I have a great deal of symptoms and am wondering if, at least some, aren't connected to one another. I have been to Drs. occasionally, when one symptom gets bothersome enough, and they either do bloodwork, and say "No Worries...Everything is fine...Eat less carbs...Eat more protein...change your excersize habits....and so on", or take a stab and treat me for whatever seems should be the most likely cause. This has caused me a lot of frustration, and has made me very reluctant to bring things to the attention of a Dr. because I hate to be perceived as being in need of attention in some way, and when I'm told, "Don't worry...You look fine," they might as well say, "You're really making something out of nothing...now be a good girl, and go home."
Okay...to start...when I was in my teen years, I started feeling exhausted all of the time. For the next few years, I'd bring it up when I'd see a Dr. for something, and get bloodwork and one of the replies mentioned above. Two years ago, after years of this horribly overwhelming, and constant, exhaution, I went to a Dr. and said, "Look at me. There is something wrong. I can not stay awake. I can sleep for days on end. I can not drive a car 3 miles without dozing off..repeatedly. There is nothing wrong with my diet, my thyroid, my sugar level, so there's no need for bloodwork. You have got to help me." At that point, he was ready to hand me off to someone else :) and sent me to a sleep specialist where I had a 24 hour sleep evaluation. Every 2 hours, they allow you to lie down(and if they see you start to doze off between they come and get you on your feet) for 20 min. to see how fast you fall asleep each time. I averaged less than 2 min., with one time being 45 seconds. I was diagnosed with Narcolepsy and put on Aderall, and am now on the maximum legal dose, which gives me, generally around 8-10 awake hours per day.
Also, about 2 years ago, I started having this discomfort in my upper right abdominal quadrant(actually, that was what I'd seen the Dr. who sent me for sleep study for). A G.I. Dr. did and ultra-sound of my gallbladder, said everything looked fine, but put me on belladonna for my "gallbladder pain" anyway. Last year, I was putting on make up, and all of the sudden I had this excrutiating pain in the same area, that I could not find relief sitting, standing, lying...I went to the ER, was given several doses of Demoral(which hardly phased the pain..this was like giving birth pain). After several hours, the pain just stopped, very suddenly. The ER Dr. said he didn't know...maybe a gallstone.
In November, I said to my husband(jokingly) that I thought I might have arthritis because my shoulders, wrists, and fingers would hurt intermittently and then my toe joint started really hurting bad. A day or two later, my daughter noticed that my toes were turning purple, while I was standing one day. I didn't worry about it, but it started happening every day, and then was almost constant when I'm sitting or standing. At this same time, I got these itchy bumps on the bottom and ends of my toes that itched like crazy at night. They disappear as quickly as they come, but there is still visible scarring when they "go". Plus, I started to lose sensation in my toes, then feet and my calves started also turning purple. My legs and feet get horrible cramps, day and night, but more at night.
I also have a lot of pain in my hips now.
Then, my vision got bad, very quickly, and I've lost a lot of depth perception..night vision is horrible. I'd always had 20/20.
Right after Christmas, I sat down at the computer, maybe 5-10 min. When I went to get up, I fell right back in the floor. I thought that I'd somehow tripped, but when I went to pull myself up, I realized that I could not feel my legs or feet at all, like they were asleep. I pulled myself up, supported by the chair and table, and my feeling gradually came back, but I had no "pins and needles" sensation, like when a part "falls asleep". This also happens to my hands and arms at night now.
Near the end of December, I started having horrible night sweats, waking several times during the night, drenched. This had never happened to me before.
About the same time, I started getting very fevered, or my skin was very hot on my thighs, torso and neck in the evening. I was having trouble getting out of bed at all.
I finally decided that I'd bite the bullet and see a Dr....again(with a little encouragement). I explained what was going on...they checked my blood pressure- 90/60, he noticed that my pulse was weak in my feet. He told me that he'd probably need to refer me to a neurologist, but would run some bloodwork first.
Since they told me that they'd call w/ results, after a week, I called to see if I could find out if anything. He'd been on vacation, since after my appointment, and the he'd need to deliver the results himself. I coaxed out of the nurse, that my white blood cell count was low....3.2, and everything else looked fine. She said we definitely need to find out what's going on.
After another week and a half, my husband called the Dr. to see if we could find out what our next step was. He never returned our call, so he took me to the ER, where they informed me that my white blood cell count was up to 5.4(possibly due to the bladder infection that they also discovered while I was there)....and suggested I follow up with a regular physician.
I am at my wits end. I'm 27 years old and am not overweight(110-115 lbs.). I have had to leave a career that I'd worked very hard to establish, and as a result, have had to send my 3 girls to live with my ex-husband, as I was the sole provider for our family and my husband was a stay at home caretaker(which worked great for us...until I couldn't work and he doesn't have the experience to jump into a lucritive career). I've lost everything, and am living in government funded apartments, in the worst part of town, and have not seen my babies since Christmas Eve. If this illness doesn't kill me, the heartache that is causing me surely will.
I know that this is long...but I'm desparate, and grasping at straws here. I thank(profusely) anyone that has taken the time to read this, and anyone that might have some insight. God Bless All ~
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