Discussions By Condition: I cannot get a diagnosis.

I need help! I cant think about this anymore!!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: khet123
  • September 24, 2008
  • 11:47 PM

I have been having problems that are steadily increasing for the past three years. I would like to get some input from some of you to see if you can help me narrow down what is wrong with me. This is now affecting every single part of my life. I am a 33 year old woman who has just quit smoking a month ago. I have been having problems for three years now, and no one can tell me what is wrong with me. I had my gall bladder removed in July of 2005. I did not have any complications from the surgery except that my side hurt for about a year after I had the surgery. The surgeon said it was nerve damage and let it go at that. I still get pain in my side on and off, but for the most part it doesn’t bother me anymore. About a year after the surgery I started getting these attacks where all of a sudden I would feel like I was going to pass out.
I went to my GP and he ran a six hour blood glucose test on me and determined that I was hypoglycemic; the results stated that at the end of the test my blood sugar was below 50. The doctor wanted me to cut sugar out of my diet. I did this, only to become extremely fatigued constantly, but I was willing to live with it, if my body couldn’t tolerate sugar. I went along ok for the most part, but still was experiencing the feeling that I was just going to all of a sudden pass out. I let it go for a long time and just dealt with it, thinking my sugar was just out of whack, but the more I paid attention to it the more I found that the symptoms I was having had absolutely no consistency to what or when or how I ate. I kept a journal recently of when and what I ate and bought my own glucose monitor and started tracking my blood sugar on my own. I went back to my GP and showed him that my blood was in the perfectly normal range all day long, even after sleeping, and question if I could possible have a thyroid problem. He didn’t think so, but ordered blood-work and it came back normal for thyroid, insulin, kidney and liver function and cholesterol. While I was there I mentioned that my right ear felt like there was fluid in it all the time. While I was there I mentioned that I felt like I constantly had fluid in my ear as well. He suggested I go see an ENT thinking my balance may be off due to an inner ear problem.
I went to see the ENT who suggested that I probably had Meniere’s disease. He put me on lipoflavanoid and ergoloid, and a diuretic and told me to get off of salt. He also scheduled an MRI so they could rule out tumors of the brain and cancer. The MRI came back with no abnormalities, and no fluid in my ear, so the ENT said it couldn’t be Meniere’s because I had no fluid in my ear. I am still on the two medications because I had a small amount of low frequency hearing loss in my right ear and it had actually come back up to normal. He scheduled me for a balance test which I just took yesterday a (EMG?) they found no irregularity with my balance nerves either. He is now sending me to go see a neurologist and I am waiting for them to call to set up the appointment. For some reason I seem to feel worse in the mornings and early afternoons, usually I feel pretty good, although tired in the evenings. The symptoms I am having are:

Decreased alertness - hard to stay alert & focused on tasks.
Difficulty concentrating- Having trouble staying focused while reading, writing, speaking- thoughts jump around. Lose thoughts easily, particularly while explaining things
Fatigue - “sleep attacks” where eyes begin burning - always tired
Increasing depression fearing I am seriously ill
Tingling-(rarely but does happen) mostly in hands
Sensitivities to light, noises (very “jumpy”)
“Brain fog”- feel as if I can't think straight
Difficulty finding right words
I am usually cold.
Decreased libido- increasing loss of interest as fatigue gets worse. Too tired
Low stress tolerance- very easily stressed or irritated, especially at work
Urination issues- Frequent urination, have to get up once or twice at night even
Stomach- constipation alternating with diarrhea (mostly constipation)
Pressure behind right ear, stinging pain behind right ear, inside of ear hurts periodically and itches, pressure and ringing in ear when not on two medications from doctor
Cramp in right side of neck
Pressure behind right eye, right side of nose always stuffy
Less frequent, but most severe and scary, I get small attacks where I get extremely anxious (I describe it as feeling like I am going to pass out, but am wondering if that is an accurate description) it feels like my chest tightens, my ears ring, and I feel like I need to get up and run. I get extremely emotional when this happens as I truly feel something is really wrong when it does. This is the most severe of the attacks. The majority of the time it is more of a feeling like my brain is “foggy”, or I feel very disoriented, or as I describe it “not connected.”. I also almost feel a little off balance.
I forgot to mention that I tend to always have lower blood pressure, none of the doctors have said it was a problem, but it tends to be like 90/68. When I get really nervous it barely moves up.

If anyone can help me by at least pointing me in the right direction, or if anyone else has the same problems I have I would like to hear from you. I think I am going to give myself a heart attack from worry!

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2 Replies:

  • Have you had your cortisol levels checked. Sounds like you might be a bit low? It will cause anxiety, fatigue, brainfog, low BD, stress intolerance and more. Cortisol is at its highest in the am and its lowest in the pm. You will want to have it checked multiple times - in serum and salavia as well as in a 24 hr urine test. In the meantime you should try googling hypocortisolism. Also you should ask for your thyroid results. Some doctors will tell you that you dont have a problem, when you actually might. My TSH was 2,3 (upper range 5)the first time it was checked and I was having very bad symptoms. I took 8 months before it actually hit the upper limit and I was put on meds. Kiera
    Anonymous 42789 Replies
    • September 25, 2008
    • 06:52 PM
    • 0
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  • Thank you so much for your recommendation! I have been wondering if the thyroid test was accurate, the symptoms just sounded so close to what I have. Is this something the neurologist can review? I'm new to these specialists and am not quite sure how they do things. Would this make you feel like you are going to pass out? I'm not sure if I don't have anxiety problems on top of whatever the medical problem is now because of worry. I just want my life back and am looking for any help I can get. I have always been a put together person, and I feel like I am loosing it now. I will call my GP and see if I can get a copy of those results to bring to the neurologist as well.
    khet123 2 Replies
    • September 26, 2008
    • 01:14 AM
    • 0
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