Discussions By Condition: I cannot get a diagnosis.

I need help in Pain for years no answers

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: bszkcahopkins
  • October 26, 2007
  • 06:05 PM

I am a 27 year old female who is deperate to find an answer. I have been having abdominal pain for years now. I had a hysterectomy because of endometreosis and they thought that would fix they pain and it explained it, but it didn't. I then had my appendix removed and a hernia fixed and they thought that would fix it, but it didn't. Then I started having vomiting often and they thought it might be my colon so after two colonoscopies they have ruled that out. My symptoms are as follows: abdominal pain, abdominal swelling, diahrea and constipation, vomiting, fevers, no change in WBC, large liver, history of flank pain with no cause either, graves disease had thyroid removed. Need HELP PLEASE!

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  • I WOULD RECOMMEND GOING TO A CHIROPRACTOR BUT NOT JUST ANY CHIROPRACTOR BUT THE ONES THAT WORK WITH THE BALANCE OF YOUR BODY IN A NATURAL WAY. ITS CALLED APPLIED KINESIOLOGY CHECK OUT A WEBSITE AND CAN DIRECT YOU TO ONE AROUND YOUR AREA. http://www.icakusa.com/ IT HELPED ME A LOT I SUFFERED FROM CALF PAIN LIKE CRAZY SINCE I WAS 13 I AM NOW 19 AND NO DOCTOR COULD FIND ANYTHING WRONG I WENT TO HER AND SHE GAVE ME CALCIUM AND TOLD ME IT COULD BE A CALCIUM DEFICENCY AND THAT SOMETIMES THOSE THINGS DON SHOW UP ON BLOOD TEST I CAN NOW WALK AND SLEEP SO MUCH BETTER SHE BROUGHT MY LIFE BACK.
    coolgirl8802 2 Replies
    • October 26, 2007
    • 08:38 PM
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  • Anyone ever recommend having your pancreas checked out? It's not real common but is often overlooked.
    sammyk 3 Replies
    • October 27, 2007
    • 04:37 AM
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  • I am a 27 year old female who is deperate to find an answer. I have been having abdominal pain for years now. I had a hysterectomy because of endometreosis and they thought that would fix they pain and it explained it, but it didn't. I then had my appendix removed and a hernia fixed and they thought that would fix it, but it didn't. Then I started having vomiting often and they thought it might be my colon so after two colonoscopies they have ruled that out. My symptoms are as follows: abdominal pain, abdominal swelling, diahrea and constipation, vomiting, fevers, no change in WBC, large liver, history of flank pain with no cause either, graves disease had thyroid removed. Need HELP PLEASE! Hi!I am so sorry for your situation. I am in a very bad situation myself. I am in constant very weird abdominal pain since three years and a half after two surgeries, one for appendicectomy and heamoperitoneum, and another for P.I.D. during which my right tube was removed. It is a very long and complicated history, but I can tell you that after the second surgery I have been in ***l for about two years not even able to get up from bed, in constant horrible pain which from my uterus spread to all my abdomen. Pain-killers and antibiotics were not effective. I lost 10 kg and had costant fever. Doctord think I got an infection in the OR during my second surgery but could not tell what was and gave me a lot of drugs without improvement. But they figured this out only after one year during which I was first disgnosed with endometriosis and was on a menopause for that, I had 2 colonoscopies, 2 gastroscopies, etc. in order to rule out other things. Now my infection is just chronic and I have tried everything in the world to get rid of my pain. Anyway, because of that I might be able to give you some advise (I beleive every story is different and one should try everything), but I need to know better your story. Would you explain it to me with more details? e.g. what kind of pain it is? continour or not? is it pelvic or abdominal? When and how did it start? If you prefer I can give you my e-mail or phone number. Let me know.Best,Vale
    Anonymous 42789 Replies
    • October 28, 2007
    • 08:59 PM
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  • It started after my hysterectomy and then four moths later they removed my appendix because that was what they though was the cause of the pain and the fever. They also at that time fixed a hernia. It is in the lower left abdominal and is cramp like to sharp. Also I get sharp pain in the pelvic region and sex hurts. My WBC count has been normal though was your?
    bszkcahopkins 2 Replies
    • October 29, 2007
    • 02:34 AM
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  • It started after my hysterectomy and then four moths later they removed my appendix because that was what they though was the cause of the pain and the fever. They also at that time fixed a hernia. It is in the lower left abdominal and is cramp like to sharp. Also I get sharp pain in the pelvic region and sex hurts. My WBC count has been normal though was your? Please consider trying acupuncture and Chinese herbal medicine to help you. Sounds like your docs are surgery happy! Did they explain to you that having a hyster would not necessarily stop your endo? They should have. Did you have a FULL hysterectomy? I am sorry you are in so much pain. Please look into acupuncture as it is so very helpful. Visit www.acufinder.com and type in your zip code to find a qualified one near you. Visit www.NCCAOM.org for more info. Make sure you find one who is NCCAOM certified in Chinese herbology. My last thought is to follow the post on pancreatitis - this can cause severe pain. Best wishesDOM
    acuann 3080 Replies
    • October 29, 2007
    • 02:51 AM
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  • It started after my hysterectomy and then four moths later they removed my appendix because that was what they though was the cause of the pain and the fever. They also at that time fixed a hernia. It is in the lower left abdominal and is cramp like to sharp. Also I get sharp pain in the pelvic region and sex hurts. My WBC count has been normal though was your? Hi!Thank you for replying. My WBC was high only in the begnning before my first surhery, then for the all time only a little bit high and doctors could not explain that: after my surgery my belly was incredebly swallen and I had high fever and was losing weight but my WBC was not high.You say that it started after your hysterectomy, then I assume that before you had only (!) endometriosis pain (am I right?): painful periods? painful ovulation? and others? Well, Dom is right and you can have endo even after your uterurs has been removed, some women even get it when they are on their menopause. What kind of endo did you have? Cysts or implants? and where? did they tell you the colour? did you have adenomyosis as well? if you had endo anywhere else than your uterus and they did not remove it you will still get pain: if you have surgery for endo and not all is removed your pain will not go away. You can read this in the following book 'Endometriosis and other pelvic pain' by Dr Susan Evans and others. In this book it is also very useful the last section on complementary medicine: it explains that endo is due to imbalance between oestrogen and progesterone (even if it does not show on test or it could be relative: e.g. in my case my oestrogene is ok, but my progesterone is low). It suggests many herbal things to balance that and other things and it sounds useful: I am about to try that myself.But the most helpful books on earth for endo are the ones by the American Associations on Endo: did you ever see them? One is entitled 'Endometriosis. The complete reference for taking charge of your health' by Mary Lou Ballweg. There is also an other one but I do not have it here, but you can find reference in their website: EndometriosisAssn.org.They also talk about chinise medicine and acupuncture and it helped some women with endo. I tried it myself. Unfortunately it did not help me, but my case it much complicated by the infection which might be abdominal tuberculosis, so... Anyway, I personally know a girl who was completely cured by acupuncure from endo cysts.In the book they also talk about immonetherapy for endo: do you have an history of allergy or vaginal candida? It seems that candida can open some bad windows in your genes and trigger endo. They pubblished some scinetific articles on this. I was recently tested for candida and fungi and I have them and I am going to take medications for them and also go on an anti-candida diet. Although endo is not my main problem now, I want to do something for it as well.But what I would strongly raccomand you is that you visit the website www.clearpassage.com. I think your case could be helped by them. Where do you live? They are in Florida, New York and other places as well. I have been in Florida and they are wonderful people and they do make every effort to help you and I do not want to give you false hope, but you story sounds like a typical case they could help. I have been there, but because of my mysterious infection they could not do much, but still my pain with sex was diminished and also my period pain for a couple of months after I went there was less. Many people with endo went there, and especially people who had surgery. They are very professional. They said my case would need constant care by them but unfortunately I live very far... but people with easier situations were completely cured by them after 10 or 20 hours treatment. Please really consider it.Let me know what you think of all this.Best,Vale P.S. You did not tell me if the pain is continous or not. Also tell me what your symptoms were before the surgery. How long ago did you have the hysterectomy?
    Anonymous 42789 Replies
    • October 29, 2007
    • 09:33 AM
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  • I have tried acupunture about a year ago along with herbal rememdies. It was a full hysterectomy, but it was unfortunately necessary. I had already had cervical cancer in 2003 and I have a very relevant family history of uterine and ovarian cancer also. I was also getting fibroids and was bleeding for months at a time. I really appreciate all the support and advice. I do agree though that all the other surgerons were knife happy
    bszkcahopkins 2 Replies
    • October 29, 2007
    • 09:46 AM
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  • Hi!My reply was not posted. I do not why; maybe it was too long. Anyway, basically I was saying that dom is right: removing your uterus does not always cure endometriosis, and I was referring you to two books and the strategies they speak about foe endo:1) 'Endometriosis and other pelvic pains'2) 'Endometriosis. taking charge of your health'I was also asking more info about you: what symptoms did you have before your uterus was removed? how long ago was that surgery? what kind of endo did you have? cysts or implants? where? (myine is in the recto-vaginal septum) did they remove all endo when they removed your uterus? if they did not you'll still have pain for endo. Acupuncture is a good idea for endo, as it is the immonotherapy suggested in book 2.Also you have to visit the website www.clearpassage.com: I think they could really help you. Sorry if I keep it short but I am afraid this won't be posted again. If you want I can tell you more aboput these therapies and people who treid and my experience.Best,Vale P.S. My WBC was elevated only before my first surgery and after that only a little elevated. that was weird since I have fever since three years and very high after second surgery and my belly was very swallen and I was losing weight very quickly.
    Anonymous 42789 Replies
    • October 29, 2007
    • 05:24 PM
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  • I have tried acupunture about a year ago along with herbal rememdies. It was a full hysterectomy, but it was unfortunately necessary. I had already had cervical cancer in 2003 and I have a very relevant family history of uterine and ovarian cancer also. I was also getting fibroids and was bleeding for months at a time. I really appreciate all the support and advice. I do agree though that all the other surgerons were knife happy I am so very sorry that you had to have a full hysterectomy. Then ignore what I wrote about hormones imbalance. Doctors proposed hysterectomy to me as well and I have been thinking about it, but then the infection situation coming form the second surgery prevents it.Anyway, I wanted to ask you: are you then on hormones replacement therapies? I ask just because that can give you a lot of endo even if you have no uterus (there are a lot of stories in the books about that). Maybe you can try to check whether there is any different approach for that (maybe natural). Try to check in the books I told you, especially the ones by the endo association or e-mail the association.Please try also to talk to people at the clear passage: they will consider your situation for free and have a free phone call with you so that they can tell you whether there is a possibility they can help you.I would really like to help you. Although our stories are different, I understand you. Often I wish I could just be dead so I would not feel the pain anymore, and sometimes I even made plans for that... I think life is just so unfair. Why should we suffer so horribly at suh a young age? Also many people and friends just got tired of me being always so sick and disappeared or said horrible things. I hope that did not happen to you.My thoughts are with you.Love,ValeP.S. Can I ask where are you? I am in UK.P.S.II: was you cancer caused by HPV virus? I had that virus and beginning of cancerous cells on my cervix but was cured for that. It was in 2002.
    Anonymous 42789 Replies
    • October 30, 2007
    • 11:41 AM
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