have shown that 3 quarters of CFS people have hypercoagulation or abnormal blood with "thickish, sticky blood" (something to do with the platelets?? but specialised tests need to be done to show this).
    taniaaust1 2267 Replies Flag this Response
  • hi.well your post pretty much has to do with my first post...as I stated on my last post, the electrophoresis came out with some results that were indicative of a beta thalassemia...
    hollynadine 7 Replies Flag this Response
  • Are you on birth control? DOM
    acuann 3080 Replies Flag this Response
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